May 2011 Support For Caregivers and Seniors
Minding Our Elders®: How much can people with severe dementia understand?
 

Mother's Day and grief

Dear Friends,

As Mother's Day approaches, are you wondering how to celebrate the day with your mom, your mother-in-law or your wife?

Do your worry if she will be strong enough to enjoy a little party? Will she even know who you are? Will this be her last time to celebrate this date set aside for mothers? If your mom is deceased, will you be comforting your dad while he grieves?

Chances are good that Mother's Day will bring some challenges for you, the caregiver. How do you cope when there may be as much grief as there is celebration involved in this special day? How do you cope when this special day brings more sadness than joy?

First, of course, you give yourself permission to feel your own grief. Only then can you effectively comfort others.

If your mom doesn't know you, or if she is in pain and having a hard time caring one way or another if anyone is there, you will likely feel a sense of loss and grief. Acknowledge it. Talk it over with your spouse or another caregiver, if you can. These are generally people who will understand your mixed emotions.

For most of us, going through the motions of celebrating is a necessary part of caregiving. I found that getting corsages for the mothers was nice because then, even if they forgot the day, nursing home staff and visitors would stop to comment on their pretty flowers. That small gesture, along with extended visits and more traditional gifts helped me, even if my gestures didn't register with the recipient.

When we are mothers ourselves, as with fathers on Father's Day in June, we who are parents sometimes forget that the day is for us, as well as for our elders. Try to do what you can for your elderly women this Mother's Day, but don't forget about yourself. Leave a little time for your family to spoil you, too. You deserve a little celebration for yourself.

May is spring, even if you are going through a hard time. Spring is a season of hope. Try to notice the budding trees, the growing gardens, the blue sky. You will only have this day once. Give to others, but give to yourself, too.

Blessings, Carol

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Hello!

Welcome to Minding Our Elders! Our hope is to break the isolation that caregivers often feel. We'd also like to share ideas, comfort and information that will help you along your caregiving journey. Thanks for reading.


How much can people with severe dementia understand?

Even among medical experts, you will find differing opinions on how much someone with advanced dementia of any type understands. Alzheimer's, particularly, can render a person mute and uncommunicative, especially during the last stages of the disease.

Loving family members, and others who care for and about people with dementia, would like an answer to their question about how much a person understands. My non-medical viewpoint is that it varies.

No, I'm not "copping out." The dementia I've witnessed, some of it Alzheimer's and some of it other types, has suggested to me that people likely do understand their surroundings on some level, even if it's just the body language or mood of his or her caregiver. Also, some people with dementia will have inexplicable moments of clarity where they seemingly come out of the walled-off state and momentarily return to a state that is indicative of their pre-dementia personality.


Minding Our Elders listed as resource on Medicare caregiver support site

CMS (Centers for Medicare and Medicaid Service) recently launched an updated and even more user-friendly version of Ask Medicare, with Minding Our Elders as one of the helpful site links listed under caregiver support.

Ask Medicare will guide you directly to the Medicare related topics you are seeking. I'll be posting a series of articles during the next few weeks highlighting the many features of Ask Medicare.


Having trouble getting your elder to wear incontinence protection?

Incontinence is a sensitive topic. Adults often rebel against the word "diaper," for good reason. The word "diaper" implies a piece of clothing used for a baby or toddler yet to be toilet trained. What adult would take kindly to this word when it's applied to them?

To take it one step farther, think about this. If you are a forty or fifty-something woman who has had children, you have probably, on occasion, suffered from "stress incontinence," meaning that you've leaked a little urine during a cough, sneeze or huge laugh fest. Perhaps you've even used a panty protector "just in case." How would you feel if your husband or friend referred to this little protection as a "diaper"?


Early grief and the long goodbye

Nearly everyone involved in caring for aging loved ones is experiencing grief. Often, however, we're not aware of this grief. We have a parent who used to be strong and capable begin to ask for a little assistance. No big deal, right? We're happy to help

But underneath, often unnoticed, there's a knot in our hearts. We're grieving the loss - the loss of function that made our parent need to ask for help. Weren't they the ones who helped us? Weren't they the ones in charge?

Generally, these changes are subtle, the grief sneaky. I remember watching my parents age in the normal fashion. I'd occasionally look at them and be startled by the realization that they were aging. But that was all I acknowledged. I never intentionally thought about loss and pain. It dwelled beneath my consciousness.


'Take Me Home from the Oscars' offers a strong message about living with chronic illness

No matter our age or state of health, most of us want to look and act as though we are well. Indeed, for many people, looking and acting "normal" is necessary in order to hold onto their jobs.

One reason that people so dread the diagnosis of dementia, other than the obvious one of having an incurable, life-altering disease, is that once the fact is known that they have the disease, it's quite possible that their employer may find "other reasons" to decide they no longer need their services.

Even friends can drift away since they often don't know how to respond.


About Carol
Minding Our Elders

Caregiving expert Carol Bradley Bursack, Author, speaker and columnist, presents a collection of articles, stories, news and research for you to browse. Please check the blog and Web site links for more information and feel free to email Carol at carol@mindingourelders.com to chat or ask questions. Minding Our Elders is a registered trademark.

If your group or organization would like to buy "Minding Our Elders: Caregivers Share Their Personal Stories" in bulk, please email carol@mindingourelders.com for information. Bulk rates are available.