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PSCKY
Call us!502.426.0888
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Dear Friends:
Thank you to all who've participated in our "30 Days of PD Awareness" Campaign. Many of you have returned the "In April, I will help by..." volunteer forms that we enclosed in your April print newsletter. Thank you! Many others have sent a $30 donation to help us provide education and screening to folks who may be living with undiagnosed PD. Thank you! Others are following our "30 Days of PD Awareness" on Facebook (more information later in this newsletter). Thank you!
 With the help of Karen deGraaf, we have received proclamations from multiple government leaders declaring that April is Parkinson's Disease Awareness Month in their locality. These include:
- New Albany, IN, proclamation issued by Mayor Douglas B. England
- Jeffersonville, IN, proclamation issued by Mayor Thomas R. Galligan
- Commonwealth of Kentucky, proclamation issued by Governor Steven L. Beshear
- Louisville, KY, proclamation issued by Mayor Jerry Abramson
- Shelbyville, KY, proclamation issued by Mayor Thomas L. Hardesty
- Bardstown, KY, proclamation issued by Mayor Richard Heaton
No matter how you help, we appreciate you joining us in raising awareness of PD this month. Together, we are making a difference in lives across Kentucky and Indiana. Thank you! If you did not receive an April print newsletter, please let us know by email.
Finally, I'd like to encourage you to help us by "GoodSearching".
GoodSearch
will donate a $1 for every toolbar that is downloaded
between Tuesday, April 6th at 9am EST and Friday. April 9th at 9am EST up to $5,000!! With the GoodSearch Parkinson Support Center of Kentuckiana toolbar - once added to
IE or Firefox, each time you shop at more than 1,300 stores (from Amazon
to Zazzle!) a percentage of your purchase will automatically be donated
to Parkinson Support Center of Kentuckiana - at no cost to you (and you
may even save money as the toolbar provides coupons and deals as
well!). The toolbar also has a search box and each time you search the
Internet, about a penny is donated to Parkinson Support Center of
Kentuckiana.
Wishing you well this week,
Jinn Fuller Renfro
Executive Director
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EXERCISE & PD
 This story in the New York Times underscores the importance of exercise and PD. While exercise is "good for everyone", it is particularly important for people with PD. So, read this article, and then join the new Walking/Hiking group for people with PD (and any community members or friends who wish to participate)! |
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SIT, STROLL or STRIDE WALKING & HIKING CLUB
The first walks are this Friday and Sunday! Let us know you're coming and we'll send you more detailed info about this month's walks!
SIT, STROLL or STRIDE WALKING/HIKING CLUB FOR PEOPLE WITH PARKINSON'S DISEASE AND FRIENDS!
SIT: Don't feel like walking? Come on out and sit in the fresh air! 
STROLL: Need to go slowly (or roll)? Need a paved surface? Stroll with us! Friday morning walks tend to be paved & easy.
STRIDE: Feeling more adventurous? Sunday morning walks will generally offer both an easy/paved walk and an unpaved hike.
THINGS TO BRING:
- Water bottle, needed meds
- Sunscreen, hat, comfortable & appropriate shoes
- Walking stick or trekking poles
- Signed waiver for PSCKY files
- An attitude of fun and joy as we sit, stroll or stride!
Sierra Trading Post has a wide selection of
trekking poles, and is presently running a 20-25% off sale. This might
be the perfect time to nab a pair! OPTIONAL THINGS TO BRING: THINGS TO KNOW: This is a volunteer-led group Our goal is to encourage people to get out and walk together Everyone is welcome, even if you aren't up to exercising that day. This group is for people with movement disorders, family and friends. EVERYONE is welcome! We meet 15 minutes before we start walking. We start walking promptly at the "Launch Time." We need volunteers to help plan future walks & commit to being at walks We need people willing to serve as carpool drivers Walk is canceled if it is raining more than a light drizzle. This will be announced in an answering machine message at 502-426-0888.
