PSCKY logo smallParkinson Support Center of Kentuckiana Newsletter
November 30-December 6
The mission of the Parkinson Support Center of Kentuckiana is to provide support services that improve the quality of life for the Parkinson's community, to promote public awareness; to contribute to the local and national efforts to raise funds for support, and to accelerate the research for a cure.
PSCKY
 
Executive Director: Jinn Fuller Renfro (jinn@pscky.org)
 
Director of Support Services: Katherine Autin (support@pscky.org)
 
Call us!502.426.0888
 
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Dear Friends:

Can you believe it's December?!? Wow! The staff at PSCKY is back after a restful week away, and we're ready for the new year, which will be here before you know it! We want to remind you to send in your RSVPs for the Holiday Party at the Peterson-Dumesnil House (the party is Sunday, December 13th from 12:30-3:30pm... drop in at any time and leave when you're ready). We need those RSVPs by this Friday, December 4th, please! If you didn't get your invitation, let us know right away, and we'll pop one in the mail!

Our thoughts are with the family of Suzanne George, who passed away on November 21st. We appreciate her thoughtfulness in asking that memorial donations be given to support the work of PSCKY.

If you do not want to receive this weekly newsletter, please unsubscribe using the links below. If you have news, ideas or suggestions, please email us!
 
CHAIR YOGA CLASSES OFFERED IN DECEMBER
Chair YogaOur December patient newsletter did not include this news flash: we will be offering three sessions of Chair Yoga in December. All people with Parkinson's and their loved ones are welcome to attend. A donation of $10 for the month is suggested. Classes are held on Tuesdays at noon, and are led by Kathleen Geile of Yoga at Crescent Hill (housed at Crescent Hill UMC (201 S Peterson Ave, 40206 and offering convenient access from the expressway and off-street parking). To register or for more information, please contact us.
 
NEW IN OUR LENDING LIBRARY
Selfish PiggieWe're fairly sure this book will fly off our lending library shelves (if we're right about that, we may order a couple of additional copies!). You have NEVER read a guide to caring like this one: "The Selfish Pig's Guide to Caring: how to cope with the emotional and practical aspects of caring for someone." From the cover:

"Over six million people in the UK, often unnoticed by the rest of us, provide unpaid care for disabled or elderly relatives, friends or neighbors. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and emotional health. Oddly, though carers by definition are anything but selfish pigs, they are liable to feelings of guilt...So Hugh Marriott has written this book for them...His aim is to bring into the open everything he wishes he'd been told when he first became a carer. And he does. The book airs such topics as sex, thoughts of murder, and dealing with the responses of friends and officials who fail to understand."

To borrow this book, drop us an e-mail (please let us know the title of the book you wish to borrow in your e-mail). You might also think about getting a copy for your favorite "carer" for a holiday gift; this really is a useful and FUNNY book.
 
DISCOVERY OF PROTEIN OFFERS HOPE FOR A CURE
Researchers at Iowa State University have found an essential key to possibly cure Parkinson's disease and are looking for others.

Anumantha Kanthasamy, a distinguished professor of biomedical sciences and W. Eugene and Linda R. Lloyd Endowed Chair in Neurotoxicology at the ISU College of Veterinary Medicine, has been working to understand the complex mechanisms of the disease for more than a decade and thinks he has found hope for the cure.
Parkinson's disease sufferers lack a sufficient amount of a brain chemical called dopamine.

Kanthasamy's research shows that there is specific protein that is naturally present in human brains that -- for no known reason -- kills the brain cells that make dopamine. Read more here.

And don't forget: you can play a crucial role in finding new therapies and a cure for Parkinson's disease! Be sure to bookmark and regularly check the clinical trials posted on PDTrials.com. Our thoughts are with person with Parkinson's Karen deGraaf this week as she heads to St. Louis to participate in a clinical trial. Way to go, Karen!
 
ARE YOU ARTISTIC? DESIGN THE 2010 PD T-SHIRT!
Each year, April is designated as Parkinson's Awareness month.  How can you raise awareness?  How can you enlist others in the fight for a cure? Enter YOUR design in the Parkinson's Disease Foundation (PDF) Parkinson's Awareness Month T-Shirt Contest! You are invited to submit a design, including PDF's trademark tulip and yellow and green, that you think will help the Parkinson's community to spread the word about the cause next April.  The winner's design will be offered exclusively on PDF's online store and distributed at PDF's booth at the Parkinson's Unity Walk in New York City in April 2010.
CLOSE TO HOME: RESOURCES & OPPORTUNITIES
Have difficulty navigating the system? The application process for disability benefits, health care, accessible housing, attendant care, housekeeping assistance, various therapies (speech, occupational, physical and counseling) and other services can be extremely daunting.Check out these great tips from the Center for Accessible Living.
ON THE WORLD WIDE WEB
FacebookPSCKY is now on Facebook! Please "become a fan." Thanks to everyone who's joined up so far!

In response to our request for "alternative" therapies that folks have tried, one reader sent us this link to a chapter of the "The Green Pharmacy Herbal Handbook." It suggests several dietary supplements, including fava beans and velvet beans. Remember, always consult your doctor before trying any therapy or making changes to your diet!

The Lexington Herald Leader recently ran a front-page story that named 10 Kentucky nursing homes as among the worst in the nation. We have resources in the office about how to choose a nursing home/assisted living center. Please contact us if you'd like more information. We strongly recommend the excellent tool "Road to Recovery" for those living in the Louisville area.

Lower light levels got you down? Stressed out by the holidays? Feeling a bit blue? One of the neatest things we saw on the 'net last week was the "Gratitude Stream" from Live Your Life Well. You can view it (and add to it!) here on this page, which has some excellent tips on "Ways to Stay Positive."
dontforget
DON'T FORGET!

MONDAY, NOVEMBER 30th

6:00pm: Shelbyville "Moving On" Exercise Group (Jewish Hospital Shelbyville Community Room (rear of hospital)).

TUESDAY, DECEMBER 1st

Noon; Chair Yoga for people with Parkinson's & care partners (Yoga at Crescent Hill: 201 S Peterson Ave, lower level). To register, call us at 426-0888.

7:00pm: Floyd Memorial Hospital Support Group (Paris Health Education Center, 1st floor across from cafeteria); 812-941-0237.

THURSDAY, DECEMBER 3rd

6:30pm: Shelbyville Support Group Holiday Party
(Catering by Kate; 934 Main St in Shelbyville). The Shelbyville Support Group will celebrate the season with a Holiday Party from 6:30-8:30pm. Come for fellowship and dinner. All patients, care partners and family members invited. Have Parkinson's, live in or near Shelbyville and *not* a part of the support group but curious? Come on out! RSVPs required, please. Call Kim at 502.633.7459.

SATURDAY, DECEMBER 5th

11:00am: Deep Brain Stimulation Support Group (Milestone Wellness Center at Baptist East). The quarterly meeting of this group for folks who've had or are considering DBS will be a holiday party. As lunch is provided, please RSVP to Lynn Hundley at 502.896.7455 or lynn.hundley@bhsi.com.

Visit our on-line calendar to see this month's events!
We have just started a new calendar (which will replace our present calendar when our new web-site is released). You can take a peek! If you use Google calendar, this will allow you to see PSCKY's events along with your own.
All the best,
 


Jinn Fuller Renfro, Executive Director
Katherine Autin, Director of Support Services