Monday Memo:

News for the Week May 23 - 29, 2011

 

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 May 23, 2011 
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Welcome to our weekly memo

featuring news, tips, resources, and reminders to help you stay in the know.
National News 

SSI Savers Act of 2011

Congressman Tom Petri (R-WI) and Congresswoman Niki Tsongas (D-MA) plan to reintroduce a bill by the end of May that would reform the asset limit test of the Supplemental Security Income (SSI) program.

The legislation would increase opportunities for people with disabilities to open bank accounts, build up savings, and work.

Background: In general, eligibility for SSI is limited to those who have no more than $2,000 in assets for an individual and $3,000 for a couple. The SSI test also generally counts all resources deemed accessible to an individual, including defined-contribution retirement accounts, such as 401(k)s and IRAs, as subject to the asset limit. These outdated rules pose a serious obstacle to financial self-reliance. Because beneficiaries of SSI are allowed little savings to fall back on, there is a tendency to rely on government assistance.

Proposal - The SSI Savers Act of 2011 proposes the following:

Increase asset limits to $5,000 and $7,500 respectively, and index those limits to inflation. For recipients younger than 65, the bill excludes retirement accounts, education savings, and individual development accounts from counting against the limit. For recipients 65 and older, it allows retirement accounts up to $50,000 (single) / $75,000 (married) to reduce SSI benefits instead of creating an immediate cut off.

 

Medicaid

There is a call in congress to convert Medicaid to a block grant program (putting global caps on spending). Legislation is moving through the House to remove the maintenance of effort (MOE) requirement for Medicaid in the Affordable Care Act, which could result in states making drastic cuts to Medicaid eligibility levels. The proposals do not address underlying health care spending. Instead, they shift costs onto the states, seniors and people with disabilities.

To assess the human impact of the proposed Medicaid cuts, Families USA produced the report, Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care. This report is accompanied by reports for each state, to clarify the harm these cuts would bring to people in your community. Families USA also analyzed the detrimental effects of removing the maintenance of effort requirement on both seniors and people with disabilities in a fact sheet: Protecting Seniors and People with Disabilities: Why It Is Important to Preserve the Maintenance of Effort Requirement in the Affordable Care Act.

To see how Arizona would be specifically affected, see this fact sheet.

 

Electronic Medical Records

Many families of children with high medical needs eagerly look forward to the day that their child's medical records can be accessed online in a reliable, safe way. As the varied interests in maintaining health records try to work through issues impeding rapid adoption of electronic systems, problems continue to impede progress. Agreement on standards, security and privacy issues, high cost, and universal access are some of the challenges.

PBS Newshour recently on Push for Electronic Medical Records Overlooks Security Gaps.

 

 Arizona News 

Online Search for DDD Therapists

The Division of Developmental Disabilities (DDD) recently launched a new website tool to help consumers and families locate therapy providers. (At this time it is not functional for finding respite or habilitation providers.) Go to this direct link or visit DDD's homepage and click on "Find a DD Service Provider".

 

Nominate a Caregiver

Arizona's Department of Economic Security, Division of Developmental Disabilities is accepting nominations for excellence in care giving. Three Direct Support Professionals and one Direct Support Supervisor will be honored for superior services and/or exemplary work for individuals with developmental disabilities.

Nominations are due by July 15, 2011.

Download the nomination form here. For additional information review this flyer  or contact Miriam Podrazik 602-542-6962 or MPodrazik@azdes.gov

Community Activities & Events

 

Free Conference - Adoption

Friday, July 15, 2011      12:00pm - 4:45pm

Understanding Infant Adoption Training

Sheraton Wild Horse Pass Resort

Learn about adoption as one of the options to an unplanned pregnancy. This training will provide you with information and skills needed to present adoption on an equal basis with other pregnancy options.

 

Saturday, July 16, 2011 8:30am - 4:00pm

Sheraton Wild Horse Pass Resort

"Living Through Crisis, A Journey To Adoptive Placement"

For healthcare and other community providers who support pregnant women and/or infants

With Brenda Romanchik, Birthmother, Adoption Expert & Author

**With Speaker Panels of Birth Parents, Adoptive Parents, Adult Adoptees**

To register: www.iaatp.org. If you have questions call 1-877-774-0111 Jan Cardwell at X1981 or Maria Garcia-Flores at X1980

 

Featured News & Resources

 

Free Soccer Program: The Sunshine League is a drop-in soccer league held every Sunday at 1:30 pm at the Arizona Sports Complex. 3555 W. Pinnacle Peak Rd. Currently they have consumers from the age of 3 to 22 years old. They welcome participants of all abilities, including those in wheelchairs. Everyone is welcome to participate. 

 

Free Currency Reader Discount

The Bureau of Engraving and Printing (BEP) has developed a free downloadable application (app) to assist the blind and visually impaired denominate US currency called EyeNote™. It is a mobile device app designed for Apple iPhone (3G, 3Gs, 4), and the 4th Generation iPod Touch and iPad2 platforms, and is available through the Apple iTunes App Store. EyeNote™ uses image recognition technology to determine a note's denomination. Research indicates that more than 100,000 blind and visually impaired individuals could currently own an Apple iPhone.

There is also a Currency Reader Program whereby a United States resident, who is blind or visually impaired, may obtain a coupon that can be applied toward the purchase of a device to denominate United States currency.

More information is available at http://www.eyenote.gov/ or through email at eyenote@bep.gov.

 

Moving this summer?

If you're relocating, and you have a child with special needs, here's a checklist to help you along the way:

http://www.nichcy.org/families-community/moving

 

 

There is no cost. For more information call Tom, Jill or Megan at 623-561-5445 or 602-670-5003  azsunshineleague@yahoo.com

This Week: Free Training and Workshops

Guardianship and other Options at Age 18

May 26, 2011 3:00 PM - 5:00 PM

Guardianship: Making the decision; understanding the process.  Learn what guardianship involves before your teen turns 18. You will learn alternatives to guardianship.

(Name has changed - formerly called "Turning 18 what's next? Guardianship")

 

En Español

Familias Resistentes

May 23, 2011 1:30 PM - 3:00 PM

La Estructura mas Básica para una Relación de Familia Saludable La habilidad de volver de un trauma o una situación difícil.

Quote of the Week

"You have given me hope and I feel like I can deal with this now, one day at a time. You have helped me so much. I can't describe what a difference you have made for both me and my mother. We have now talked about my child's disability and have accepted that she does have special needs. We didn't talk about it before. We are ready now to start learning more about what we can do to help my daughter. I felt so isolated until I talked to you."

(translated from Spanish)

Raising Special Kids works to improve the lives of children with disabilities and special health needs by providing parents with information, training and support.