April 2009 Support For Caregivers and Seniors
Minding Our Elders®: Living with Elderly Parents: Do You Regret the Decision?
 

A Note From Carol

Dear friends,

By now, most of you have seen coverage of the flooding in the Red River Valley of the North. We are still holding our breath, though the first record crest of the Red River has passed. We are now getting a blizzard with close to a foot of snow (some areas more).

Watching the television footage of elders being evacuated from nursing homes was heartbreaking. The evacuation was a precaution, and will likely not have been necessary for most of these people. In the flood we had in 1997, Fargo didn't evacuate nursing homes, although some smaller Red River Valley towns had to do it by boat, so a lesson was learned.

It was suggested early on as flood conditions developed that people with vulnerable family members in their homes find other places for them, before an emergency evacuation became necessary. Trying to get a wheelchair bound elder into a boat is bad. Trying to get a confused, fist flying elder with Alzheimer's into a boat is - well, horrible.

These elders are scared, uncomfortable and confused. Their families didn't even know where some of them were for awhile, though most of them have been notified by now.

The core city survived the first crest. We're praying that dikes hold during the wind of this blizzard. Waves are very hard on soggy dikes.Then there will be a second crest after this snow melts. Will the elders have to spend two more weeks away from their familiar surroundings? It's possible.

This is a good time for you, the caregiver, think about what you'd do given a major flood, fire, hurricane, tornado. There's only so much preparation one can do, of course. But start with medications. Those can be vital. Sometimes, that's all the time you have - grab the bag and get out. Hopefully, you'd have time to take more.

Blessings to you all who do so much for others.

Carol

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Welcome to Minding Our Elders! Our hope is to break the isolation that caregivers often feel. We'd also like to share ideas, comfort and information that will help you along your caregiving journey. Thanks for reading.


Your Questions About In-Home Care Answered

When the subject of in-home care comes up, there is often a lot of confusion. I first tried in-home care when it was a very new concept, at least in my area. That was in the early 80s when my elderly neighbor, Joe, whom I'd been caring for, fell and dislocated his shoulder. While at the hospital, we were offered help at home for Joe, so we happily accepted, thinking it was part of Medicare. When the eye-popping bill came, I realized that I was lacking some important information. The hospital had its own in-home care service and they were less than forthcoming about other options, as well as costs.

Sure, that was years ago, but some things don't change that much. People still have questions about in-home care. I'll try, here, to answer the most frequently asked questions.


Living with Elderly Parents: Do You Regret the Decision?

You did it, didn't you? You promised, long ago when your dad died, that you'd take care of Mom and she'd never have to go to a nursing home. You promised Mom - after her visit to a nursing home, one of the worst in the state, to visit a friend - that she'd never have to go to a care facility of any kind.

No, you would always take care of her. After all, she always cared for you. Or, even though she wasn't a very good mother, and you never really got along, one cares for one's own, right? Or, your mother was pretty healthy and doing okay and you were divorced and trying to take care of two children, so you moved in with your mother. She cared for the kids for awhile, but then began showing signs of strange behavior. You feared for your kids, your mother and yourself. "What have I gotten myself into?" You thought.

Many people are facing the fact that their sweet intentions have taken a sour turn. Certainly, for some, the decision to cohabitate with their elders works out fine. Two or even three generations residing in the same home can work. It can work when there is plenty of space so that everyone has some degree of privacy. It can work when there is respect for one another and a place to go when one has had enough family time. It can work when there is plenty of cooperation, planning beforehand and even some respite care for the elder, should that be needed.


"The Alzheimer's Project" on HBO

A heads-up for those of you with HBO service:

"More than a year in the making, "The Alzheimer's Project" is a groundbreaking, four-part documentary series airing on HBO May 10-12. The first of the four documentaries, "The Memory Loss Tapes" (May 10, 9 p.m. Eastern), provides an up-close and personal look at seven individuals living with Alzheimer's. "Momentum In Science, Part 1" (May 11, 8 p.m. Eastern) and "Part 2" (May 12, 8 p.m. Eastern) is a state-of-the-art science report that takes viewers inside some of the most cutting-edge Alzheimer research advances. "Grandpa, Do You Know Who I Am? With Maria Shriver" (May 11, 7:30 p.m. Eastern) captures what it means to be a child or grandchild of a person with Alzheimer's. "Caregivers" (May 12, 7 p.m. Eastern) highlights the sacrifices and successes of people who experience their loved ones' gradual descent into dementia."


Family Support Invaluable

From Leah, our talented blogger who has vascular dementia:

The funniest thing happened the other day. I got summons for court duty! First, I groaned. Then, I said NEAT! And soon after I realized that, with dementia, I couldn't serve on a jury. Ever hear the term MISTRIAL? So, reluctantly, and with some humor, I wrote a note, included my social security notice of disability and sent it back. Sigh - it would have been a great experience.

But, having dementia may have some benefits. My husband and I went to a local hardware store. In front was the cutest John Deere lawn tractor with a small trailer behind, about the size of a wheel barrel.

"Ewww - l-i-k-e that," I said to my husband as I drooled over the cart. "I could really use this when I work in the yard!"


About Carol

Caregiving expert Carol Bradley Bursack, Author, speaker and columnist, presents a collection of articles, stories, news and research for you to browse. Please check the blog and Web site links for more information and feel free to email Carol at carol@mindingourelders.com to chat or ask questions. Minding Our Elders is a registered trademark.

If your group or organization would like to buy "Minding Our Elders: Caregivers Share Their Personal Stories" in bulk, please email carol@mindingourelders.com for information. Bulk rates are available.




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