SCHEDULE: Friday, April 9: Anchorage Trail (Kentucky)1544-1598 Evergreen Rd, Anchorage, KY 40223
Meet at 9:15am
Walk at 9:30am
Meet at parking lot across from entrance to trail.Level: Sit or StrollBathrooms Available? NoBenches Available? YesSunday, April 11: Iroquois Park (Kentucky)5216 New Cut Rd., 40214(Taylor Boulevard and Southern Parkway)
Meet at 8:15am
Walk at 8:30am
Meet in front of the Iroquois Amphitheater. Level: Sit, Stroll or StrideBathrooms Available? YesBenches Available? YesFriday, 16 April: Thurman Hutchins Park (Kentucky)3734 River Rd., 40207 (River Road and Indian Hills Trail)
Meet at 9:15am
Walk at 9:30am
Meet at the parking lot near the restrooms. Level: Sit or StrollBathrooms Available? YesBenches Available? YesSunday, 18 April: Blackacre State Nature Preserve and Historic Homestead (Kentucky)3200 Tucker Station Road Louisville, Kentucky 40299
Meet at 8:15am
Walk at 8:30am
Meet at the Visitors' Parking Lot between the homestead & the horse pasture.Level: Sit, Stroll or StrideBathrooms Available? YesBenches Available? YesNOTE: No dogs allowed. No paved trail, but some easy walks.Friday, 23 April: Falls of the Ohio State Park (Indiana) The Falls of the Ohio State Park is located at the end of West Riverside Drive, Clarksville, Indiana. Take Exit 0 on Interstate 65 and follow the signs.
Meet at 9:15am
Walk at 9:30am
Meet in the parking lot behind the Falls of the Ohio Interpretive Center. Level: Sit or StrollBathrooms Available? YesBenches Available? YesNOTE: $2 requested for parking, supports the Center. If you want to visit the Museum while you're here, the $5 admission INCLUDES parking.Sunday, 25 April: Mt. Saint Francis Center (Indiana)101 St. Anthony Drive Mt. St. Francis, IN 47146
Meet at 8:15am
Walk at 8:30am
Meet in the parking lot by the Post Office.Level: Sit, Stroll or StrideBathrooms Available? YesBenches Available? YesNOTE: No dogs allowedLET US KNOW YOU WANT TO PARTICIPATE SO WE CAN SEND YOU INFORMATION & THE WAIVER! Email Jinn with your name & address. We are trying to arrange carpooling for folks who need a ride. Please let us know whether you 1) need a ride, or 2) can offer someone a ride. Thank you! |
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A VACCINE TO HALT PD?
Researchers at UNMC are working on a vaccine to halt the neurodegeneration associated with Parkinson's disease. Early results in mice are promising, and the study is recruiting human subjects. This is exciting news!
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REGISTER NOW: LEARNING ABOUT MEDS
Parkinson's eHOP Workshops Begin May 5th
Lynn
Harrelson, a Senior Care Pharmacist and owner of Senior Pharmacy Solutions will
be running the first of five Parkinson Enhanced Healthcare Outcomes
Program
workshops (Parkinson eHOP) starting May 5th at Home Instead Senior Care, 4610
Taylorsville Road from 4:30 p.m. -7:30 p.m. There is no charge for
these workshops, but space is limited. The program
workshops will provide
people with Parkinson's and their care partners an overview of
medications used
in the treatment of Parkinson's disease, forms to track and manage
medications,
"how-to" tools, and other resources. Lynn will
also speak to the
importance of understanding, using and managing your medication in
better ways,
as well as the need to share specific information with your healthcare
providers. Every person with Parkinson's
participating in these workshops will receive a personalized
notebook containing
specific information about your medications to take with you. This program
is made possible by a
2010 partnership grant from the Parkinson Support Center of Kentuckiana
(PSCKY). To register, please call PSCKY at
502-426-0888
or email, support@pscky.org.
