Monday Memo:

News for the Week May 9-15, 2011

 

Join Our List

 

Join Our Mailing List

RSK logo 

  
  
 May 9, 2011 
Parents at conference
Collaborative Therapies Conference 2011 

 

With Mother's Day still on our minds, here is a refreshing article on mindfulness mixed with practical, evidence-based advice for minimizing stress. Enjoy the calm.

 

Welcome to our weekly memo featuring news, tips, resources, and reminders to help you stay in the know.

National News 

 

 

Medicaid proposal at federal level

A plan before congress would impose caps on the growth of Medicaid funding in exchange for fewer rules for how states spend the funds intended for poor and severely disabled populations. Medicaid currently covers 53.9 million people with the federal government paying on average about two-thirds and the states one third of the cost. Under the proposed changes, funds could be awarded in block grants to the states. Currently, individuals qualify if they are eligible for the program, but under a block grant a fixed amount of funding is given to each state and it must determine how many individuals will be served within that fixed amount of available dollars. If the plan is approved, the Congressional Budget Office predicts that within 10 years, states would get a third less money than they would receive under the current structure; and by 2030, they would receive half as much.

More info.  

Read more.

And even more.

 

Reports for Monitoring Children's Health Care Services Need Improvement

- Conclusion of the General Accounting Office. Read the summary on Medicaid and CHIP.

 

 Arizona News 

 

Board Member nominated by Raising Special Kids wins award

Michael Remus received the JoLeta Reynolds Award, given for exceptional service in advancing the field of special education at last week's National Institute on Legal Issues for Educating Students with Disabilities.

 

"It is especially meaningful to me that I was nominated by Raising Special Kids, Arizona's Parent Training and Information Center. It is wonderful to have a relationship with them that focuses on working together to help students with disabilities and their parents," commented Remus. "All we do is worth nothing unless we make a difference in the lives of kids. If students are struggling, we must find ways to help them succeed. If students are not making progress, we must find ways to keep them engaged in learning. The future of our world depends on how well we teach our students. Failure is not an option."

 

New ALTCS Liaison appointed

The Division of Developmental Disabilities announced the appointment of Sherri Wince as DES/DDD's new Arizona Long Term Care System Liaison. Wince was introduced has having "an extensive background in developmental disabilities; working in support coordination and supervision, private provider agencies, managed care, Medicaid, ALTCS and systems change." Raising Special Kids looks forward to partnering with Wince as a strong advocate for families.

 

 

Survey for insurance exchange

The Arizona Governor's Office is requesting public feedback as they build Arizona's health insurance exchange, the new affordable marketplace set up under health reform. Up to 750,000 Arizonans may get their health insurance through the exchange, most with tax credits to help them afford coverage. Please complete the survey here: http://www.azgovernor.gov/hix/Survey.asp  and please share this link with others.

 

Notice of Public Forum from Arizona Rehabilitation Services Administration

Department of Economic Security/Division of Employment and Rehabilitation Services

Date: Thursday May 19, 2011

The Arizona Rehabilitation Services Administration (AZRSA) will conduct a Public Forum to provide an opportunity for input and comment regarding the Vocational Rehabilitation policy and programs.

Single copies of the current policies are available by writing to: Christopher Deere, RSA Manager of Policy and Training, 1789 W. Jefferson, 930A, 2NW, Phoenix, AZ 85007.

The Schedule of Hearings and the current policies as well as a list of all policy modifications or clarifications that have occurred since June 2008 are available on their web site: http://www.azdes.gov/rsa/.

 

 

Raising Special Kids 

 

Collaborative Therapies Conference Receives Rave Reviews

Demand for Saturday's Conference on Collaborative Therapies generated a waiting list of parents eager for information on how to help their children. Over 85 parents of young children from birth to five heard from physicians and therapists about information and tips for activities families can use at home to help their children. The audience was engaged by demonstrations of occupational and physical therapy and discussion on topics including advocacy and the parent experience.

"The information I have learned through this one conference has been amazing! The resources, the speakers, all had points that I will be using at home with my child."

 

"Today's event helped me to understand that there is a community of parents and professionals who understand the challenges of being the parent of a special needs child."

 

Raising Special Kids expresses thanks to the following professionals and organizations for their support of the Collaborative Therapies Conference:

  • Miriam Podrazik, Division of Developmental Disabilities
  • Robin K. Blitz, MD, FAAP, Phoenix Children's Hospital
  • Rebekah E. Enfinger, PT, DPT, Phoenix Children's Hospital
  • Missy Thomas, MA, CCC-SLP, Phoenix Children's Hospital
  • Lara Taggart, MS, OTR/L, Phoenix Children's Hospital
  • Corinne Canivez, DSI Southwest Human Development
  • Karl and Elizabeth Freeburg
  • Dana Wayne
  • P.O.P.S.I.C.L.E. Center
  • Arizona Early Intervention Program
  • Division of Developmental Disabilities
  • Southwest Human Development
  • Hope Kids
  • Phoenix Children's Hospital
  • South Mountain Health Care
  • MGA Healthcare, LLC

 

On the news

On Friday Vicky Rozich, a Family Support Specialist, was interviewed by TV 3 about the effect of high gas prices on families of children with special needs.  Many families buy vans to transport equipment and wheel chairs, and require frequent travel for medical appointments and therapies.

