Monday Memo:

News for the week of January 30, 2012 

Contents
National News
Arizona News
Featured Resources
Help Raising Special Kids
Events and Activities
Be a Parent Leader
Quote of the Week
Free Trainings and Workshops

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January 30, 2012 

Boy clapping 
 

Congratulations to Susan Voirol on her nomination for the 2012 Educational Mentor of the Year award by the Ahwatukee Chamber of Commerce. As a member of Raising Special Kids Board of Directors and an educational professional in the Tempe Union High School District, Susan has demonstrated a passion for advancing quality and standards in special education and for students with disabilities. The Chamber's Day of Champions event recognizes exceptional leadership, innovation exhibited and shared with the community. Winners will be announced at the Chamber Day of Champions Breakfast on Friday, February 3rd.

National News

 

Biennial Budget Proposed

House Budget Committee Chairman Paul Ryan (R-WI) and others introduced legislation H.R. 3577 that would move the federal budget from an annual to a biennial cycle. House Rules Committee Chairman David Dreier (R-CA) introduced his own biennial budgeting bill, H.R. 114. Proponents claim having a 2-year budget cycle will lead to more thoughtful and deliberative budgeting and allow more time for Congressional oversight.  Visit the Center on Budget and Policy Priorities (CBPP) website to learn more about H.R. 3577.

 

 

Doctor Referrals to Specialists Increasing

A study published in the Archives of Internal Medicine found that the likelihood that a doctor referred a patient to another doctor, often a specialist, nearly doubled from 1999 to 2009. Read more.

  
Arizona News

 

First Things First Regional Councils Seeking Applicants

Are you passionate and determined to make a difference for young kids in your community? If so, First Things First needs you! They are currently looking for volunteers to serve on the local First Things First Regional Partnership Councils.

There are 31 Councils statewide that identify the needs of children under six in their communities, work with community stakeholders to establish priorities, and determine strategies to fund. Beyond these funding decisions, the regional councils build collaborations with local partners to help ensure the most efficient use of resources and achieve positive outcomes for young children.

Each council member is expected to serve a four year term, live or work in the region they wish to represent and be willing to dedicate a minimum of ten hours a month to the position. If this sounds like something you would like to do, please go to the First Things First website and apply today.

 

 

Hospitals Challenged by Legislature's Cuts to AHCCCS

Rising numbers of uninsured patients are seeking free or reduced-cost care in hospital emergency rooms. Arizona's three largest hospital systems are leaving a statewide hospital lobbying group over concerns about how the group represents the large hospitals on legislative and regulatory issues. Read article at azcentral.com 

 

Follow the development of policy changes regarding AHCCCS in this document on the AHCCCS website Tracking Arizona's Medicaid Reform Plan AHCCCS Activities

 

AHCCCS Activities on News & Updates webpage

Updates from Thursday, Jan 26, 2012

AHCCCS has updated its analysis on Medicaid expansion scheduled to be effective January 1, 2014, pursuant to the Affordable Care Act (ACA). Note, these estimates are based on information available at this time and should not be considered definitive as there remains a number of uncertainties. Federal guidance regarding a number of issues is forthcoming and is expected to have an impact on these estimates. Continue to check the website for updates to this information.

ACA Prelim Estimates [40KB]

 

 

Legislative Developments

 

WATCH LIST:  SB 1258 (third grade promotions; exceptions).

Sponsor is Senator CrandallThis bill entirely omits a parental exemption, which means parents have no choice in whether their child is retained or promoted in third grade, effective next year.  For students receiving special education services, the bill has no provision for the IEP team to determine placement, and mandates the student can only "move on when reading."   

 

This was a busy week of hearings and bill introductions.  About 1100 bills have been introduced. Here are some notes from the past week:

 

HB 2655, DD Services; Providers; Monitoring,

Passed in the House Health and Human Services Committee. 

This bill would reduce monitoring visits to once a year for provider agencies who achieve a score of 95% on their last monitoring visit; and once every three years for provider agencies granted "deemed status."  The Arc of Arizona and the Arizona Center for Disability Law were opposed.  AHCCCS was neutral on the bill, but expressed concerns.  Even though the bill passed the Health committee, many members had questions and asked for a stakeholders meeting.  Several stakeholder groups expressed concerns over granting a three year period without monitoring for health, safety, and consumer issues. 

 

SB 1061, National School Lunch Program; Optional,

A bill to allow school districts to opt out of the free and reduced price school lunch program passed the Senate Committee of the Whole and is headed for a final vote in the Senate. 

 

New bills:

 

HB 2696 (vulnerable adults; financial exploitation).

Sponsor is Representative Ash.

 

SB 1250 (health insurance; interstate purchase). 

Sponsor is Senator Barto.  This is a slightly revised version of the same bill (to eliminate health insurance mandates) that the Governor vetoed last year. 

 

SB 1261 (preschool programs; charter schools).  Sponsor is Senator Crandall.  This bill authorizes charter schools to provide a preschool program for children with disabilities.

Featured Resources 

 

Online tool for tracking legislation

Check out E-lobbyist.com for a convenient way to stay on top of issues that are important to you.

 

 

Family Caregiver Alliance

State-by-state resource to help locate government, nonprofit, and private programs in your area. It includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and more.

