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The A.L.S. Family Charitable Foundation |
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| Greetings!
Summer may be over, but our Fundraising season isn't over just yet! The summer ended with a bang here at the Foundation, with three fundraising events in the month of August! The Motorcycle Run in memory of Danny Perry raised over $3,000, the CIGNA Falmouth Road Race/Pre-Race Bachelor Party raised almost $7,000!
Help us make this the biggest, most successful fundraising season yet by joining us at this Sunday's 14th Annual "Cliff Walk" for A.L.S.!! Even if you, your friends, family or coworkers didn't manage to collect donations this year, you can still join in for the walk and/or celebration with your own small contribution ($10 for the festivities, $25 to walk) so be sure to invite everyone you know for a day of memory, honor, fun and fundraising!
We'd like to share what the walk means to some of our attendees:
"Everyone at the "Cliff Walk ®" for A.L.S. Fundraiser is striving to hang on to the hope and faith that someday, with our perseverance, there will be an end to this awful sickness and that others will be spared the grief and heartache we have endured."
-Kathryn Perry
"On September 12, 2010, I will be on the Cape Cod Canal with hundreds of others, participating in the 14th Annual "Cliff Walk ®" for A.L.S. Fundraiser, walking to find a cure for this disease. Everyone there has something in common, making us all part of the same "family". We've lost or are in the process of losing a loved one to this devastating disease."
-George Guerrero
"This August my Grandpa Hudson was told he had ALS (Lou Gherig's Disease) at the age of 83. News like that at any age is devastating not only for he and my grandmother but for everyone in our family. ...He is the best example of what a Grandfather should be to his grandkids and great grandkids. He spent his years making us smile and I'm determined to spend mine returning the favor. It's maddening that at this age he needs to face the ravages of this disease but as a family we are determined that he not go it alone and that he understand he's surrounded by much love and support. That is why this September 12th on Grandparent's Day, I will be participating in the 14th Annual Cliff Walk."
-Molly Hudson
We hope to see you on Sunday for this amazing event!
Please read on for more on these and other news and events with our A.L.S. community! |
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14th Annual "Cliff Walk" is THIS SUNDAY!
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14th Annual
"Cliff Walk" for A.L.S.
September 12th
In loving memory of
Cliff Jordan, Jr., Edward J. Sciaba, Sr. and Janice Ferrara
For those we love, for those we lost, we walk.
Celebrating our 14th year,
the "Cliff Walk" brings together families
who have been touched by A.L.S. in
a day of memory, honor, fundraising and fun!
10:00 AM Registration
11:00 AM Walk
Cape Cod Canal - Buzzards Bay Recreation Area Main Street, Buzzards Bay
Edward J. Sciaba, Sr. Charitable Foundation
For more information on the walk, and to print out coupons click here. |
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How You're Helping
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All of the children of our A.L.S. families occupy a special place in the heart of the A.L.S. Family Charitable Foundation. To make sure these families had everything they needed for back to school, the Foundation's Children's Program was able to send gift cards to twelve families to help with back to school supplies and clothing, as well as movie passes so the families could enjoy a night out together before it was back to hitting the books!
We are also happy to share that your donations have helped us award 5 college students with scholarships through the Scholarship Program at the Foundation. Congratulations to all! |
CIGNA Falmouth Road Race & Bachelor Party Fundraisers
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In it's 38th year, more than 10,000 runners competed in the CIGNA Falmouth Road Race, and this year the A.L.S. Family Charitable Foundation was part of the "Numbers for Non-Profits" program and had a team of 7 runners pounding the pavement for our cause!
Thank you to our runners who comprised "Team A.L.S. Family": Donna Jordan, Ann-Marie Folino, Aaron Cocce, Pamela Morin, Tim Chiappini, Jay Fabbio, Jennifer Hull, Diane Tonelli and DAN AND STEPHANIE FROM 106.1 WCOD's Morning Show! Together the group raised $6,800!
Click Image to View More Photos | As part of their fundraising efforts, Dan and Stephanie enlisted the help of ABC's The Bachelorette runner-up, Chris Lambton of Dennis, MA. Chris lost his mother to A.L.S., putting the cause near and dear to his heart. The three hosted a "Bachelor Party" at Trader Ed's (Hyannis, MA) on Friday, August 13, 2010. Raffle prizes were donated by WCOD which raised $750!
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| Motorcyle Run in Memory of Danny Perry | |
Click Image to View Photo Gallery |
On Sunday, August 15, 2010 a Motorcycle Run raised over $3,000 for the fight against Lou Gehrig's Disease. The event was held in memory of Danny Perry (March 2, 1929 - March 22, 1995), who passed away from A.L.S.
