PSCKY logo smallParkinson Support Center of Kentuckiana Newsletter
October 19-25
The mission of the Parkinson Support Center of Kentuckiana is to provide support services that improve the quality of life for the Parkinson's community, to promote public awareness; to contribute to the local and national efforts to raise funds for support, and to accelerate the research for a cure.
PSCKY
 
Executive Director: Jinn Fuller Renfro (jinn@pscky.org)
 
Director of Support Services: Katherine Autin (support@pscky.org)
 
Call us!502.426.0888
 
Join Our Mailing List
Dear Friends:

We appreciate all the calls, notes and visits we've received lately! Our slogan for this coming year is "No one has to face Parkinson's alone", and we genuinely treasure each chance you give us to fulfill that mission. Thank you!

We are still taking stories of how PSCKY has helped you in your journey with Parkinson's. We've received several moving notes and e-mails to feature on our new website (which you can look to see around the holidays this year). We'd be honored to include your story. It doesn't have to be long, or fancy. We just want to be able to share words of hope in the community. You can e-mail the story, or call and share it (and we'll do the typing!).

If you do not want to receive this weekly newsletter, please unsubscribe using the links below. If you have news, ideas or suggestions, please email us!

AGENT ORANGE & PARKINSON'S DISEASE
Agent OrangeBreaking news last week from the Veteran's Administration as reported in the New York Times.

Approximately 200,000 Vietnam veterans may soon be able to receive disability benefits for illnesses stemming from their exposure 40 years ago to Agent Orange. The Department of Veterans Affairs plans to propose this week new rules that add Parkinson's disease, ischemic heart disease and hairy-cell leukemia to the growing list of medical problems presumptively caused by the widely-used defoliant on the jungles of Vietnam. The VA already recognizes conditions such as Hodgkin's disease, prostate cancer and Type 2 diabetes as being caused by Agent Orange. The new rules will apply to any of the 2.1 million veterans who spent time in Vietnam during the war.
COOL PLACES ON THE WEB
FacebookWe are pleased to announce that PSCKY is now on Facebook! Please "become a fan" and post your news items, stories, updates and pictures, or take advantage of the Discussion Area to start conversations with other local folks who are living with Parkinson's. We'll be posting news and pictures as well, so be sure to link up to us!

Can't make it to the Young Onset Parkinson Conference this week in Dallas, Texas? (Don't worry, neither could we!) No reason to miss the latest news on medications, medicare and disability, LSVT LOUD, and cognitive issues in PD. You can see it free through the LIVE WEBCAST.

Amy Baach sent us this link to "Movers & Shakers: Parkinson's Patients going Philanthropic." This group is focused on getting people with Parkinson's united to make a difference in a non-Parkinson's related project: building schools (especially for girls) in the poorest sections of Northern Pakistan and Afghanistan.

DANGER TO PWP DRIVING AT DUSK AND IN FOG
A recent study shows that folks with mild to moderate PD may be at higher risk of auto accidents on foggy days and other times of low visibility. "Our results suggest that a large proportion of drivers with Parkinson's disease may be at risk for unsafe driving in low visibility situations such as fog or twilight," says study author Dr. Ergun Uc.

Don't forget: we have a self-assessment tool for drivers available from our lending library. While it does not take the place of a driving assessment from a certified professional, this DVD, "Roadwise Review", allows you to monitor your driving health in privacy, take control of your personal safety, and help identify any issues related to visual, mental and physical responses behind the wheel. Be safe, and check it out!
AREA RESOURCES
Our friends at Jewish Family & Career Services are hosting a Workshop on Movement Disorders with Dr. Walter Olson next Wednesday, October 21st at 1pm. Care partners and people with Parkinson's are welcome. Dr. Olson will hold an interactive discussion about various types of movement disorders, as well as many ways to cope. For more information, please contact Marilyn Bornstein at 502-452-6341 ext. 278.

The good folks at Ratterman Funeral Home are once again offering a Lunch & Learn on Tuesday, October 20th at 11am at John E's restaurant in Buechel. Attorney Raymond Naber can help answer questions such as these:
  • How does Probate really work?
  • How often do I need to update my Living Will?
  • Why are there so many types of Wills?
  • What is the best type of Will for my family?
  • What are the benefits of funeral planning concerning my estate?
Please RSVP today (Monday, October 19th) to 459-3800. Please choose one luncheon for each attendee: charbroiled chicken, fried or baked fish, or peachy romaine salad.

FREE Caregiver University On-Line: GuardiaCare Services, Inc., a local agency for assisting seniors, is offering free Caregiver University On-Line access to any person acting as a caregiver to a senior age 60 or older, who lives in KIPDA's seven-county services region.  This is a special program funded in part by KIPDA, with GuardiaCare and Spalding University's Auerbach School of Occupational Therapy teaming up to offer caregivers a flexible on-line educational program.  There are a number of training modules, such as legal issues, safety assessments, preparing for emergencies, medication safety, and navigating the maze of health care, including understanding Medicare.  This is a great opportunity to learn about some of the complicated issues of caregiving for seniors on your own schedule at no cost.  Interested?  To register, call Sandy Roberts at GuardiaCare, 585-9949.
DON'T FORGET!

MONDAY, OCTOBER 19th

6:00pm: Shelbyville "Moving On" Exercise Group (Jewish Hospital Shelbyville Community Room (rear of hospital)).

TUESDAY, OCTOBER 20th

Noon: Louisville "Chair Yoga" at Yoga at Crescent Hill for people with Parkinson's & care partners too! (201 S Peterson Ave; please call Katherine at 426-0888 to register).

1:30pm: Our Mother of Sorrows Parkinson Support Group (760 Eastern Parkway; meets in basement of school building). Call Frank Eimer for more info: 458-6742.

6:30pm: Shelbyville Parkinson Support Group (Jewish Hospital Shelbyville Community Room; Hospital Drive off HWY 60). This month's topic: Medicines. Special guest speaker: Dr. John Slevin.

WEDNESDAY, OCTOBER 21st

1pm: Bardstown Parkinson Support Group (Nelson County Public Library Community Room; 201 Cathedral Manor). For more information: Jane Swarts at 502-350-4458.

4:30pm: Scott County, Indiana Parkinson Support Group (Scott Memorial Hospital, Conference Rm A; 1471 N Gardner Ave). For more info: 812-416-1054. This month's topic: interactions of medicines.

SATURDAY, OCTOBER 24th

Noon: Louisville "Chair Yoga" at Yoga at Crescent Hill for people with Parkinson's & care partners too! (201 S Peterson Ave; please call Katherine at 426-0888 to register).

All the best,
 


Jinn Fuller Renfro, Executive Director
Katherine Autin, Director of Support Services