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Finding the Truth E-Newsletter August 2009 #2
In This Issue
CDC Sponsors Public Engagement on Swine Flu Vaccine
CDC Public Engagement Upcoming Meetings
"Can You Hear Me Now?!"
Sources of Mercury You Can Do Something About
IOM Meeting on Vaccine Adverse Affects
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CDC Sponsors Public Engagement on Swine Flu Vaccine, Science Deemed Secondary to Policy Decisions and Questions Remain
By Theresa Wrangham SafeMinds President

tkwAs the Centers for Disease Control (CDC) holds the first round in a series of public engagement sessions designed to promote public discussion on how pandemic swine flu vaccine will be made available to the public, many questions remain unanswered in terms of the safety of the vaccine being developed.

Dr. Roger Bernier and Capt. Raymond Strikas were present at the Denver public engagement session held on August 8th, which I attended to get answers to questions that remain as a result of July meetings held by the FDA Vaccine and Related Biologic Products Advisory Committee (VRBPAC) and the Advisory Committee on Immunization Practices (ACIP).  Imagine my amazement as Dr. Bernier opened the meeting by stating that we "can't pick the right answer based on science and data."  and I was pleasantly surprised that I was not alone in my questions around safety.  It seemed as though roughly half of those attending had many of the same questions I did - it did not bode well for CDC.  However, as the meeting progressed it was clear that the public engagement session was not going to be centered on answers to our questions; rather attendees were being asked to make policy decisions based on incomplete assumptions furnished to them by the CDC.  The purpose of the endeavor as far as I could ascertain was to take the pulse of the public in determining the level of response the public felt was necessary in pursuing a vaccination program for the new swine flu vaccine under development.  Read more.
 
 
CDC Public Engagement Meeting Schedule

The next round of public engagement sessions are being held August 15th.  Below are links to register for these meetings and registration is a requirement to attend.  Additional information is available here
  
 
Additional meetings are being planned in the following cities. Please check back frequently for registration information.
 
Bucks County, Pennsylvania, Saturday, Aug 22
New York, New York, Saturday, Aug 22
Somerville, Massachusetts, Saturday, Aug 29

 
The public must keep pressing for answers to these important safety questions.  Please consider going to these meetings!
 
Visit the SafeMinds Swine Flu Information Center for updates on meetings and unanswered questions.
"Can You Hear Me Now?!"
What will it take for Dr. Tom Insel to hear the message coming at him from all directions? It's time for real vaccine safety research.
By Katie Wright

katie wrightI first read the Interagency Autism Coordinating Committee (IACC) member roster and thought why does the National Institute for Deafness have a seat on an autism research committee?  Then again, maybe there was common ground!  Maybe Dr. James Battey of the National Institute on Deafness should take over IACC entirely because he is an expert on the hearing impaired, a condition that seems to affect almost every member of IACC.
 
 IACC was created as a direct result of the hard work of thousands of families with autistic children who called, wrote and even visited their congress people and Senators to get the Combating Autism Act (CAA) passed.  Parents organized phone campaigns and sit-ins in offices of non-supportive legislators.  My parents, Bob and Suzanne Wright, traveled to DC dozens of times to lobby for our families, in efforts to rectify the near total absence of autism research within the NIH. Families everywhere worked tirelessly, and at their own expense, in order to make the CAA law.  Read more.
Top 10 Sources of Mercury you can do Something About - #1 Fish Consumpation
By Katie Weisman for the SafeMinds Environmental Committee

fishMost of us know that fish can contain mercury and that eating too much of certain species can harm your health.  But, do you know how to eat fish safely to protect yourself and your family?
 