Danny Perry was a cherished member of the New Bedford community where his memory lives on in the lives of those he touched. Loving husband to Patti, the pair were married for 39 years and together raised five wonderful children.
Perry Family. |
Daughter, Jacqueline Tome, organized this event to commemorate the 15th Anniversary of her father's passing, and to help other families going through the same battle her family faced in hopes of making the journey of others a little easier than the one they had. All proceeds benefitted the A.L.S. Family Charitable Foundation, Inc. which offers in-house patient programs to families living with Lou Gehrig's Disease in New England.
Over 80 bikers showed their support, with Patti Perry riding on the back of a motorcycle for the first time in her life.
"My dad wasn't a biker, and never wanted us to do
Patti Perry's first time on a bike! |
anything dangerous - I'm sure he's looking down on us smiling....and shaking his head!" said Jacqueline.
The group rode from Knuckleheads Bar (New Bedford, MA) to the Buzzards Bay Recreation Area for a ceremony held at the A.L.S. Family Charitable Foundation's "Family Tree" where a brick lies in Danny's honor.
After the ceremony, the group biked back to Knuckleheads where over 150 joined in for entertainment including a live musical performance by "Batteries Not Included," Chinese Auction, 50/50 Raffle and a cookout.
A special thank you to John Stone, owner of Knuckleheads Bar; Joe Moura, President of the Tribunal (Motorcycle Club) for all his guidance and advice throughout planning; Debbie Roberts, Carol Oliveria, Alice Lester, Jamie Bouchard, Jody Gauthier and all family and friends for their help; Sharon Stiffler for photographing the event; Chase Canopy for providing the tent; John Bruce who offered his support from the moment the bikers arrived at Knuckleheads until the last stragglers went home at 5pm; the local businesses who offered support through donations of items for the raffle; and to all who attended this event! |
September 14: Chili's Spices Up Fundraising | Chili's Wareham is supporting our 14th Annual "Cliff Walk" by hosting a "Give Back Night" - a fundraiser where Chili's Wareham will be donating 10% of sales to the A.L.S. Family Charitable Foundation at the September 14th event!
Print the coupon here, then bring your family for lunch or dinner on September 14 from 11am until 11pm at Chili's Wareham (2885 Cranberry Highway, East Wareham, MA). |
| 4th Annual A.L.S. Round Table Meeting Review | |
On Friday, August 13, 2010 the A.L.S. Family Charitable Foundation attended the 4th Annual A.L.S. Roundtable Discussion for a comprehensive gathering of Massachusetts' fight against A.L.S. The event was hosted by the Leonard Florence Center for Living, where they celebrated the opening of the Steve Saling A.L.S. Residence located within the building. The residence was designed by architect and A.L.S. patient, Steve Saling, and offers ten A.L.S. patients the gift of independence through its unprecedented technology.
The residence uses tiny infrared transmitters in the ceilings which connect to a master computer in the basement, allowing residents who have lost the ability move, speak or walk to do the everyday tasks we often take for granted. By using small computers on their wheelchairs, residents can now open their door, send for an elevator, control the television, lights and heat - a huge step in maintaining a sense of independence where once there was none.
The meeting was intended as an outlet for Massachusett's A.L.S. organizations to share our individual approaches in the fight against Lou Gherig's Disease and to foster a cooperative battle plan by discovering areas where we may be able to assist each other. Also in attendance were: ALS Association, Massachusetts Chapter; ALS Therapy Alliance; ALS Therapy Development Institute; Angel Fund; Compassionate Care ALS; Harvard Neuro-Discovery Center; MDA; MGH Institute for Neurodegenerative Disease; Prize 4 Life and the University of Massachusetts Medical Center.
A presentation was given by Dr. Leigh Hochberg of BrainGate, which is focused on developing technologies to restore the communication, mobility, and independence of people with neurologic disease, injury, or limb loss. BrainGate is the most ambitious Brain-Computer Interface currently in clinical trials, now in its second generation. Dr. Hochberg expounded the latest news from his trials and described the potential to radically alter the lives of those living with A.L.S. by using a computer in real-time to operate external devices simply by thinking about the movement of their own paralyzed hand.
You can preview the BrainGate BCI at www.braingate2.org. |
News from the A.L.S. Community
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Former New England Patriot's player diagnosed with A.L.S.
Read the article from The Boston Globe here.
A study by Boston University says that there is a link between head trauma and the onset of Lou Gehrigh's disease. Read the article from New York Daily News here.
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The A.L.S. Family Charitable Foundation, Inc., is a registered 501(c)(3) non-profit organization dedicated to helping those living with the disease today, and finding a cure for tomorrow.
We raise funds for critical A.L.S. research and patient programs.
For more information on the A.L.S. Family Charitable Foundation, Inc. call 508.759.9696 or visit www.alsfamily.org. |
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