Monday Memo:

News for the week of October 17, 2011

 

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October 17, 2011 

Welcome to our weekly memo featuring news, tips, resources, and reminders to help you stay in the know.

 

Parents of children birth to 3 years - check out our new workshop: IFSP Basics

See Training and Workshop list below for details.

 

National News

 

 

The Centers for Medicare and Medicaid Services: Consumer Alert
 
The Centers for Medicare and Medicaid Services (CMS) has issued a consumer alert about a website that has the appearance of being an official government website for the Pre-Existing Condition Insurance Plan.

 
This new website - http: / /preexistingconditioninsuranceplan.com/ - is not maintained by any government programs and consumers are strongly urged not to submit personal information. CMS is taking the appropriate steps to protect consumers from being misled.

 
The Pre-Existing Condition Insurance Plan made available through the Affordable Care Act makes health insurance available to people who have had a problem getting insurance due to a pre-existing conditions. The Pre-Existing Condition Insurance Plan:

  • Covers a broad range of health benefits, including primary and specialty care, hospital care, and prescription drugs.
  • Does not charge you a higher premium just because of your medical condition.
  • Does not base eligibility on income.

Individuals interested in the new pre-existing condition insurance program should visit: http://www.pcip.gov/ or call 866-717-5826.

 

 

Panel Says U.S. Should Weigh Cost in Deciding 'Essential Health Benefits'   

By: Robert Pear, New York Times, October 6, 2011

The Affordable Care Act (ACA) calls for the U.S. Department of Health and Human Services (HHS) to decide the specifics of the essential benefit package in the individual and small group market and Exchange plans. An announcement of these specifics by HHS is expected by May 1, 2012. This article reports on the Institute of Medicine (IOM) recommendations to HHS on deciding the essential benefits, including consideration of cost as a significant factor. As HHS goes about this work, Secretary Kathleen Sebelius is planning to provide opportunities for Americans to voice their priorities at "listening sessions."

 

 

Transition in health care

Spotlight on Child Health Issues is a new e-publication for providers, families, and states from  the National Center for Medical Home Implementation (NCMHI). It provides timely medical home resources to supplement the monthly Medical Homes @ Work e-newsletters. The first Spotlight, Transitioning From a Pediatric to an Adult Medical Home, highlights how challenging this transition can be, especially for youth with special health care needs.  

Spotlight highlights promising practices that support families, youth, young adults, and providers and systems changes in states that provide technical assistance, training, and resources to pediatric and adult providers. Mallory Cyr, a young adult with special health needs, shares her transition story. The Spotlight concludes with resources for providers, youth, and families. 

 

 Arizona News

 

 

Child Care Readiness

The Arizona Department of Health Services Child Care Licensing unit has developed information and training for Arizona child care providers in effective preparation for emergency and natural disaster situations. The areas targeted include: 

  • Evacuating children in child care: Developing and maintaining a written emergency plan that ensures health, safety and welfare (shelter in place, lock down and shelter out\host facility), including information which will protect children and staff during emergencies.
  • Reunifying children and their families after a disaster:  Developing and implementing plans, procedures and back-up plans to communicate with children and staff's families and community agencies before, during, and after an emergency. 
  • A focus on children and staff that may have special needs or chronic medical issues and requirements such as transportation, food, or medicine before, during and after an emergency.
  • A plan of action for recovery and for a continuum of care for children and families.

See the "Emergency Preparedness" web page with links to existing statewide emergency communication sites, pages containing guidance and information for basic emergency preparedness, and a new web page containing resources and links to disaster and emergency preparation and training.

 

Featured Resources

 

Helping Families Manage Food Allergy in Schools

Tips and Tools for the Allergist and Nonallergist

Article from Medscape Pediatrics (need to register for access)

 

 

Teaching children healthy eating habits

Nutrition Fun and Games

Here's a website with games for kids and ways to get them excited about healthy eating: www.fruitsandveggiesmorematters.org/?page_id=6.

