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COME JOIN THE NF ENDURANCE TEAM IN LAS VEGAS   

LAS VEGAS
December 7, 2008
Whether you are planning to run Las Vegas, or have not yet signed up, please make plans to come out and support the NF Endurance Team in Las Vegas. It is also not too late to sign up! This e-mail highlights race information and introduces you to the
Las Vegas team.
 
NF ENDURANCE TEAM

Members of the team gathered on race day. 2008 marks the fourth year that the race has been held. This year the full marathon and half marathon will be capped at 10,000 participants each.

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RUNNING WITH OUR LEGS AND HEARTS

"My favorite run was the first Las Vegas 1/2 marathon I did. I didn't expect to be so moved by just showing up that day.  I felt like I had been all alone in my training leading up to the event. When friends, family, and co-workers found out I had signed up for a half marathon, they thought I was crazy, why would someone want to run 13 miles? But at 5:30 that morning I looked around and realized all those people were as "crazy" as I was! They had been training and struggling just as I had. That realization was very powerful for me."
 HEATHER CARTER








LAS VEGAS MARATHON INFORMATION
  • WEATHER: The average temperature at the start time is 50°F.
  • MUSIC: Entertainment will be provided on the course. Check the entertainment site for updates.
  • COURSE MAP:  To view the course maps of the Las Vegas Marathon, click here. There is a gradual mid-course incline with a downhill sprint finish. Beginning at mile two there will be water stations every mile. Sports drinks will be offered every other mile starting at mile 3. Energy gel will be available at mile 13 and 18.
  • RACE DAY SCHEDULE: The marathon and half marathon begin at approximately 6:07 a.m. although times are subject to change.
  • NISSAN QUALITY OF LIFE EXPO: Located at the Mandala Bay Convention Center, the two day Expo will host an array of booths with the latest products and information.
       Friday - Dec. 5: 11 a.m. to 7 p.m.
       Saturday - Dec. 6: 9 a.m. to 5 p.m.
  • DID YOU KNOW: The Las Vegas Marathon was the first marathon to make the passage through the Las Vegas Strip.
A NOTE FROM THE TUMORNATORS
           Alright y'all (enter southern twang here) where do I begin?
I hope this letter finds everyone loving life as much as we do down here in Tumornator Nation!
           My brother Ben and I are signed up to run the Las Vegas Half Marathon on December 5th and I strongly encourage anyone who enjoys fast times and loose women to join -- I kid.
           Seriously though, it amazes me how memory loss truly works. I mean it feels like just yesterday I was 16 years old and I had just finished the Peachtree Road Race in Atlanta, Ga (a 10K ). I swore off doing any physical exercise again,ever! 
           Well, then last May, I muttered the exact same words in the breath that I could muster after barely finishing the Half Ironman Florida. And now, here we go again. There is truly no substitute for accomplishment. 5K, 500K -- it doesn't matter when you have set a goal to finish and it actually happens. There is nothing in this world that can replace the hours on the road, the dieting, the cheating on the diet, and the smell of sweat at the end of a day you have worked so hard for. Oh, and did I mention the lives you touch... the phone calls, the emails, and the downright joy you feel when you know that all of those hours have added up to something more than a finisher medal?
            To fill you in: our youngest brother Drew suffers from Schwannomatosis. He would tell you he is blessed -- blessed with an attitude and a smile that one can only dream of having. Blessed with a family and a community that is behind him, and blessed with the knowledge that if you never quit, you cannot be defeated. He is the light of a room, the goofy smiling kid you just want to hang out with, and we fight for him and everyone else who has to deal with this every day.
            Being a part of the NF Endurance team is something of a miracle. The leadership, the passion, and the community is truly unparalleled and inspirational. I know people can get busy and fall out of touch, but this team is growing in many ways, touching so many lives that you cannot help but get swept up in NFE Fever!
            We have been working to keep fund raising fun with events such as concerts, wine tastings and even a foam party (we're three brothers, what else are we going to do? ) We have been lucky to have the commitment from Atlanta Braves outfielder Jeff Francoeur, a friend of mine.
            We have raised something in the neighborhood of $140,000 since the beginning of February of 2007. We have far surpassed any goals we originally set, but we have not reached THE goal of seeing an end to NF and we will not stop until we do.
           For now, I leave you with this:
           Be the Difference...
Be the one who starts a walking team, Be the one who raises $1, $10, $1,000 a mile, Be the smile at mile 25, Be the one waving the Flag, Be the Difference, Be the Beginning of the End.

