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Volume 5 - Number 1                                                                                 September 2010 
In This Issue
University of Illinois Opens State-of-the-Art Dorm for Students with Disabilities
Accessible Textbooks for Students
Helping Students get Proactive about Bullying
Transitioning from High School to College - Students with Disabilities
Bullying - Issues and Answers Report
The 411 on Health Insurance for Young Adults ages 18-30 in Florida
Family to Receive $1.5M+ in First-Ever Vaccine-Autism Court Award
Feeding your Special Needs Child
Workshops & Support Groups



Quick Links 
Journey of Dreams Save the Date card
Teach More Love More logo

 
Miami Dade County Public Schools

 
Miami 211 Switchboard
Please Help Us Help Families in Need 
Donate to Parent to Parent of Miami by Searching the Internet
             Save the date card

On the evening of Saturday, November 6th at the JW Marriott, Parent to Parent of Miami will be hosting our 6th Annual Journey
of Dreams
Benefit. Guests will enjoy a night of cocktails, dining, dancing and
an amazing silent a
uction aimed at generating additional funds to provide much needed hope,help and support for children with disabilities and their families. This year's
event will be emceed by NBC's Emmy award-winning journalist, Willard Shepard.

 

Click HERE for more information!

Spotlight

Parent to Parent of Miami would like to extend a special thank you to ChumpCar World Series for supporting and hosting
this event to benefit our organization!


Starting October 6th - New IEP Workgroups!
Age Specific


Click HERE to view the flyer in English!
Click HERE for Spanish!




Education
University of Illinois Opens State-of-the-Art Dorm for Students with Disabilities


By Jodi S. Cohen


Facility marks new milestone for university, already a leader in disability services

 



Kelsey Rozema, right, jokes with her mother, Mary, while moving into her room in Nugent Hall, the University of Illinois' new dorm for students with physical disabilities. (Lane Christiansen, Chicago Tribune / August 16, 2010)

 

CHAMPAIGN - With very limited use of her arms and legs, Kelsey Rozema has needed her parents' help with most daily tasks - getting out of bed, showering, putting on a coat and even opening a water bottle. In 18 years, they've been apart for only six nights.

So moving into a college dorm this week - and away from the reliance on her family - is even more of a milestone for Rozema than for the thousands of other wide-eyed freshmen arriving this week at the University of Illinois, a ritual that will be repeated on college campuses throughout the country in coming weeks.

It helped that she moved into the university's first new residence hall in 44 years and the most user-friendly dorm in the country for students with severe physical disabilities. As Rozema wheeled into her single room for the first time Tuesday, a disability advocate showed off the features: a wireless pager that will call for help 24 hours a day and a remote-controlled ceiling lift system to transport her from her bed to the in-room bathroom. Continued HERE.

Accessible Textbooks for Students


From the Bookshare September Newsletter

 

Where are the accessible textbooks?




"Good morning students, let's begin by opening our textbooks to page 1..."


Has your child been welcomed to a new school year with a greeting like this? Were they ready with an accessible version of their textbook they could read?


For many students with print disabilities, traditional textbooks are not an option. Accessible versions, like digital books, now provide a promising alternative. Accessible textbooks allow students to listen to words being spoken, read words on the computer screen, look up word definitions and much more.


Until recently, getting accessible textbooks has been difficult. Parents have alerted teachers of their children's needs, contacted textbook publishers directly, and even scanned textbooks into digital formats.

Even with these noble efforts, there are still delays. Some children wait days, weeks, and even months. By the time they receive their accessible textbooks, they are already behind.


IDEA 2004 (The Individuals with Disabilities Education Improvement Act of 2004) created a pathway to providing accessible textbooks more easily. This included the creation of the NIMAC, a national repository for accessible textbooks, and since its inception, Bookshare has helped to provide access to over 1,700 K-12 NIMAC textbooks for qualified Bookshare members with IEPs.


Want to learn more?

Attend the upcoming Bookshare webinar titled, "How to get my child accessible textbooks," and learn:

  • What is the NIMAC?
  • Who is eligible for NIMAC textbooks?
  • How do students get access to NIMAC textbooks through Bookshare?
  • What can parents do to help qualified children?

This webinar takes place Wednesday, September 22, 2010 at 1:00 PM ET, 12:00 PM CT, 11:00 AM MT, 10:00 AM PT. Attend the live broadcast or sign up to receive a post-webinar recording.

Register today!


Helping Students get Proactive about Bullying


By Kathie Marshall


Most of the time, 6th graders arrive in middle school feeling lost and scared, and it takes some time before the bullies and troublemakers have the nerve to separate themselves out from the pack. But last fall at our Los Angeles middle school, trouble was brewing almost from the start.


