Dear Friends,
March in the Northland brings feelings of spring. Spring, in turn, harbors new growth. Therefore, this is the perfect time for Minding Our Elders to expand it's reach by taking on new consultancies. Watch for even more information from expanded resources as we grow!
Many of you also know that I write a newspaper column, but you don't always have free access to it. So, starting this month, and perhaps continuing beyond, I'm offering you one of the weekly columns, along with the other articles. I hope that you will enjoy the change. Your feedback is always welcome.
Blessings,
Carol
Wife struggles to care for husband with early on-set Alzheimer's
Dear Carol: My husband developed Alzheimer's disease at 46. I've cared for him on my own for three years, while also running the business we started years ago. My husband can't be alone for long, so I frequently have to leave work to check on him. This is affecting my ability to do my work well. I don't feel he gets much mental stimulation. I tried in-home care, but he didn't like what he called the "babysitter." I'm exhausted when I get home from work, since I need to get up very early to take care of his needs, and then at night he needs more care. I love my husband dearly and don't want to feel like I'm giving up on him, but I can't continue this way, either. What are my options? - Emma
Dear Emma: You've obviously reached a point where you and your husband need more help. Understanding that fact and taking action doesn't mean that you are giving up on him. You are just taking the next step in care so he can be safe and possibly have opportunities for social and mental stimulation.
Assisted living may be your best option. One good reason to look at assisted living is the opportunity for socialization, even if most of the residents are older than your husband. If the facility is a larger one, he may find others his age, as well. Either way, he's likely to find that some of the folks are good company regardless of their age.
He'd have reliable meals and activities, so you wouldn't have to tie your work to his many needs. Also, at any time, he could enter the stage where wandering off and getting lost is a danger, and in the right assisted living environment he would be safe from that threat.
Many facilities offer a gym. Most of them now have computers and even Wii game systems where people can bowl and play other competitive games solo or with other residents. Assisted living facilities also generally offer guided trips to malls, museums, concerts and other interesting places.
If your husband lives in a good assisted living center, you will be able to go home from work and regenerate yourself. With that in mind, you can visit your husband and be his companion rather than his constant caregiver. You aren't giving up caregiver status, but you can get help with much of the hands-on care and you won't have to worry about his safety. If he needs medical management from a nursing professional, those services can generally be hired through the facility. It's time, Emma. If you don't take care of yourself, you won't be able to care for your husband. He needs you to stay healthy, so this change is for both of you.
Take care,
Carol
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Hello!
Welcome to Minding Our Elders! Our hope is to break
the isolation that caregivers often feel. We'd also like to share information and ideas that will help and comfort you along your caregiving journey. Thanks for reading.
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Helping children understand a grandparent with dementia
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My sons were young teens at the time my dad underwent brain surgery that backfired, leaving him with dementia - overnight. Dad remained loving, but he did get frustrated and was perpetually confused. To see this caring, intelligent man so markedly and irreparably changed nearly tore out the hearts of adult family members. For the grandchildren, the effect was multiplied by their lack of experience in life's tragedies.
Our family's introduction to dementia was different than the typical case. Most people with dementia will decline slowly, giving loved ones time to adjust. However, no time frame makes accepting dementia easy.
Whether the grandparents live with the family, in their own home or in a nursing home, the grandchildren are bound to be affected by the changes they see. Children often feel guilty for bad things happening in the family, even when there is no logic to their thinking. They will notice your pain and may also feel guilty for that, as well.
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Study shows cancer drug could reverse symptoms of Alzheimer's disease
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A skin cancer drug that has been available for nearly 13 years could be the new Alzheimer's hero. A study using genetically engineered mice showed that bexarotene (Targretin) reversed Alzheimer's symptoms in mice by eliminating brain-damaging proteins.
In the study. which was published online Feb. 9 by Science, researchers from Case Western Reserve University in Cleveland, along with other colleagues, used mice genetically engineered to exhibit the symptoms of Alzheimer's disease. An article reporting on the study in the online version of Scientific American said, "Most notably, the [genetically engineered] mice produce amyloid beta peptides - toxic protein fragments that gum up neurons and lead to cell death - and showed signs of forgetfulness."
