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Summer Newsletter and
Weekly Update July 30, 2010
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| Greetings!
Well I think you'd have to be living under a rock not to know this but the Autism Insurance Bill passed both the Senate and the House this week and is on the Governor's desk to be signed. What will this mean for you and your family?
This legislation will require health insurers to provide coverage for the diagnosis and treatment of Autism Spectrum Disorder. This includes both habilitative and rehabilitative care (including but not limited to, Applied Behavioral Analysis supervised by a board-certified behavior analyst), pharmacy care, psychiatric care, psychological care and therapeutic care when deemed necessary by a licensed physician or psychologist. Unlike other states, Massachusetts' version does not have a dollar or age cap, meaning that the treatments will not be limited by money or age. This will make Massachusetts's law among the most comprehensive bills of its kind in the country. THANK YOU to everyone who emailed and called their legislators, and to AFAM for their advocacy.
Special Thanks to Rep. Barbara L'Italien, Sen. Fred Berry, Ways & Means Committee Chairmen Steven Panagiotakos and Charles Murphy, Sen. President Therese Murray and House Speaker Robert DeLeo and all of the 110 members of the Legislature who co-sponsored the bill.
My apologies to all those who came out this morning for teh Movie- I'm still awaiting a return call from the Theater with an explanation for what happened that left us all standing out side! I appreciate everyone's understanding and willingness to go with the flow to Plan B such as it was! At least the weather was cooperative for a play day in the park!
Looking forward to seeing more of you tonight at the Tornados Game! At the end of tonights game there will be a fireworks display - Just a heads up for those families for whom this will pose a problem!I lived there for a number of years, It does get better, My son and I will now be able to sit through the display and enjoy the pyrotecnics thansk to his hearing protection!
Have a great weekend everyone.
Sue
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Calendar | |
To Register for events click here
******Please note that the Center 's Summer Hours are now in effect******
The Center is open Monday- Friday from 9:00 AM - 5:00 PM
Evening hours will resume in the fall.
August 4, 2010
New Initiatives in Child Psychiatry at UMASS MedicalCenter ...teaming together with the community... Presented by Dr. Jean Frazier Vice Chair & Director of Child & Adolescent Psychiatry at UMASS Medical Center Wednesday, August 4, 2010 6:00 pm - 8:00 pm Summit Academy 15 Jamesbury Drive Worcester, MA RSVP-508-856-8569 0r Celia.Brown@umassmed.edu Co-sponsored by Child and Adolescent Psychiatry at UMass Medical Center Autism Resource Center of Central Massachusetts PAL August 6, 2010 Friends and Family Movie
Cinema World
John Fitch Highway
Doors open at 9:30 AM
Movie at 10:00 m
Suggested Donation $5.00/ family
registration required
August 8, 2010 AFAM Fundraiser Club Date at the C Note Nantasket Beach 2-9 PM www.afamaction.org August 11, 2010 Parent Night Out Oxford Casual Dining 16 Millbury Blvd Oxford MA 7-9 PM August 13, 2010 Friends and Family Movie
West Boylston Cinema
Rt 12 West Boylston
Doors open at 9:30 AM
Movie at 10:00 AM
Suggested Donation $5.00/ family
registration required August 16-20 CENTER CLOSED FAMILY FUN DAYS AT CAMP Registration Closed
August 27, 2010 Friends and Family Movie
West Boylston Cinema
Rt 12 West Boylston
Doors open at 9:30 AM
Movie at 10:00 AM
Suggested Donation $5.00/ family
registration required
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Conference Grants for Families
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This Fall, rather than organize a conference, the Center will be initiating a Grant Program. Parents registered with the Autism Resource Center may apply for a grant to cover the registration fee at a conference of their choice. The topic of conference must be relevant to autism . There is a fixed amount allocated to this program and applications will be considered on a first come, first served basis. This grant will not cover CEU's for those who are professionals transportation, lodging or childcare.
