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Greetings!
Our year is off to a great start with our first Fundraiser of the year, our Texas Hold 'Em Charity Poker Tournament, bringing in over $1,800! We have also launched our newly redesigned website which is much more user friendly, be sure to check it out at www.alsfamily.org!
We send you this e-newsletter the first Wednesday of the month, but new and exciting information is available almost every day, so be sure to add us on Facebook, or visit www.alsfamily.org any time to keep up to date on information about our Foundation, our supporters and A.L.S. research.
Don't forget to become a part of our family by offering your support: time, talent or treasure - how can you help? Giving doesn't only come in dollar form, and donating your time and skills is just as important and perhaps even more rewarding! Contact [email protected] if you would like to help make a difference in the fight against A.L.S.!
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Events
 February's Texas Hold 'Em
Charity Poker Tournament
Raised Over $1,800!
The Fourth Annual "Texas Hold 'Em Charity Poker Tournament" was held on February 28, 2010 at Dino's Sports Bar in Mashpee, MA and raised over $1,800 for the fight against Lou Gehrig's Disease.
Congratulation to this year's winners, with first place going to Will Cuozzo, second place to Michael Flaherty; third place to Brian Guiliano, fourth place to Dana Kew, fifth place to Sandra Frias, sixth place to Richard Fisher, seventh place to Steve Simon and eighth place to Shaun Bolio.
A special thank you to Bill Drinan of Napa Auto Parts who has donated his time and talent to running this event for the past four years; Dino Mitrokostas, Lenny Goldman and the entire staff of Dino's Sports Bar for their support and generosity with hosting the event; Michael Flaherty, who donated his second place winnings; Dennis Donohoe, winner of the 50/50 raffle, who donated $100 of his prize; Alex Crowley of NPR will feature our event on an upcoming Cape & Islands NPR broadcast (90.1 and 94.3 PM - All Things Happening) and all of the players who helped make this event a great success!
Our deepest gratitude to our tournament sponsors: Napa Auto Parts, TD Bank, Chalker Heating & Fuel, Denmark's Cleaning Services and Mr. T's Auto Repair.
 Wanted: A Few Good Men
For the "Win A Worker" Ladies Luncheon and Service Auction
Calling all men! If you have a talent - whether it be plumbing, painting, photography, carpentry, sailing...you name it...we would love your help! The A.L.S. Family Charitable Foundation is looking for 20 men willing to volunteer their skills and talents for a few hours in support of families living with A.L.S. in New England.
We will be hosting "Win-A-Worker" Ladies Luncheon & Service Auction on June 27, 2010 at South Cape Village.
Men interested in volunteering must be available on the day of the auction, as well as able to provide four hours of service to the winning bidder on a later date.
Proceeds from the women's-only event will help fund the Foundation's Patient Services programs which assist A.L.S. patients and their families living with Lou Gehrig's Disease.
For more information or if you are interested in participating please contact the A.L.S. Family Charitable Foundation at 508.759.9696 or e-mail [email protected] by March 15, 2010.
April 7: A.L.S. Awareness Day on Beacon Hill
Registration is now open for the 2010 Massachusetts A.L.S. Awareness Day on Beacon Hill. Join A.L.S. patients, family members, and advocates at the State House in Boston on Wednesday, April 7, for this incredibly important event. The state A.L.S. Registry has had its funding decreased to an insufficient level, and we must fight for it!
The A.L.S. Registry allows for the identification of all cases of A.L.S. in Massachusetts by the Department of Public Health. It will help researchers study both the incidence and prevalence of the disease, identify trends, and develop additional research studies related to better understanding the disease. In short, the A.L.S. Registry in Massachusetts brings us one step closer to a cure. $150,000 of state funding for the A.L.S. Registry has been included in previous budgets, however, this year the ALS Registry budget has been cut down to less than half of that. $150,000 is needed for the Registry to be done effectively and if funding continues to decrease, the project is at risk of suspension and we simply cannot allow that to happen.
A.L.S. Awareness Day is your chance to be heard! Please attend on April 7th, meet with your Senator and Representative, and be a voice for the entire A.L.S. community! You can register online by clicking here. For more information, email [email protected].
April 20 Registration Deadline:
Raise Money for A.L.S. at the
Falmouth Road Race
The A.L.S. Family Charitable Foundation is putting together a team of runners for this year's Falmouth Road Race to be held on Sunday, August 15.
Registration for the race will open on April 20 and close on May 5. Please visit www.falmouthroadrace.com during those days to download a registration form. Entries must be received to the race office by May 5. A lottery will be held to select the field of runners, except for Falmouth residents who are guaranteed a number. If you are interested in running but are unable to get a number, we have five numbers available for runners interested in fundraising for our Foundation.
Please contact us at 508.759.9696 or email [email protected] if you are interested in participating or would like to make a donation. |
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Patient Resources
 Scholarships Available - Apply Now!Scholarship Season is upon us! If you, or someone you know, is the child of a patient battling A.L.S. who lives in New England, they are eligible to apply for a scholarship from the A.L.S. Family Charitable Foundation. Download the application here.
 Nurturing Nest Inn -
A Break for Caretakers
This Inn provides respite care for families and caregivers while offering a pleasurable vacation spot on Cape Cod for their elders and people with disabilities. Unlimited personal care is available to guests so that they may immerse themselves in all of the wonderful seasonal opportunities that Falmouth and the Nest have to offer. Visit www.nurturingnestinn.com for more information.
Check Out Our Newly
Renovated Website!
Share Your Story in a Documentary on A.L.S.
A local college student (Worcester, MA) is working on a video documentary about A.L.S. and needs families, doctors, caretakers, fund raisers or really anyone who has been touched by this horrible disease to participate in the film. After losing her grandfather to A.L.S. in 2005, Danielle knows how hard it can be to see someone you love suffer. After her grandfather passed, she wanted to make people aware of this disease and educate them since so many people don't understand what it means to have Lou Gehrig's Disease. This documentary will require those she speaks to, to be appearing on camera. Please contact Danielle Wise at [email protected] if you are interested in participating. |
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The A.L.S. Family Charitable Foundation, Inc. , is a registered 501(c)(3) non-profit organization dedicated to helping those living with the disease today, and finding a cure for tomorrow. We raise funds for critical A.L.S. research and patient programs.
For more information on the A.L.S. Family Charitable Foundation, Inc.
call 508.759.9696 or visit www.alsfamily.org. |
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