ACCRF Update (June 2012)  
3rd  Workshop on Salivary Gland Tumor Research

Adenoid cystic carcinoma (ACC) is the second most common salivary gland cancer. So the re-invigoration of the field of salivary gland tumor research over the past 6 years has been a very welcome development for ACC patients. The process was jumpstarted in 2006 by 33 researchers who attended the 1st Workshop on Salivary Gland Tumor Research sponsored by the National Institutes of Health (NIH) and ACCRF. The main focus of the meeting was on the missing building blocks that kept scientists from making progress. Two years later, at the 2nd Workshop, it became evident that the necessary components for successful research - a biorepository, animal models and a research consortium - were falling into place with the active support of the National Institute of Dental and Craniofacial Research (NIDCR).


The 3rd Workshop took place in February with an impressive 77 researchers in attendance. Certainly, there were discussions about research resources that are still missing. However, the bulk of the meeting focused on the basic and translational science that is blossoming. The molecular understanding of ACC, mucoepidermoid carcinoma and other salivary gland cancers is growing by leaps and bounds. And the findings are gradually working their way into the clinic, the ultimate goal for scientists, patients and their families.


The meeting could not have taken place at a better time. The NIDCR soon will be awarding an additional $8 million in grants to salivary gland tumor researchers. By reviewing the state of the science and engendering a vibrant discussion about priorities, the 3rd Workshop on Salivary Gland Tumor Research helped light the path forward.


Of particular note was the collaborative spirit that suffused the meeting. Many of the speakers thanked other attendees for providing specimens, animal models or data that helped move along their research projects. Such activity is a rarity in most scientific fields, but it has become the hallmark of a core group of dedicated, generous and highly-respected investigators who have been sowing the seeds of collegiality and future breakthroughs.


Recognition for ACCRF 


ACCRF was recently featured in the Innovator Spotlight of FasterCures, a nonprofit that seeks to improve the medical research system. The Q&A with Executive Director Jeff Kaufman outlines the initial impetus for the creation of ACCRF as well as the foundation's challenges, strategies, accomplishments and near-term goals.


FasterCures has invited ACCRF to join The Research Acceleration and Innovation Network (TRAIN). The group "was established to create opportunities for medical research innovators to discuss and tackle the challenges that cut across diseases. It is a group of unique nonprofit foundations that fund medical research across a spectrum of diseases, from breast cancer to Parkinson's disease. In many cases TRAIN's member foundations have been created by patients and their families who are frustrated by the slow pace of change in the traditional medical research system. They represent the kind of organizations that are fast becoming the engine behind innovation in disease research - collaborative, mission-driven, strategic in their allocation of resources, and results-oriented. They are organizations that have a singular focus on, and a significant stake in, getting promising therapies from the laboratory bench to the patient's bedside as rapidly as possible." ACCRF's Research Agenda is included as one of TRAIN's Innovation Tools.


The Massachusetts General Hospital recently honored ACCRF co-founders Marnie and Jeff Kaufman as part of "The One Hundred". The designation refers to "those individuals and groups whose diligence and discoveries, philanthropy and passion have helped advance the fight against cancer."  

Fundraising Events:  Thanks for ACCelerating the CURE!
John Kaluzny
John Kaluzny "Sticks Up for a Cause"
John Kaluzny, an elementary school counselor and ACC survivor from Washington state, literally "stuck up" for ACCRF. 
Through a community service project organized by his daughter, Hannah, Yakima Elementary School students were able to donate $1 per foot of duct tape to tape their counselor to the wall. Hannah's project showed the students how to have fun while helping others and we are grateful for their efforts. 
For the complete story click here

2012 Friends of ACCRF Event Organizers
Neil McKittrick & Karen Hoffman,   
Friends of ACCRF Event Organizers

On March 31st, the 6th Annual Friends of ACCRF event had a record turnout.  Numerous volunteers and ACC families created a fantastic evening featuring a silent auction, young vocalists, food and fun that raised over $61,000 for ACCRF.

Live Like Andi Runners
Live Like Andi Runners

On April 28th, the Live Like Andi Foundation hosted its 5th Annual Run/Walk Event in Novi, MI and raised $40,000 for ACCRF!

Please Join Us in North Carolina
NC 5K Race
NC 5K Race

4th Annual NC ACCRF
Run for a Cure

Saturday, August 25th

9:00 am

General William Lee Museum
209 West Divine Street
Dunn, NC

Register Now

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