September 2012

IN THIS ISSUE

 

What's News at

Guardian Nurses??  

 

Why Doctors Do Not Want to Have Bad News Talks
 
52 Weeks for Women's Health: New Software App
 

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 What's New at
 Guardian Nurses

Long Will Emcee at PA Women's Conference    
 
The Pennsylvania Conference for Women, will take place on Tuesday, October 2nd, at the Pennsylvania Convention Center in Philadelphia and Betty Long will be returning as emcee of the Health and Wellness Pavilion.  (Billy Crystal, watch out!)
 
The conference is the largest women's conference in the state, offering a jam-packed day of community and connection, information and inspiration, motivation and momentum. 
 
Two of this year's keynote speakers are Arianna Huffington, president and editor-in-chief of the Pulitzer Prize media group, Huffington Post and Sonia Sanchez, award-winning poet, activist and scholar.
 
So if you're planning to attend the Conference--and we encourage you to do so---stop by the Health and Wellness Pavilion and say hello to Betty! 

 

New App for Women's Health
 
The National Institutes of Health (NIH) recently announced a new software 'app' for women's health. 
 
The online resource is intended to be an easy to use mobile app and website offering a year's worth of practical, research based health information for women.  Each will will highlight a new topic to guide women toward a healthier lifestyle. Personal records and goal-setting features can help users stay on track.   
 
Entitled "A Primer for Women's Health: Learn About Your Body in 52 Weeks," the app can be downloaded to iPhone, iPad or Android devices.  
 
Pretty cool!  
 
Who Knew??
 
September is

Through the course of our work here at Guardian Nurses, we often accompany patients to physician appointments.  That gives us a 'front row seat,' if you will, on the conversations that are going on between patients and their providers. 

 

We know that being a physician, particularly an oncologist, is an emotionally demanding role.  Telling someone they have cancer is a difficult responsibility as is explaining to a family that their elderly mother is critically ill and unlikely to get better. Telling someone his prognosis even more emotionally demanding.  Understandably, no one wants to be the bearer of bad news.

 

Still, the conversations need to happen. We have seen some physicians do it better than others.  The information that we share below is intended for you to understand what the 'reasons' (misconceived as some may be) that doctors don't have bad news talks.  We'd like you to keep this information in the back of your head---just in case---if you ever have the chance to support someone who is hearing bad news, you can help them get the information she needs from her physician. 

 

    

Have a great September!! 

 Betty

  Betty Long, RN, MHA

 President 

         Guardian Nurses Healthcare Advocates 

 

 

In July 2012, two physicians (Dr. Jennifern W. Mack and Dr. Thomas J. Smith) published an essay in the Journal of Clinical Oncology entitled, "Reasons Why Physicians Do Not Have Discussions About Poor Prognosis, Why It Matters, and What Can Be Improved."  In their essay, they identify the five (misconceived) reasons and suggest that physicians support each other in having difficult conversations with patients about their prognosis.  
 
1.  It Will Make People Depressed 
Not true. And the research proves it.  Most people---90% in most recent surveys of patients with cancer---want to know their prognosis.  In the 2008 "Coping with Cancer" Study, patients who reported having end of life discussions had no higher rates of depression or worry. 
 
The essayists suggest that physicians who ask "What do you know about your illness" and "What do you want to know?" allow patients to express their own wishes about the information they want.
 
2.  It Will Take Away Hope
Not true. Evidence suggests that hope is maintained even with truthful discussions that teach the patient that there is no chance of cure.  Physician honesty, particularly with difficult news, may actually help patients to feel more hopeful.  The authors suggest that hope is "derived not from prognostic disclosure but rather from the caring patient-physician relationship."
 
3.  We Don't Really Know A Patient's Prognosis
True, but according to the essay, oncologists are often able to formulate a reasonable prognosis or a range of possible outcomes that can bring the patient's understanding closer to the truth.
 
Though no one knows precisely how long a patient has to live, physicians can engage patients when discussing prognosis by asking "Can you tell me what you are taking away from this conversation?"
 
4.  Talking About Prognosis is not Culturally Appropriate
Not true. It is true that patients of different ethnic and cultural backgrounds often have different preferences for information, but that should not dictate communication with individual patients.
 
The authors suggest that physicians who want to know their patients' preferences for prognostic information should ask!
 
5.  We Do Not Like to Have These Discussions
Bingo.  It's hard to break bad news. No one likes that job. It's stressful, emotionally draining, and when you care about your patients, or have long-term relationships with them, it's particularly hard.
 
The authors believe that having difficult conversations DO matter---it can improve care, give patients more realistic choices and reduce the rising cost of care.  And so do we.
 
Patients deserve the right to know their prognosis because it supports their ability to make decisions that are right for them.
If you find yourself involved or supporting such a conversation, think about that, please. 



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