So that families can spend a full day on a specific aspect of treatment appropriate for their child's profile we will post conferences as we become aware of offerings here in New England. Families may apply for 1 grant/ year / parent to attend conferences, up to $250.00. If a conference cost is greater than $250.00 family members will be responsible for the cost beyond $250.00. If a conference costs less than $250.00 funding of that conference will be made in full but no person will be funded beyond one conference. To download an application click here
We recently added a "conferences" page to our website, if you learn of a conference that isn't listed please let us know so we can add it! Check out what is on the page by clicking here
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Autism in the Media
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Voice Recorders Seem to Help Detect Autism Vocalization differences heard in young children wearing them, study finds By Kathleen Doheny HealthDay Reporter MONDAY, July 19 (HealthDay News) -- An analysis of soundtracks from a recording system worn by young children might detect differences in vocalization and help researchers identify those children who may have autism or language delays, a new study suggests. read more
Is Picky Eating an Early Sign of Autism?
By Alice Park Monday, Jul. 19, 2010 New research on the finicky eating habits of children with autism finds that while autistic children tend to eat a less varied diet than other kids do, their dietary preferences have little negative effect on their height, weight and growth. read more
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On-Line Tool for Parents to Check Symptoms from the American Academy of Pediatrics
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AAP launches online symptom checker tool for parents The AAP has introduced an online tool that provides parents with information about their children's symptoms and advice on when to consult their medical providers. The symptom checker tool features images that can be used by parents to diagnose rashes and insect bites among children, as well as weight-based dosage charts for over-the-counter drugs. Chicago Tribune/The Associated Press Click here to access this tool |
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Legislative Alert | |
Urgent Request from The Arc: Ask Governor to Say Yes to DDS Request Joint Message from The Arc and ADDP Time is Running Out for Consumers and Families on the cut lists An important request will be arriving shortly on the desk of Governor Deval Patrick. He will have to decide on whether to support a deficiency budget to address reductions in the Department of Developmental Services' POS and state operated services accounts, or direct DDS to begin dropping people with developmental disabilities from service.
The decision must be made very soon; failure to do so will increase the number of people who may lose service; and will continue to build horrific anxiety for consumers and families fearful of receiving imminent cut off notices from the state.
The Governor, with the consent of the Legislature, has the authority to reallocate existing dollars within the budget to maintain essential and critical services.
A deficiency budget request is generally made in times of an emergency to protect essential services and supports that might otherwise expose citizens to danger or crisis.
The Secretary of the Executive Office of Health and Human Services is currently discussing this request with the Governor and his staff, noting the pending loss of residential and day services for hundreds of Commonwealth citizens with developmental disabilities.
If the Governor fails to endorse the deficiency budget request, then DDS will be forced to immediate begin discharging people with developmental disabilities from their group homes and begin the process of shuttering nearly 50 group homes across the state.
Both ADDP and The Arc of Massachusetts are urging the Governor to approve the request from DDS to prevent a human service catastrophe of people with developmental disabilities being abandoned with nowhere to go.
Many of the residents of both private provider (POS) and state owned group homes are over 40 years of age, many have either elderly parents or parents who have predeceased them. Others may have just graduated from residential schools and have no where else to go due to behavioral, medical or other needs. Denying service to these people would simply be cruel, to say nothing of being inconsistent with the values of the people of the Commonwealth.
The Arc and ADDP believe that the Governor understands the human dimension of this problem and may be responsive to this request to reallocate nearly $18 million in state expenditures.
Please call the Governor's office at 617.725.4005 or send him an instant email by taking action at this link. We urge you to call too! " I just finished doing this it took all of 5 minutes of my time- Be part of the solution for those at risk , make the call and send an e-mail
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Community Calendar | |
Free Fun Fridays
The Highland Street Foundation is providing support to selected Massachusetts cultural institutions so they can open their doors to residents and tourists for free on Fridays throughout the summer. The first Free Fun Friday will take place on Jun 25 at the Boston Children's Museum. Other Fun Fridays will include The Franklin Park Zoo and Museum of Science. www.highlandstreet.org Free Fun Fridays The "Free Fun Fridays" program invites you to visit a designated museum or attraction for free over ten Fridays this summer. Please note that you do not need to register or obtain a ticket. Just show up and enjoy! If you have any questions about this program, please contact Kim Bristol at 508.820.1151 or kbristol@highlandstreet.org .