 

Events and Activities

 

 

Overview of Medicaid and AHCCCS services and appeal rights from ABIL

This training will provide an overview of Medicaid & AHCCCS, including AHCCCS administrative appeals and hearings and judicial review of administrative decisions. It will also provide an update of the current state of AHCCCS and how the new budget will affect AHCCCS recipients and applicants.

Guest Speaker: Sarah E. Kader - Staff Attorney, Arizona Center for Disability Law

Date/Time: Tuesday, May 17, 2011 - 3:00 p.m. - 5:00 p.m.

Location: Disability Empowerment Center (DEC), 5025 E. Washington, Phoenix, AZ 85034 - Classroom B - 2nd Floor

Please RSVP no later than Monday, May 16, 2011 to David at 602-443-0723. Interested individuals can attend this presentation via teleconference call. For accommodations or alternative format please call in advance.

.

Mental Health Awareness Month

May is Mental Health Awareness Month. A time to celebrate mental health awareness across the nation and to learn the importance of early detection and treatment of mental illness. This is also a time to honor ordinary and extraordinary people challenged by mental illness. Take part and help spread the word that recovery is more than hope-it is a reality!

Resources:

Did you know that 1 in 4 Arizonans have a mental illness? Did you know that mental health is part of your whole health? Learn more and attend some of the following events:

Mental Health Awareness Month Open Houses and Events (also view the Arizona Happenings Events Calendar for statewide May events - go to http://www.azdhs.gov/bhs/updates/eventsCal.htm )

Additional resources:

 

Discussion with Superintendent Huppenthal

When: June 15, 2011 from 6:30-8:30 p.m.
Arizona Autism Coalition Evening Meeting
What: General Arizona Autism Coalition Meeting
Topic: Discussion with Superintendent Huppenthal; future direction of the Arizona Department of Education
Where: Disability Empowerment Center, 5025 E. Washington Street, Phoenix - 1st floor conference room
Questions? email
info@azautism.org or visit www.azautism.org

 

 

Discussion on Social Elements of Blindness

Arizona Industries for the Blind will discuss the psychological, physical and social elements of blindness at the free Faces of Diversity Brown Bag series at noon Friday, May 20, at the Phoenix City Council Chambers, 200 W. Jefferson St.

 

Featured Resources

A list of 25 Parent Tips for Effective IEP Meetings available to download/print

 

Free Dental Services for kids 0-5

In Tempe, Chandler, Ahwatukee and Guadalupe: Thrive To Five is a project of Communities In Schools of Tempe and Kyrene and is funded by First Things First to provide family support services to parents and/or caregivers of children aged birth to five years old.

 

Birth to Five Helpline

Answers to your child development questions. A calm perspective. A sounding board. Call 1 (877) 705-KIDS.

The Birth to Five Helpline is a project of First Things First. Visit their web site to find out about services in your community.

 

 

This Week: Free Training and Workshops

Raising Special Kids, 5025 E. Washington St., Ste. 204, Phoenix, AZ 85034

Please click on the workshop link to register.

 

Understanding 504

May 10, 2011, 1:00 PM - 3:00 PM

Learn about the rules and regulations of a 504 Plan and how it differs from the IEP (IDEA).

 

Preschool to Kindergarten Transition  

May 11, 2011, 9:30 AM - 11:30 AM

Learn eligibility differences and strategies for an effective transition into school age services.  

 

Turning 3, What's Next? AzEIP to Preschool Transition.

May 12, 2011, 9:00 AM - 11:00 AM

Learn how to transition your child from AzEIP services to preschool services provided by the school district.  

 

En Espaņol

Conceptos Basicos del IEP

El 13 de mayo de 2011, 10:00 AM - 11:30 AM

Aprender acerca del proposito del IEP a traves de una vision general del documento y reunion.

 

 

 

Parent Leader Opportunity

 

Help staff an information table about Raising Special Kids at the conference for Down Syndrome: Recent Advances in Medical Treatment at Phoenix Children's Hospital this coming Saturday, May 14, 7:30 am - 1 pm. Contact Janna at jannam@raisingspecialkids.org or call 602-242-4366.

Location: Melvin L. Cohen Conference Center, 1920 East Cambridge Avenue, Phoenix, AZ 85006

 

Quote of the Week

"I hadn't heard of your organization before, and now I just can't believe that there is something as incredible as this out there. I will make sure my agency knows what a positive experience I had and that it may be helpful for many families."

- A professional attending Getting and Keeping the First Job workshop

Raising Special Kids works to improve the lives of children with disabilities and special health needs by providing parents with information, training and support.