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8 tips that can help caregiver burnout
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Most of us live frantic lives. That's the nature of today's world. Add to that the job - for it is a job no matter how lovingly we do it - of caring for one or more elders, and it's no wonder that some of the AgingCare.com forum readers and contributors say they'd just like to chuck it all and run away.
Many of us fit into the sandwich generation where we are caring for children, as well as one or more elders. For several years running, I totaled seven elders, with five needy elders at once, plus two children in my care. Talk about a sandwich - mine was a whopper. And yes, there were times when I wondered how I could keep it up. There were times when I would have loved to have run away, so I can relate to the people who write and say they are burned out, frustrated and would love to "run away from the whole thing."
Obviously, we are responsible people and we are not going to do that. Feelings aren't bad. They are just human emotions. Don't add to your caregiver guilt load by beating yourself up over these thoughts.
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Deciding whether surgery is a good option for an elder can be tricky
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Just last week a reader asked me whether she should try to sway her mother, who had colon cancer, toward surgery. Her mother, 87, was diagnosed with colon cancer and given the choice of surgery and chemotherapy or letting it alone. If she chose not to have surgery, she could still have chemotherapy and radiation, though she was told that treatment wasn't apt to help a great deal. As expected, the daughter was distraught. She was seeking help in determining what her responsibility to her mother is.
The woman mentioned that her mother was mentally sharp, so I told her that, in my opinion, her mother should be given all available information and then left to make her own decision. Barring advanced dementia or other mental issues, I feel elders should have the right to make informed decisions about their own health.
When sharing my personal opinion with this woman, I made it very clear that an informed decision includes information on what anesthetics can do to the aging body. Several studies have been done on the effects of anesthetics on the aging body; however the one I often go back to was done by researcher Roderic Eckenhoff, of the University of Pennsylvania in Philadelphia. Eckenhoff was especially suspicious of one commonly used anesthetic, isoflurane, as a possible culprit in pushing some elders over the edge into dementia.
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Technology post nominated for award: please vote!
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How Do Your Elders View New Technology That Monitors their Home Life has been nominated for an ALTY Blog Award for articles written in 2011 on technology used to help care for our vulnerable loved ones. My article stresses the need for hands-on care no matter how much technology we use to help care for our loved ones. Please vote for your favorite article at Assisted Living Today Best Technology Blogs.
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Alcoholism and elders can be a devastating combination
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I'd like to think things are different now, but I'm not too sure. First, most doctors aren't thinking of a "little old man or little old lady" and alcoholism in the same context. Yet we have many elders who, like Joe, were heavy drinkers their entire lives, or some who just began to drink excessively after retirement or after the death of a spouse. We have many elders addicted to drugs, prescribed and otherwise. And our Vietnam veterans are aging. Many of that generation have alcohol and drug problems that have not been treated. We will see more and more elders who need attention to this medical problem.
Yet, when I am contacted by frantic families about their alcoholic parent or grandparent, they say that, other than a few studies, the only place they find any real honesty about the subject is my writing. While I'm happy to help them with suggestions to contact the Veteran's Administration, if the elder is a veteran, and organizations such as Families Anonymous and Al-Anon, I am always amazed at how clueless the physicians that are dealing with these elders are.
The stories people tell me sound like they come from the dark ages. Doctors seem to be overlooking alcohol addiction as a possible reason for health problems, falls and even dementia. Some who find it are less than compassionate. Judgment clouds their delivery of good medicine.
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About Carol
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Caregiving expert Carol Bradley Bursack, Author,
speaker, consultant and columnist, presents a collection of articles, stories, news and research for you to browse. Please check the blog and Web site links for more information and feel free to email Carol at carol@mindingourelders.com to chat or ask
questions. Minding Our Elders is a registered
trademark.
If your group or organization would like to buy "Minding
Our Elders: Caregivers Share Their Personal Stories"
in bulk, please email carol@mindingourelders.com
for information. Bulk rates are available.
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