 

Kids and Gardening

Kids love to dig in the dirt, so why not put that to work, and plant a garden. Helping grow vegetables is a good way to encourage kids to eat them. Here's a website devoted to children and gardening: www.kiddiegardens.com

 

Healthy School Snacks

Kids come home from school or preschool hungry. Here's a website with many healthy, fun, and tasty snack options! www.cspinet.org/nutritionpolicy/healthy_school_snacks.html

 

 

www.healthfinder.gov

Resources on a wide range of health topics selected from over 1,600 government and non-profit organizations to bring you the best, most reliable health information on the Internet. Two features now available in Spanish:

Tu guia de salud

Consejos simples para una vida saludable.

(On this Health Finder Spanish-language version of the Quick Guide to Healthy Living, you will find information on over 40 different health topics-from acupuncture to vaccinations. Each health topic includes small steps and quick tips you can follow to be healthy and stay healthy.)

 

MiBuscador de salud

Busque en healthfinder.gov para encontrar información o recursos que han sido escogidos individualmente de agencias guvernamentales, organizaciones sin fines de lucro y unversidades.

(Health Finder Spanish version has free Spanish language personalized health and wellness information. Enter age, sex, and pregnancy status to get customized health recommendations based on the U.S. Preventive Services Taskforce and the Bright Futures Guidelines.)

 

 

Webinar - Long Term Care

The Arizona Bioethics Network presents another in its series of popular webinars: on October 27, 7:30-8:30 a.m. Ethics consultant Mindy Skelton, APN will lead a discussion of The Ethical Challenges of the 'Revolving Door Syndrome' in Long Term Care. There is no charge to attend, but you do have to register. Learn more about the ABN by visiting their website.

Events and Activities

 

 

Mental Health Courts Roundtable Forum

Mediated discussion of the care and treatment of those with mental illness as their lives intersect with our criminal justice system. Sponsored by David's Hope and the Arizona Mental Health and Criminal Justice Coalition. For more information call 602-774-438 http://www.davidshopeaz.org/.

 

Thursday, October 20, 2011  

5:30 pm - 8:00 pm

ASU DOWNTOWN CAMPUS

Nursing and Healthcare Innovations Bldg. 2 Rm. 110

550 N. Third St. Phoenix, 85004

 

October Phx HFA meeting will feature a spooktacular Halloween Parade!

Thursday Oct 27th, 6:30-8 pm (RSVP required)

Scottsdale Bible Church, 7601 E Shea Blvd., Rm E102, Scottsdale, AZ

Contact: Email: hfautism@cox.net or Website: www.phoenixautism.com

Best meeting of the year! Tons of fun for the kids!

What you need to know:

1. Kids come dressed up in their costumes if they want (but not enough to scare younger kids).

2. Parents bring goodies (for about 30 kids) so kids can trick or treat from you!

3. Parade will be before speakers in parent's meeting room--younger kids first.

Donation of raffle items are requested for this party.

October Speakers are psychologists who are pioneers and innovative thinkers in our schools!

  • Sarah Gentry: Autism Specialist
  • Peggy Oranski: Explorer Middle School Psychologist
    Nationally Certified School Psychologist with a Psychology Specialist degree from Minnesota State University Moorhead.
  • Annie Butler: Sunrise Middle School Psychologist
    Nationally Certified School Psychologist with a Master's degree in School Psychology from Northern Arizona University.  

 

Disability Awareness Fair in Southern AZ

First Annual Sahuarita Disability Awareness Resource Fair

Building an Inclusive Sahuarita

Saturday, December 3, 2011

10 am - 2 pm

Sahuarita Town Hall, 375 W. Sahuarita Way, Sahuarita, AZ 85629

Resources, displays, guest speakers and presentations

 

Free Trainings and Workshops

 

Please register for all workshops. To register, click on the name of the workshop or call 602-242-4366 or 800-237-3007.

Unless otherwise indicated, workshops are located at our office in the Disability Empowerment Center
Raising Special Kids
5025 E. Washington St., Suite 204
Phoenix, AZ 85034
  

 

IFSP Basics   New Workshop!!

October 20, 2011

10:00 AM - 12:00 PM

For parents of children birth to 3 to learn the basics of the Individual Family Service Plan document and meeting process.  