The mercury in fish is methylmercury, which is one type of organic mercury.  Organic mercury is particularly harmful to all living beings because it can enter any cell in the body.  Mercury is a neurotoxin and fetuses, infants and young children (under 6) are most vulnerable to its effects as their brains are still developing.  The National Academy of Sciences (NAS) reports that "Chronic, low-dose prenatal methylmercury exposure from maternal consumption of fish has been associated with...poor performance on neurobehavioral tests, particularly on tests of attention, fine-motor function, language, visual-spatial abilities (e.g. drawing) and verbal memory".  In adults, symptoms of mercury poisoning include fatigue, pain, numbness, stomach upset, memory loss, confusion and insomnia.  Read more. 
IOM to Meet on Vaccine Adverse Affects

The Institute of Medicine will hold its third open session of the Committee to Review Adverse Effects of Vaccines August 26, 2009 in Room 100 of the Keck Center of the National Academies, located at 500 5th Street NW, Washington, DC from 9:45 am to 1:00 pm.  SafeMinds previously submitted concerns and requests with the committee and encourages the community to participate in this process.  The public may listen to the meeting proceedings by dialing 1-800-508-7891 and the room number *1979783* to enter the meeting - the * star key is required before and after the room number. No real-time questions and comments over the phone will be taken, however comments or other information for committee consideration may be submitted to vaccinesafety@nas.edu. Please direct any audio problems during the call to the project e-mail at vaccinesafety@nas.edu or dial *10* to be directed to the meeting help desk.  All public comments submitting will included in the Public Access File with all identifying information intact.
 
A Win for Us . . . FDA Changes Website
From Charles Brown at Consumers for Dental Health

The first crack in FDA's armor has appeared, folks.  This morning, FDA changed its website, adding this sentence:  "High levels of mercury vapor exposure are associated with adverse effects in the brain and the kidneys."  (Go to http://www.fda.gov/MedicalDevices/ProductsandMedicalProcedures/DentalProducts/DentalAmalgam/ucm171094.htmand scroll down to "Potential Risks").  Prior to this, the website did not explain to consumers the damage caused by mercury at all.  

Congratulations to all of us in the mercury-free dentistry movement.   FDA realizes that its website, like its rule, is a cover-up of the existence and risk of mercury, so its lawyers are trying to ease FDA into a more defensible position (see e-mail below).

But it is still "the Henry Schein Amalgam rule."  It still allows the nation's #1 distributor of mercury amalgam, Henry Schein Inc. untrammeled rights to market amalgam for everyone, even pregnant women, without even disclosing the mercury to patients.  (As you will recall, Schein paid Margaret Hamburg about a million bucks to be its director during her revolving-door time outside of government.) 

But it is still "the Henry Schein Amalgam rule."  It still allows the nation's #1 distributor of mercury amalgam, Henry Schein Inc. untrammeled rights to market amalgam for everyone, even pregnant women, without even disclosing the mercury to patients.  (As you will recall, Schein paid Margaret Hamburg about a million bucks to be its director during her revolving-door time outside of government.)   

The website still does not re-instate the language FDA agreed in writing in 2008 to maintain on its website: "Dental amalgams contain mercury, which may have neurotoxic effects on the nervous systems of developing children and fetuses."  In particular the website still fails to inform consumers that young children and unborn children are especially susceptible to the effects of mercury.  FDA does not want parents to know about this danger to children even though it admits that this information is true (buried deep in the labeling intended for dentists in the new rule's special controls, the agency writes that "The developing neurological systems in fetuses and young children may be more sensitive to the neurotoxic effects of mercury vapor").                
 
Now that you had an impact writing Deputy Commissioner Sharfstein. our next step will be to write your Representative in Congress.  My next e-mail will suggest talking points and the route to e-mail and to phone him or her.
 
FDA is covering up the mercury risks, but doing so a little bit less than yesterday.  We move forward; they retreat.  In the words of our first naval hero John Paul Jones, "We have not yet begun to fight."
General Motors Refusing Responsiblity for Mercury Clean-up

In a surprising move this week, General Motors is pulling its support for a program to recycle mercury-containing switches from its old vehicles before they are scrapped.  The company is arguing that since its bankruptcy reorganization, it is no longer responsible for the pollution caused by products of the "old" General Motors. 

Read more.