- You Can, We Can.
 
Chad Leathers


MEET TEAM REED



FRONT:Harrison Reed, Helen Reed,  Elliott Reed,
BACK: Emily Reed, Frank Bonjione

  
Elliott Reed was diagnosed with NF1 when he was five years old. "We took annual trips to Indianapolis where he met with his NF specialist, Dr. Karen Roos," Helen Reed, Elliot's mother said. Elliott has suffered from chronic neck and shoulder pain, headaches and learning disabilities.  Since Elliott's NF was spontaneous and first generation, one of the greatest challenges has been the uncertainty of his prognosis and how it will affect him in years to come. Elliott has participated in several research projects to assist with NF research including a research study at the National Institute of Health in Washington D.C.
   A few years ago Helen received her  first NF newsletter from the Children's Tumor Foundation. "When the Disney Marathon was announced, I suggested to Elliott that we join the Endurance team," Helen said. "He [Elliott] gladly accepted the challenge and became our NF hero! Our debut team for the 2006 Disney marathon consisted of Elliott's family and friends. At the event, we met many NF families and support people who helped make this first event a memorable one."
  Their second race together will be in Las Vegas where Elliott currently lives and works as a massage therapist. This year, two of Elliott's aunts have joined Team Reed. "We have raised our goal for research contributions and look forward to participating in this worthwhile cause," Helen said.
                   
One on One with Elliott Reed

Age: 22
Occupation: Massage Therapist

Q. What are the challenges of living with NF?
A. The pain from the neurofibroma in the nerves of my neck. After I complete activities that put a strain on my neck, it is quite painful. Also, the slight learning disability -- taking a little longer to understand and grasp certain things.
Q. What are your hobbies and activities?
A. Rock climbing, working out at the gym, yoga, No Limit Texas Hold Em' poker, movies, music
Where do YOU train?
Puzzle Pieces     Scrub oaks, rolling dunes and sea oats make up Frank Bonjione's training course. A Las Vegas half marathon participant, Bonjione lives in Florida in New Smyrna Beach, a quaint and old town on the Atlantic coast.
   New Smyrna encompasses a barrier island bordered by the Atlantic ocean and the Indian River. "Our favorite place to run and walk is Smyrna Dunes Park, a preserve at the tip of the island where the Halifax and Indian rivers join briefly before flowing through the Inlet into the sea," Bonjione said.
   "We just love to run there, especially early in the morning when the sun is rising over the ocean, casting a fiery orange glow that shimmers on the water," Bonjione said.
   It's also the home of gopher turtles, an endangered species that live in burrows in the dunes. Gopher turtles feed in the morning before the heat of the day. 
   "They can be quite amusing and they often stare at us when we jog by," Bonjione said. "One morning we counted 22 of them in just one trip around the boardwalk! It's the record and it's stood for awhile."
   After each workout, Bonjione swaps running shoes for swim shorts and takes a swim in the blue-green waters of the Inlet. 
   Bonjione draws inspiration for his training from a quote that hangs on a wall in his office at Seminole Community College. "I have a quote from Thoreau, given to me by someone I love and respect," Bonjione said. "Every time I think of Elliott [Reed] and his determination, his positive, 'can do' attitude, I glance at Thoreau's simple, eloquent words: Go confidently in the direction of your dreams! Live the life you've imagined."