 

Getting and Keeping the First Job - Mesa

October 20, 2011

4:00 PM - 6:00 PM

This workshop will assist families with identifying the importance of employment for youth with disabilities and special needs.

Location: Fire Station 217, Community Room, 10434 E. Baseline Road, Mesa, AZ 85212 

 

Guardianship/Turning 18, What's Next? - Mesa

October 20, 2011

6:00 PM - 8:00 PM

Making the decision; understanding the process.  Learn what guardianship involves before your teen turns 18. You will also learn about alternatives to guardianship.

Location: Fire Station 217, Community Room, 10434 E. Baseline Road, Mesa, AZ 85212 

 

RECENT ADDITION TO SCHEDULE - Peoria location

IEP Basics - Peoria

9:30 AM - 11:30 AM

October 22, 2011

Learn about the purpose of IEPs, parent's role in the process, and how to prepare for meetings.

Location: West Valley Child Crisis Center, 8631 W. Union Hills Drive, Suite #201, Peoria, AZ 85382

Space is limited to 15 attendees, please be sure to RSVP.

 

 

Northern Arizona

Please register by following the links or calling Toll Free 800-237-3007 (or 602-242-4366 from the Valley)

Bully-Free Environments - Flagstaff

October 18, 2011

5:00 PM - 7:00 PM

Learn how to recognize bullying, effectively respond, and build positive solutions.

Location: Institute for Human Development/NAU/Large Conference Room, Parking Lot P-13 off Riordan Road, Flagstaff, AZ 

 

 

En Español

 

Por favor llamar al 602-242-4366 o 800-237-3007 para confirmar su asistencia a los talleres.

Disability Empowerment Center, 5025 E. Washington St., #204, Phoenix, AZ 85034.

Somos una oficina libre de fragancias.

 

Es su Hijo Blanco de Burlas?

October 17, 2011

1:30 PM - 3:00 PM

Estrategias de Intervención para Padres de Niños con Discapacidades. Una forma de abuso en la escuela a través de la intimidación, tiranía y aislamiento.

 

Comprendiendo los Planes 504

October 19, 2011

10:00 AM - 12:00 PM

Aprender acerca del proposito los requerimientos de la Sección 504, las responsabilidades de las escuelas, y las muestras de 504 acomodaciones. 

 

Al cumplir los 18 anos, que sigue?

October 20, 2011

3:30 PM - 5:30 PM

Tutela: Tomando la Decision y Entendiendo el Porceso. Aprenda lo que la Tutela implica y sus alternativas antes de que su adolescente cumpla los 18 anos de edad.  

 

Transicion de Escuela Secundaria (High School)

October 20, 2011

6:00 PM - 8:00 PM

Aprenda como el plan de transicion en el IEP de su estudiante de Escuela Secundaria (High School) puede prepararlo para una educacion superior, empleo, vida en la comunidad y recursos disponibles.

 

 

Help Raising Special Kids Make a Difference 

 

United Way Donations Can Help Raising Special Kids

Raising Special Kids is eligible for donations made through United Way campaigns. Make a workplace donation through your employer using a monthly payroll deduction. Raising Special Kids is a tax-exempt 501(c)(3) nonprofit organization.

United Way pledge cards have a Donor Choice location in which to write Raising Special Kids name and address (5025 E. Washington Street, Phoenix, AZ 85034), or use our United Way Number: 314. Thank you for supporting families of children with disabilities and special health needs!

 

Parent Leadership Opportunity

 

Host Information Table Saturday, October 22nd

Cerebral Palsy Conference - Recent Advances in Medical Treatment ~ Phoenix Children's Hospital, Melvin L. Cohen Conference Center, Rosenberg Children's Medical Plaza, 1920 E. Cambridge Ave., Phoenix, AZ 85006. Raising Special Kids will be hosting an information table at this event from 7:30am to 12:30am. If you are available to assist in hosting the table for an hour or two, please contact Janna Murrell at jannam@raisingspecialkids.org

 

Quote of the Week 

 

"Thanks again for all of your help!  I definitely had more confidence and felt very prepared going into these meetings because of your help and because of Raising Special Kids!"

Raising Special Kids works to improve the lives of children with disabilities and special health needs by providing parents with information, training and support.