 

 

Overview of education/disability laws

This article provides a convenient overview of laws protecting students with disabilities.

 

 

Integrated Employment Toolkit

From the Office of Disability Employment Policy in the United States Department of Labor

Resources include tools and strategies to help youth and their families access the full range of support available to prepare them for successful transition into integrated, competitive employment.

 

 

Autism Speaks Resources

Baker Summer Camp Scholarships

Autism Speaks Baker Summer Camp Program will select eligible camps to identify scholarship campers and offers up to $5,000 in scholarship funds for campers with Autism Spectrum Disorder to attend a summer camp.

Applications are due March 5.

Visit this page for more information.

 

Visual Supports and Autism Spectrum Disorder tool kit

Provides guidance to parents, families and providers about how to utilize pictures, photographs and other visual supports to improve communication for children, adolescents and adults who struggle with understanding or using language. For more information visit here.

Help Raising Special Kids Make a Difference 

Zachary modeling his suit

Zachary and Aimee

Though this dashing young man manages to dress for school every day like he just walked off the cover of GQ (his own idea), he insists his goals for the future lie in engineering and science. With plenty of confidence and enthusiasm, Zachary is ready to make his mark on the world.

His proud mother, Aimee, has been thrilled to watch him grow during the past year since they moved to Arizona. "He has made so much progress," she said.

There were many adjustments to make moving into a new school system and coping with medical crises which resulted in several new diagnoses.

"I felt pretty lost, and I was searching for resources," Aimee commented. After a therapist recommended Raising Special Kids, Aimee was matched with a parent mentor who had experienced disability issues like Zachary's.

Aimee attended several workshops on Positive Behavior Support and training about IEPs.  Aimee was also provided assistance with putting an appropriate IEP in place for Zachary. "It was so helpful to have that support. It really helped me with my confidence and being successful in the special education meetings."

Raising Special Kids needs your help to serve more families like Zachary and Aimee's. Please make your donation today through our secure online system. A donation of any amount is greatly appreciated.


 

Events and Activities

 

Action Day at the Capitol & Legislative Training

Sponsored by Arizona Disability Advocacy Coalition (AzDAC)

Tuesday, February 14, 2012

9:00 am - 3:00 pm

Where: 2nd floor conference room, Capitol Towers, 1700 W. Washington St., Phoenix, AZ 85007

Registration required! Free.

  • Hear how Arizona Legislators plan to deal with the continuing budget shortfall.  
  • Learn what disability issues AZDAC will be tracking this legislative session.
  • Join us to be introduced on the floor of the House and the Senate.
  • Observe the Legislature in action.
  • Learn how you can testify on bills from anywhere you have internet capabilities through the Legislative electronic system.
  • While at the Capitol, register to use the "Request to Speak" system. 
  • Box lunch provided. 

To register online please go to http://azdacatcapitol.eventbrite.com.  For questions and/or assistance please contact David Carey at davidc@abil.org or call 602-443-0723. Registration deadline is Tuesday, Feb. 7, 2012! 

 

 

Spofit Fitness Center Grand Opening

Join Spofit on February 24th and 25th as the Virginia G. Piper Sports and Fitness Center for Persons with Disabilities (SpoFit) kicks off their official grand opening celebration! Friday, February 24th will feature various adaptive sports demonstrations such as quad rugby, wheelchair basketball, and fencing.  They will also be providing visitors with an opportunity to try our adaptive programs! Find out more.

Phone:  602.386.4566, Email: spofitinfo@abil.org

5031 E Washington St., Phoenix, AZ 85034  Google Map

Be a Parent Leader 

Help other parents, share your experience and knowledge with professionals, and learn how to advocate for improvement in our systems of care.

For information about Parent Leader Training and opportunities to make a difference, contact Janna Murrell at Raising Special Kids 602-242-4366 or jannam@raisingspecialkids.org.

Quote of the Week 

 

"The family visit really reinforced for me the effects of raising a child with special needs on the entire family and every aspect of life for parents, siblings, and relatives.  What a great and well organized program!  I am confident I will be referring families to Raising Special Kids"

-   Dr. Natalie Guido-Estrada, 

Pediatrician in Physician Residency Program  

Free Trainings and Workshops
To register, call 602-242-4366 or click on the link to register online. 

Unless otherwise indicated, workshops are located at our office in the Disability Empowerment Center (DEC). Please do not wear fragrances in the DEC facilities.

Raising Special Kids

5025 E. Washington St., Suite 204

Phoenix, AZ 85034  

 

Positve Behavior Support - at Family Partners*

February 01, 2012

6:00 PM - 8:00 PM

Training on effective techniques for behavior management.

*Location: Family Partners, 9051 W. Kelton Ln., Ste. #7, Peoria, AZ 85382

 

Getting and Keeping the First Job

February 02, 2012

12:30 PM - 2:30 PM

This workshop will assist families with identifying the importance of employment for youth with disabilities and special needs.  

 

Guardianship/Turning 18, What's Next?

February 02, 2012

3:00 PM - 5:00 PM

Making the decision; understanding the process.  Learn what guardianship involves before your teen turns 18. You will also learn about alternatives to guardianship.

Raising Special Kids works to improve the lives of children with disabilities and special health needs by providing parents with information, training and support.