Students might have been conducting themselves properly in classrooms, but on the yard there was a movement afoot. A group of about 30 boys and girls, organized by a ringleader, initiated a "gang" of their own, with recruited members being "jumped in" during nutrition and lunch breaks. I found out about this around the third week of school when eight or nine students in a class I co-teach gathered around my desk to inform me that they'd had to meet with the deans to discuss the consequences that would follow any continued action. That was our first discussion about bullying.


As the year progressed, many of these initial troublemakers decided it was in their best interests to settle down on the yard. However, a significant number of students, mine included, continued to bully or were victims of bullies. Aware that bullying peaks during middle school, I chose bullying as our theme when it came time to develop a persuasive unit for my students. First, students completed a quick survey or "anticipation guide" so I could tap into their opinions. Then we talked about bullying in general. Continued HERE.


Disability.gov Blog Update: Transitioning from High School to College - Students with Disabilities


By Jean Ashmore, President, Association on Higher Education and Disability (AHEAD)


It's the time of year again when yellow school buses are on the roads, uniforms and school supplies are everywhere, and students and parents alike are excited and anxious about a new school year. Those years when a student switches schools are particularly salient, with much to be learned and encountered in the new school. This is especially true when a young person transitions to college. All college students bring along academic and social experiences and lots of expectations and concerns - none more, in my thinking, than students with disabilities. Let me share some particulars on why college transition may be extra challenging for students with disabilities and give some suggestions to help make this time a success. Continued HERE.


Bullying - Issues and Answers Report


From Disability.gov


Study by the Regional Education Laboratory Northeast and Islands, What characteristics of bullying, bullying victims, and schools are associated with increased reporting of bullying to school officials?, found that many victims of bullying did not report it. The survey data show that 36 percent of bullying victims reported their victimization to a teacher or other adult at their school and that 64 percent of students did not. The study used nationally representative data from a biennial survey of children ages 12-18. See the report HERE


Legislation 
CMF: Gubernatorial Debate Commercial


CMF Supporters:


The Children's Movement of Florida and the University of Miami will be hosting the first ever gubernatorial debate to focus solely on the future of Florida's children on October 16th.


Click HERE to view the new commercial.

 

Click HERE to read the brief story ran by the Associated Press.

 

Click HERE for more information on the debate.

 

News
Just the Facts: The 411 on Health Insurance for Young Adults Ages 18-30 in Florida


Florida Health and Transition Services (HATS) recently announced the release of "Just the Facts: The 411 on Health Insurance for Young Adults Ages 18-30 in Florida." This product is designed to help all young adults, including those with chronic health conditions or disabilities identify, access, and maintain health insurance coverage. Parents, families, guardians, caregivers, and others working with and on behalf of young adults with health care needs will find this information useful as well.


Please note that as new information about the Patient Protection and Affordable Care Act becomes available, the electronic version available through the Florida HATS website will be updated accordingly.

 

Visit floridahats.org for more information

or contact Contact:  Sheila Gritz at sheila.gritz@fldoe.org


Family to Receive $1.5M+ in First-Ever Vaccine-Autism Court Award


Posted by Sharyl Attkisson
 

The first court award in a vaccine-autism claim is a big one. CBS News has learned the family of Hannah Poling will receive more than $1.5 million dollars for her life care; lost earnings; and pain and suffering for the first year alone.

In addition to the first year, the family will receive more than $500,000 per year to pay for Hannah's care. Those familiar with the case believe the compensation could easily amount to $20 million over the child's lifetime.


Hannah was described as normal, happy and precocious in her first 18 months.


Then, in July 2000, she was vaccinated against nine diseases in one doctor's visit: measles, mumps, rubella, polio, varicella, diphtheria, pertussis, tetanus, and Haemophilus influenzae.


Afterward, her health declined rapidly. She developed high fevers, stopped eating, didn't respond when spoken to, began showing signs of autism, and began having screaming fits. In 2002, Hannah's parents filed an autism claim in federal vaccine court. Five years later, the government settled the case before trial and had it sealed. It's taken more than two years for both sides to agree on how much Hannah will be compensated for her injuries. Continued HERE.



Feeding your Special Needs Child


From MyChildWithoutLimits.org


Ensuring that your special needs child is eating a healthy and balanced diet doesn't need to be a battle. Good information goes a long way. Special needs children can often be challenging to feed, but with the right plan you can ensure that your child is eating well every day. We'll help you find the right foods for your child and ensure that your child will actually eat them.


Getting a better understanding of your child's feeding process.




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