The ALS Association encourages people with ALS who are enrolled in Medicare to take advantage of the annual Open Enrollment period to make sure they have the best coverage available to meet their prescription drug and health care needs in 2010. The open enrollment period takes place November 15 to December 31, 2009. The ALS Association once again is pleased to provide a Guide to assist people with ALS and their families as they review options for 2010. The Guide is available by clicking here. During the open enrollment period, those currently enrolled in a Medicare prescription drug plan have an opportunity to switch plans, or they can remain in their current plan. Those who did not enroll in the benefit when they first became eligible for Medicare also may enroll at this time, although these individuals may be subject to a late enrollment penalty. It is important that those who have enrolled in the Medicare drug benefit take the time to review their prescription drug plan options, even if they are satisfied with their current plan. Many plans have made important changes to their benefits for the upcoming year. Therefore, a person's current plan may or may not be the best plan for them. |
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Greetings!
We have big news! The ALS Association - Rocky Mountain Chapter offices have moved! In an effort to keep costs low & continue to provide quality services, we have moved our office location to Westminster. Our new space is much more accessible with easier parking. We hope you will stop in and say hello!
Our new address:
7403 Church Ranch Blvd.
Suite 109
Westminster, CO 80021
During the holiday season if you are traveling or have other special needs, please don't hesitate to call us. We can arrange for loan equipment in other states or give you tips for easier traveling.
As always, we hope you are doing well and we wish you & your family peace during the holiday season. Stay warm!
Sincerely,
Leslie & Suzanne
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Featured Article The holidays are usually a bit tiring and challenging -- and sometimes even emotionally exhausting -- for all of us. But for people with ALS and their families, the combination of coping with the disease on a daily basis and managing the demands of the holidays can be especially tough and frustrating. Experts in helping people with chronic, serious diseases cope offer wide-ranging suggestions. Managing Expectations The holidays carry many levels of expectations, from friends, family, the workplace, and ourselves, and many are built on shared experiences and traditions established over the years. The problem is, when circumstances change, it's tough to change our expectations. So, a parent with ALS who has for 15 years put up the neighborhood's most stellar display of lights may feel like he or she is letting everyone down since climbing a ladder is no longer an option. Or, a favorite aunt may feel extremely surprised and disappointed that a person with ALS decides not to fly to join the extended family on Christmas Eve. Perhaps the process of getting, addressing and sending holiday cards seems daunting. Holidays can act like a lightening rod that highlights all the physical and social concerns around ALS. Memories or unresolved grief about previous losses -- or the disease itself -- can trigger sadness and depression. Even without those complexities, just the normal demands of the season - socializing, eating, shopping, celebrating - can be overwhelming for people with ALS and their families. Experts suggest people with ALS think through how they can best manage their own expectations, and those of their friends and families. Sometimes it means telling a hostess that you cannot promise to be able to make her party, but would like the freedom to call 24 hours beforehand and let her know if you are able to make it. It could mean negotiating with friends and family a new way to exchange presents, perhaps picking names out of a hat so no one buys more than a single gift, making the shopping process far more manageable for all. It may mean sending email or phone greetings rather than individual, hand-addressed cards. Simplifying is sometimes easier than it would seem, and people with ALS should be reassured that more and more families - even those without ALS - are finding ways to make the holidays less stressful and more manageable. Planning, Planning, Planning Putting some time and effort into carefully planning key aspects of the holiday can pay off. Experts say families should feel comfortable inviting a crowd into their home, if they want to, as long as they first master the art of delegation. Make it pot luck, ask someone to come early to set the table, ask another to stay late to help with cleaning up. If people are asked for their participation in advance, they probably will be pleased to help. When it comes to shopping, planning also pays big dividends. Make a list and decide what can be delegated, what can be done online, and what needs a personal touch. The earlier the process is begun the easier it will be; crowds, parking problems and lines are hard to tolerate for everyone, but especially for people with ALS and their families. If it's already too late to start early, avoid the weekends and opt for the dinner hour or evenings, since stores and malls are typically less busy then. Crystallizing What is Most Important You cannot do it all. So it's helpful to do some soul searching and identify what you truly like most about the holidays and be sure to include those elements in your plans. For example, some people have always loved driving around the neighborhood looking at holiday lights and decorations. Some enjoy the local parade. Others appreciate going to see the "Nutcracker" or hearing Christmas music at the symphony hall. If there are special foods you like, certain decorations you treasure (big, lighted trees, or snow globes, or a much-loved Menorah), or favorite music, make sure you've built those things into your holiday celebration somehow. Finding Reasonable (But Good) Substitutions Depending on your particular situation, it may be that some of your favorite holiday activities are feasible. But it is possible to find some reasonable substitutions that may kindle a similar joy to what you have experienced in the past. For example, if you loved to ski, you may find a sleigh ride in the moonlit forest fun. If you like going to the Rose Parade or going to the football game -- but you feel it may be a little overwhelming to manage this year -- you could have some friends over to watch the parade or the game on TV. If you always liked to read a Christmas story to the family by the fire, and you are having trouble talking, perhaps you could all gather around and you could listen to the story on the stereo or someone else could do the reading this year. It won't be the same. It will be different. But it still might be fun and memorable. Don't just ignore things you've loved to do. Try to find a way to get at least the flavor of the experience, if you can. Building in R & R Amidst all the activity, be sure to build in time for rest and relaxation. Take a nap, get some fresh air, watch TV, do a puzzle...whatever works. If you don't plan for this important time, it may escape you, and it is essential to ensuring you'll be able to get the most out of the holidays. By Barbara Bronson Gray, RN, MN
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Research Updates
Dr. Carmel Armon, an ALS researcher and professor at Tufts University School of Medicine, has completed an evidence-based study in which he establishes a link between smoking and ALS. Previous studies had only shown that smoking had a probable connection versus being an established risk factor. His findings are the first to show a link between the environment and the occurrence of sporadic ALS. According to Dr. Armon, since researchers have a good understanding of how smoking causes other diseases in the body, the hope is that this link can also help lend insight into the disease processes that initiate ALS. Click Here to Read More |
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Announcements
- The ALS Association - Rocky Mountain Chapter office has moved! Our new address is 7403 Church Ranch Blvd, Unit 109, Westminster, CO 80021
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Equipment Corner
Gait BeltsWhen assisting your loved one with transferring from one position to another (going from the bed to a chair or from a chair to the toilet) safety for both involved is a primary concern. The use of a gait belt can make transferring safer and more comfortable by providing a safe and secure hand hold for the caregiver. Gait belts can be used for all types of transfers as well as when assisting someone with walking. If you would like try a gait belt and learn more about safe transfers, please contact Suzanne. |
Mark Your Calendars!
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