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In This Issue
Cure Crew
Clinical Trial
Raynaud's Phenomenon
Research Project Highlight

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Insights eNewsletter
Dear ,

The year 2010 was filled with many accomplishments for the SRF, from launching our new website and Cure Crew volunteer program, to funding more than $1,000,000 in research, including a variety of new projects. We thank you for your partnership and for helping to make it a successful year.

The New Year is a time for many to reflect on the year past and look forward to what lies ahead. It is a time to get energized and inspired! At the SRF, we thought a great way to start the year would be to share our stories of inspiration. Let's continue our work together in finding a cure, raising awareness and encouraging others to get inspired and involved. Log in to your Facebook account and then click this link to share YOUR story on our Facebook page. In the meantime, please allow me to share mine...

Cure Crew News 
Cure Crew Logo Our new Cure Crew volunteer program is growing! We're looking for people just like you to help raise funds and awareness for scleroderma across the country. Don't forget, as we grow the program, the first 50 Cure Crew Members will be entered into a drawing to win a $300 American Express gift card. Sign up today!


The Kosmach siblings with other family members at their 16th annual Strike Out Scleroderma bowling event in Carol Stream, IL. 

Whether you plan to host a special fundraising activity like a bike-a-thon, dinner party, etc. or just send a simple email to friends and family sharing about scleroderma and asking for their support via your personal Cure Crew page on our website, we could use a hand. It's fun, easy and a great way to connect with others.


Join Cure Crew today. A one-time $25 membership fee includes an SRF Cure Crew T-shirt, a welcome kit filled with creative ideas and tips and access to SRF staff as well as resources that will guide you to success as you help us to increase scleroderma awareness while raising the funds necessary to find a cure.

To learn more about Cure Crew and how you can help the Team to make a difference click here.
Clinical Trial

Clinical Trial MicroscopeDon't Miss The Opportunity to Participate in the Scleroderma: Cyclophosphamide Or Transplantation (SCOT) Trial

The National Institute of Allergy and Infectious Diseases (NIAID) is seeking people ages 18 to 69 to volunteer for a treatment study designed for patients with severe forms of scleroderma. The study is being conducted at leading medical centers across North America. Visit the SCOT study Web site to learn more.  Enrollment is scheduled to close in March, 2011 and initial consent will need to be completed by this time. You can also visit ClinicalTrials.gov to learn more about the SCOT trial and other active clinical trials.


Visit us online to learn more about the clinical trial process.

Raynaud's Phenomenon in Winter
Today Show

Raynaud's phenomenon is scleroderma's most prevalent symptom. It can create challenges for many patients, especially when the weather turns cold. Watch Drs. Thomas Reifsnyder and SRF-funded investigator Dr. Fred Wigley, Director of the Johns Hopkins Scleroderma Center, explain Raynaud's phenomenon and how to better manage symptoms.

For a more detailed description of scleroderma-related Raynaud's phenomenon visit the SRF website and for a more in-depth lecture on Raynaud's given by Dr. Fred Wigley at the 2010 FESCA conference click here.

January 2011 Research Project Highlight


Andrew M. Tager, MD is a Principal Investigator at the Massachusetts General Hospital Center for Immunology and Inflammatory Diseases and Assistant Professor of Medicine, Harvard Medical School. Dr. Tager and his project, the Role of the LPA−LPA1 Pathway in Scleroderma Fibrogenesis, is one of four new projects added to the SRF's research program this year.

 His project focuses on the development of fibrosis, or scarring, in scleroderma, which can contribute to the pain and mortality associated with this disease. Read more...

The Scleroderma Research Foundation is committed to funding the most promising, highest quality research aimed at improving the lives of those living with scleorderma.  Thank you for making our progress possible.


Amy Hewitt
Executive Director
Scleroderma Research Foundation
Make a Donation 1-800-441-CURE (2873)