Below are the dates and locations for 2010:
Friday, August 20 Institute of Contemporary Art 100 Northern Ave. - Boston, MA
Friday, August 27 Museum of Science 1 Science Park - Boston, MA Grand Finale Weekend Friday, September 3
New England Historic Genealogical Society 99 Newbury St. - Boston, MA
Sports Museum TD Garden, 100 Legends Way - Boston, MA
EcoTarium 222 Harrington Way. - Worcester, MA
Cape Cod Museum of Art 60 Hope Lane - Dennis, MA
New Bedford Whaling Museum 18 Johnny Cake Hill - New Bedford, MA
Concord Museum 53 Cambridge Turnpike - Concord, MA
Stone Zoo 149 Pond St. - Stoneham, MA
Buttonwood Park Zoo 425 Hawthorn St. - New Bedford, MA
Saturday, September 4 Edward Gorey House 8 Strawberry Lane - Yarmouth Port, MA
Worcester Art Museum 55 Salisbury St. - Worcester, MA
USS Constitution Museum 22 Charlestown Navy Yard - Charlestown, MA
Naismith Memorial Basketball Hall of Fame 1000 West Columbus Ave. - Springfield, MA
American Textile History Museum 491 Dutton St. - Lowell, MA
Discovery Museums 177 Main St. - Acton, MA
Cape Cod Children's Museum 577 Great Neck Road South - Mashpee, MA
Berkshire Museum 39 South St. - Pittsfield, MA
* PLEASE NOTE: If you plan to bring a large group to the Boston Harbor Islands, please consider arriving early (registration opens at 9 a.m.). Alternately, you may contact Rebecca Smerling Marcus ( rsmerling@islandalliance.org ), who will help facilitate a free visit to the Islands for your group.
Save The Dates
CANDI New Initiatives in Child Psychiatry at UMASS Medical Center ...teaming together with the community...
Presented by Dr. Jean Frazier Vice Chair & Director of Child & Adolescent Psychiatry at UMASS Medical Center
Wednesday, August 4, 2010 6:00 pm - 8:00 pm Summit Academy 15 Jamesbury Drive Worcester, MA RSVP-508-856-8569 0r Celia.Brown@umassmed.edu Co-sponsored by Child and Adolescent Psychiatry at Umass Medical Center Autism Resource Center of Central Massachusetts
PAL
AFAM
August 8, 2010
AFAM Club Date at the C-Note
Nantasket Beach 2-9 PM
YWCA Swimming is for Everyone Sundays, 3:00-4:00 pm YWCA Central Mass offers a recreational swimming pool experience for children and teens with special needs between the ages of 5 and 14. This provides a wonderful opportunity to participate in one hour of swimming, exercise, and games in the YWCA's heated swimming pool. The program is designed for children who need a non-traditional approach to aquatic instruction. Trained instructors and volunteers will work with class participants. "Swimming is for Everyone" is a family oriented program. Parents are encouraged to participate in the water but it is not required. Siblings age 6 and over can swim in the pool during class. The next session begins September 12 and runs for 7 weeks. The fee is $72. Volunteers who want to swim with our participants are always welcome but must register in advance. The YWCA Central Mass is conveniently located in downtown Worcester next to the Public Library. For further information or if you are interested in volunteering, please contact Nancy at 508-767-2505 x5512.
Miracle League of Massachusetts (Baseball for special needs children) Fall Season 2010 Saturdays - Sept 18th to Oct 23rd [Rain Date: October 30th] 1 hour game time starts in AM Blanchard Memorial Elementary School Ball Field 493 Massachusetts Ave., Boxborough
· Every player gets on base and scores a run each inning · Every player assigned a buddy from the community to assist with the game · Announcer makes it fun for the kids · FREE to participate (includes uniform) · We have players with all range of abilities (from just needing help paying attention to physically needing help with all aspects of the game) · Visit our website to see video from previous seasons. · For more information or to register a 5 to 18 year old, contact Lauren Richardt or call 978-263-3043. Registration deadline is August 13th.
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The Autism Resource Center does not endorse any treatments, programs or products. Articles, announcements and resources are provided for information purposes only.
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