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NACD Newsletter - Volume 5, Issue 2 - February 2012
For our February newsletter we wanted to share with you some glimpses into the lives of three NACD families. These three stories illustrate the great results of hard-working parents and motivated kids. Whether it is playing Debussy, owning a business, or learning to play soccer, "success" and "potential" can only be defined by you and your child. We hope you find encouragement and renewed motivation in these stories as you keep striving towards the goal of helping yourself and your child realize your own personal potential. In this issue:- NACD Families 1: A New View of Children within the Autism Spectrum - Ross
- NACD Families 2: Shaurya and Sasha
- NACD Families 3: Finally - I am a Soccer Mom!
- Upcoming Evaluation Dates
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A New View of Children Within the Autism Spectrum
by Bob Doman
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 | Playing Debussy (after only 18 months of piano lessons) |
The following story about Ross exemplifies the potential strengths of children who have been labeled as being within the spectrum and also the potential danger of labeling and classifying individuals.
I proudly identify many of my good friends as "nerds," a classification that I have often wished to be able to share, regardless of the fact that if they were children today they would have been labeled as being with the Autism Spectrum. I, however, have had to settle for the strengths that I have relative to more plebeian labels such as Dyslexic or Learning Disabled. I haven't been able to reach the heights of many of the "nerds" because my sensory functions are nothing extraordinary nor am I blessed with exceptional visualization skills, as are so many of the individuals labeled as being within the "spectrum." So I have had to take advantage of some of my strengths, such as those that permit me to view issues with a gestalt and creative perspective.
I have often professed that our strength as a species lies in our uniqueness as individuals--differences that need to be identified, acknowledged, sometimes controlled or treated, but also developed and often celebrated. For those within the "spectrum," most of the world does not realize that often the debilitating sensory addictions and excessive visualization issues that can produce such devastating developmental issues, when brought under control, can and are, in fact, gifts and strengths.
It is a tragedy that so many unique and exceptional individuals are labeled and never really given an opportunity. Yet if they are perceived as truly unique individuals with challenges and gifts, not labels, and given the opportunity to bring their exceptionalities under control and to learn to use their strengths and gifts, they can in fact be incredible contributors to our planet and live happy, successful, productive lives.
Vive la difference!
Ross
by Lyn Waldeck
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Playing Chopin
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As an Evaluator with NACD, there are certain days that just stand out as being excellent. Today was one of those for me. NACD has been working with the Williams family for about 10 years now. As Ross was originally diagnosed in the Autistic Spectrum, consistency on program has paid off for this hard-working and diligent family. One step at a time and over several years, he continues to step away from the limitations of his diagnosis and leave symptom by symptom behind. Today Ross is a focused, determined, well-rounded teenager. He enjoys basketball, makes good grades in regular classes at a high-performing school in Houston, Texas and has wonderful social skills. About 18 months ago, he showed an interest in playing the piano and his parents started him in lessons. At his recent evaluation he brought his portable keyboard to show his evaluator what he has been working on. We share this with you now as an encouragement to never give up in helping your children to achieve their full potential as they explore life, seeking their passions and enriching their future.
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Shaurya and Sasha
by Prachi Sinha,
NACD Neurodevelopmentalist in India |
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Shaurya and Sasha
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Shaurya is a young entrepreneur with Down syndrome, and he has made me a very proud evaluator. Shaurya, along with another young man, Sashank (also with Down syndrome), runs a small business called Sasha. Sasha began its journey from Thailand about 2 years back when the moms of the two boys got together and started exploring vocational options related to their interests. It is now an international organization with Shaurya working from India and Sashank in Thailand. Shaurya also does pottery making and paintings.
Recently I had the opportunity to see him in action when we went for a vocational fair here in New Delhi. This was his first display of Sasha products and his individual works in India. Shaurya had put cards, bookmarks, wrapping paper, and wine bags on display and sale. There were Christmas decorations, ceramic pottery pieces and a painting for sale as well, which were his individual works.
I had before seen pictures of the things he was creating which I was really proud of; but I had never seen him being a sales man and a PR agent for his company. That day I was just blown over. Various media companies were there to cover the event. They chose a few stalls to feature and our dear Shaurya had been successful in attracting everybody to his stall. He posed and posed for the cameras and showed everyone his items. He even did a live radio event that day.
He went around exploring other stalls and inviting people to his, even giving directions. I saw a very involved, independent, responsible and proud young man. He was impressive and for sure left an impression on so many people that day. His work isn't simple... it involves expertise and hard work from both his mom and him. His ceramic pieces have his artistic interpretation coursing through them. He is not mechanically churning out items as he is taught like we often see. He is a proud artist and I am proud to be his evaluator. |
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Finally - I am a Soccer Mom!
by Tamara Grosz, Ph.D., Mama Time - Southeast |
 As a mother of a child with special needs I have sat on the sidelines for years excitedly cheering for children of close friends who danced in recitals, played baseball, basketball, football and of course--soccer! It is a bittersweet feeling, participating in these events, you are so proud of your friend's child but at the same time it may be a continuous reminder of what your own child is not able to do. It seemed that all of the mothers around me had a busy schedule of practices and games almost every night. While I was thankful that our family was not caught up in that whirlwind schedule, there was of course a part of me that mourned for the fact that our son could not participate in these "normal" milestones of childhood.
When you are in the midst of trying to get your child well you have to work to maintain hope every day-sometimes every minute. Doubt can creep in and you wonder if your child will ever be able to talk, to catch a ball, learn to read and the list goes on and on. I learned from Geoffrey's neurodevelopmental specialist, Bob Doman founder of the National Association for Child Development, to focus on Geoffrey's potential rather than a limiting label. During our quarterly meetings with Bob, he would remind me that Geoffrey had unlimited potential and that if we provided him with the right interventions with the optimal level of frequency and intensity then he would improve!
I also have learned that I had to take risks and allow Geoffrey a chance to succeed. Like all children, sometimes he would succeed and sometimes he would not. Most importantly, much of the time he could succeed with time and practice! When a friend told us about a special needs soccer league and invited him to participate I was overwhelmed with anxiety. Could he do it? Would it be too overwhelming for him? Would the other kids be mean to him? What if it was a total disaster? Should I put him through this?
The risk was worth it! Geoffrey actually asks to go to soccer and is so excited about going every week. Yes, after eight weeks he still beeps Coach Keith's nose during practice and hugs the pretty volunteer coach assistants when he is supposed to be kicking the ball but he loves soccer and is improving. He is happy to see the other team members and the older boys are actually very helpful with the younger ones. So, as I watch my beautiful son kicking the ball on the field, I, at long, last give a cheer for him! I then realize that I am finally now a SOCCER MOM and it feels great!
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| UPCOMING EVENTS & EVALUATIONS |
UPCOMING EVALUATIONS
February 2012
St. Louis
Bay Area
Atlanta
Charlottesville
Los Angeles
Philadelphia
Ogden
Dallas
India
March 2012
Los Angeles
Philadelphia
St. George
Orlando
Chicago
Minneapolis
Dallas
Ogden
India
April 2012
Phoenix Ogden Philadelphia Seattle Cincinnati Dallas India
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NACD - The National Association for Child Development 549 25th Street - Ogden, UT 84401 801-621-8606
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