Dear MBCN Members,
Thank you for your warm welcome in these last few weeks. I could not be more pleased to volunteer as the new president of MBCN. I want to thank Ellen Moskowitz for all of her work and dedication over the last 5 years to make MBCN what is it today. She is a role model and an inspiration. She, Nina and Suzanne have worked tirelessly, and I hope I can continue to do all that Ellen has already put in place. Thank you, Ellen!
While I have not had breast cancer, I have seen first-hand the devastation of breast cancer having lost many close friends to the disease. And, having been a care giver to one of my best friends who sadly passed way last February, I have become more determined to help change the way the medical community, the public, and other breast cancer organizations view metastatic breast cancer. It is not enough to address metastatic breast cancer, but we need to empower researchers to focus not just on prevention but on stopping metastasis in its tracks!
I am looking forward to contributing the experience I've gained working in other voluntary health organizations and I hope to open a dialogue so that MBCN can provide you with more of what you need and enhance what we are already doing. We hope this first issue of Voices will be the beginning of this dialogue. We want to hear from you and we need your help! We have lots of opportunities for volunteers, as you can see below.
MBCN is here for all of you, and we look forward to hearing from you and providing an even larger voice to our still under-represented population.
My warmest regards,
Michele Przypyszny
MBCN Volunteer President
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| Calling all volunteers | |
Volunteer with us! There are lots of opportunities. Contact us today!
- Send us your suggestions
- Join us at upcoming conferences
- Host a program in your community on metastatic breast cancer (we can help you)
- Host a fundraiser to support the work of MBCN
- Become an advocate by joining our letter writing committee
- Bring brochures and metastatic information kits to your local hospital and oncologist's office
- Send us your picture, so we can include you on our Home Page as a member of the MBCN community.
- Share your inspirational story with us (Our story editor will be happy to assist you).
- Send us your support group info to be listed in the Support section of the website.
- Let us know if you have any contacts in the printing/display industry, as we are looking to update our conference booth setup--signs, displays, table skirt.
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| Upcoming Events |
- April 12 12:00-1:15 (EDT) Teleconference on TNBC: call in to hear Lisa A. Carey, MD talk about medical updates and treatment news specific to triple negative. Note: teleconference is directed to both primary and metastatic populations. Registration and More info click here.
- April 30 - May 1 in Philadelphia: Living Beyond Breast Cancer (LBBC) Annual Conference for Women Living with Metastatic Breast Cancer brings you the most up-to-date information, support and practical resources to help you live well with stage IV breast cancer. Travel grants are available if you need them. If you go, be sure to stop by the MBCN table and say hello to Deb Tincher (and wear your MBCN tee shirt!)
For more information on registering, click here.
- April 30 - May 3 in Washington, DC: ANNUAL ADVOCACY TRAINING CONFERENCE Sponsored by the National Breast Cancer Coalition
Three days of advocacy training, followed by the annual NBCC Lobby Day on Capitol Hill. MBCN's Shirley Mertz will moderate the session on metastatic breast cancer.
Click here for information.
- May 20 registration deadline for July 17 - 22, 2011,
NBCC Project LEAD Institute in San Diego
An intensive, five-day science course for breast cancer advocates.
Registration and More Info click here
See more local and national events |
| Recommended Reading | |
We know it takes more than a fighting spirit to conquer cancer. If a positive attitude was all that was required, 40,000 people a year wouldn't be dying of breast cancer! Read this NYTimes opinion piece "A Fighting Spirit..."
"Medicine is storytelling," writes acclaimed cancer specialist and now bestselling medical historian Dr. Siddhartha Mukherjee, author of The Emperor of All Maladies: A Biography of Cancer.
This fascinating, very readable book on the history of cancer
includes many sections on breast cancer. Particularly interesting were the the history of the radical mastectomy, the politics of the 1970 War on Cancer, the founding of the American Cancer Society, the protracted story of the development of Herceptin, and so much more.
Read this interview with Dr. Mukherjee
Read more recommended reading on our webpage.
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MBCN is a national, independent, patient-led, nonprofit advocacy group dedicated to the unique concerns of the women and men living with metastatic breast cancer. We strive to help those living with stage IV breast cancer be their own best advocate through providing education and information on treatments and coping with the disease.
© 2011 Metastatic Breast Cancer Network. All rights reserved.
MBCN is a 501(C)(3) not-for-profit organization. |
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| A Pink Ribbon Race, Years Long |
 | | Suzanne Hebert |
MBCN's Vice President Suzanne Hebert was interviewed by the New York Times on living with metastatic breast cancer and the reporter got it right!
Read more
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| Featured Inspirational story | |
Noreen Fraser, a television producer and mother of two, was diagnosed with stage IV in 2003 and helped launch Stand Up To Cancer.
Read her inspiring story
Send us YOUR story!
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| Quote of the month: | |
Only 2% of the annual cancer fund is devoted to any stage IV cancer, despite the fact that stage IV causes 90% of cancer deaths.
- CJ (Dian)
Corneliussen-James
Read more
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