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ON THE WORLD WIDE WEB
 PSCKY is now on Facebook! Please "become a fan." Thanks to everyone who's joined up so far! We now have 220 "fans"...and we welcome your pictures, posts and conversations on our Facebook site. If you're our "fan" on Facebook, please check out the 30 Days of PD Awareness 2010 campaign we're running! Each day, we bring you information about PD from a variety of different viewpoints. If you're not yet a "fan", please register for Facebook and join us! |
 IN OUR COMMUNITY
Interfaith Paths to Peace invites you to hear Rev. Sally Bingham speak on the connection between faith and care for the natural world. The presentation will be held on Wednesday, April 7th at 7pm at Adath Jeshurun Synagogue (2401 Woodbourne Ave). This visit in in conjunction with the 2010 Green Pilgrimage: Walking the Olmsted Parks and Pathways that Connect them, a four-day walk celebrating the beauty of our community. An eight-week Family Caregivers Lecture Series will be held at Norton Audubon Hospital. The first class, Transitioning from One Level of Care to Another, will be held April 8th from 4-5 pm in the Sixth Floor Joint Care Gym. For a list of other topics or to register, call 502-629-1234 or visit this link. The Men's Health Initiative of the Center for Health Equity presents It's a Man's World Spring Health Festival on Saturday, April 10th from 11am-3pm at the Newburg Community Center (4810 Exeter Ave). There will be free glucose, blood pressure and prostate screenings along with a wealth of health care education and info. All male attendees who participate in the free health screenings will also be eligible to win prizes. Call 502-574-6616 for more information. The "Rollin' on the River" 2010 Derby Seniors Dance will be held Friday, April 16th from 11:30am-2:30pm at the Crowne Plaza (830 Phillips Ln). Tickets are $9. The event includes the Robbie Bartlett Band, box lunches, door prizes, Derby hat contest and a health fair. Call 502-583-8012 for more info. Peterson-Dumesnil House Antiques Appraisal Day- Sunday, April 18th 1-5 PM; doors open at 12:30. Scott Nussbaum, nationally known antiquarian & certified appraiser, will offer verbal appraisals of your antiques. $10 per item or 3 items for $25. All proceeds benefit the PDH Foundation. For more information, contact Suzanne Ward 897-7819. St. Matthews United Methodist Church will host a Tranquility Tea for Caregivers, Sunday, April 18th from 2-4pm. The theme is "A Mad Hatter's Tea" with Alice in Wonderland inspired refreshments and a hat-making demonstration by a retired milliner. Contact Kathy Nugent at 502-479-7412 or Eileen James at 502-671-7767 to reserve a spot or to recommend a caregiver to receive an invitation. The Marshall Women's Health and Education Center at Norton Suburban Hospital will present Parenting the Parent Dealing with Dementia: Signs and How to Cope on Tuesday, April 20th from 6-8pm. For more info or to register, call 502-629-1234. Giant Spring Yard Sale at the Peterson-Dumesnil House- Saturday, April 24th 8:00 - 1:00 PM- "Rain or Shine" - Come shop or call Cabrina at 897-6413 to rent a 12'x 12' space for $20 (proceeds go to the PDH Foundation). You may also donate an item to the PDHF White Elephant Sale on front porch. The Kentucky Association for Gerontology invites you to a Celebration of Aging--Endless Possibilities on April 25-27th. Sessions will focus on physical and mental health, strategizing for the future, active aging and aging in place. For more info, visit their website. | |
DON'T FORGET!
MONDAY, APRIL 5th
9am: Music & Wellness Group ( Norton Audubon Hospital; 6th Floor Joint Care Gym). Music & Wellness is a free weekly class that uses music-based activities to accomplish individualized goals in a therapeutic setting led by a certified music therapist. There is no cost for this group, which is open to people with Parkinson's disease. This class still has openings: call 502.426.0888 to register! Jinn will be attending today's launch of this program. 5:30pm: Support Group for Care Partners of People with PD & Dementia ( KT's Restaurant, 2300 Lexington Rd, off of I-64 at the Grinstead Ave. exit). This group is only for care partners and family members of loved ones with PD & dementia. Please RSVP to group host Mary Kay Flege at 502.664.8560. 6:30pm: Shelbyville "Moving On" Exercise Group ( Jewish Hospital Shelbyville Community Room (rear of hospital); Hospital Drive off Hwy 60). There is no cost for this group. For more information: call Dyna at 502.377.7562 or e-mail her at dynazehn@myway.com. TUESDAY, APRIL 6th
Noon: Louisville Chair Yoga Group (Yoga at Crescent Hill; 201 S Peterson Avenue, 40206; lower
level). To register: email support@pscky.org or call 502.426.0888. A $10 donation is requested, but all people with Parkinson's disease and their partners are welcome to attend.
Remember, the 2pm support group is now meeting with the 6pm J-town/Hurstbourne Support Group listed below!
5:30pm: Denim & Diamonds Auction Committee meeting (Ewalds)
6pm: J-town/Hurstbourne Support Group (Home Instead Senior Care; 4610 Taylorsville Rd). An open support group for people with PD, care partners, friends and family. Speaker for today is Becky Beanblossom, Home Instead Senior Care, speaking "All About In-Home Services." Hosts for the group are Jim and Jeff Baugher. For more info, call Jim at 239-6100 or email him.
7pm: Floyd Memorial Support Group (Floyd Memorial Hospital, Paris Health Education Center, 1st floor across from cafeteria). Today's meeting will have open discussion, with a presentation by either Jinn or Katherine of the City of New Albany's proclamation that April is Parkinson's Disease Awareness Month to the group. For more info, call Mel Brown at 812-989-6542.
WEDNESDAY, APRIL 7th3pm: Katherine and Adina meeting with Lynn Harrelson to discuss eHOP workshop for people with PD.
5:30pm: Young Movers & Shakers Support Group (men only) (meets in Crescent Hill). If you are a man in your 30s, 40s or 50s and have PD, you're welcome to join this group! Please call group host Christopher Miller at 502.415.4747 or email him for directions and more info. Everyone brings something to eat and share with the group.
7pm: "Even Bigger!" LSVT Big Practice Group(Masonic Homes of Louisville). This group meets weekly under the direction of trained LSVT Big therapists fro m Frazier Rehab to practice BIG exercises as a community. Participants must have completed at least 8 sessions of LSVT Big therapy and pre-register. Our special thanks to Masonic Homes of Louisville for offering space for this group! Today's leaders: Krista and Angela. We have a couple of spaces left in this group; please call PSCKY as soon as possible to re gister at 502.426.0888. Jinn will be attending today's launch of this program.
THURSDAY, APRIL 8th
8:45pm: Adina conducting presentation about and screening for PD at Neighborhood House.
9am: "MOVE IT OR LOSE IT!" Exercise Group (Norton Audubon Hospital, Joint Care Gym, 6th floor). Weekly mobility and movement (dance, yoga & Pilates) group led by certified instructor Amy Robinson and medically supervised by Zorre' Kimura. To register, email support@pscky.org or call 426-0888. You may join in at any time, but pre-registration is requested. There is no cost & special parking has been arranged.
11:30am: "LET'S DANCE!" Exercise Group (Dance Louisville; 8023 Catherine Ln, 40242). Weekly dance therapy support group led by students of Bellarmine's Physical Therapy department. This group is full.
6:30pm: Shelbyville "Moving On" Exercise Group (Family Activities Center at Clear Creek Parks (717 Burks Branch Rd)). There is no cost for this group. For more information: call Dyna at 502.377.7562 or e-mail her at dynazehn@myway.com
FRIDAY, APRIL 9th
9:15am: Sit, Stroll or Stride Walking & Hiking Club (Anchorage Trail; 1544-1598 Evergreen Rd, Anchorage, KY
40223) Meet at 9:15am. Walk at 9:30am. Meet at parking
lot across from entrance to trail. Level: Sit or Stroll. Bathrooms Available? No. Benches Available? Yes. Jinn will be attending the launch of the Friday walking group.
Noon:
Deadline for next week's e-newsletter. If you have a question,
article
or musing you'd like to share, it's more than welcome! Please email to info@pscky.org. Thanks!
SATURDAY, APRIL 10th
No events scheduled.Sunday, April 11: Sit, Stroll or Stride Walking & Hiking Club ( Iroquois Park, 5216 New Cut Rd., 40214 (Taylor Boulevard and Southern Parkway)). Meet
at 8:15am. Walk at 8:30am. Meet in front of the Iroquois
Amphitheater. Level: Sit,
Stroll or Stride. Bathrooms
Available? Yes. Benches
Available? Yes Jinn will be attending the launch of the Sunday walking group. |
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Katherine Autin, Director of Support Services
Adina Cook, Director of Outreach & Training
Jinn Fuller Renfro, Executive Director |
Proud Sponsors and Partners of PSCKY 2010 Programs & Services:
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