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Greetings!
It's an exciting month of national political advocacy, local news and research efforts, and of course loads of food news and events.
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Sign the White House petition to finalize the
FDA's gluten-free labeling rule
If we get 25,000 signatures by November 1st, the White House promises to
review the issue and respond to those who signed the petition. So please add yours today and forward to family and friends! Anyone age 13 and up can sign. Every signature truly counts.
Short form address for cutting and pasting: http://WH.gov/Be7R
Twitter: We need the #FDA #glutenfree labeling rule NOW! Sign the petition to the White House @http://WH.gov/Be7R
American Celiac Disease Alliance
Contact: Andrea Levario aslevario@americanceliac.org __________________________________________________________ |
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Support our local gluten-free entrepreneurs
...especially if they are baking yummy things for us
Donate to the KICKSTARTER campaign for Flour Craft Bakery and help owner Heather Hardcastle get this excellent gluten-free bakery established in Marin this fall!
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Gluten-free sweeps the
Sonoma County Harvest Fair
 Last month we congratulated Mama Baretta's for winning the 2012 Sonoma County Harvest Fair Best of Show for their Salted Caramel Nut Lace Cookies. We've learned that Thai Time Asian Bistro in Santa Rosa, which has an extensive GF/vegan menu, swept up a number of golds, including Best of Show Appetizer for its Floating Market Soup. Read about them both in the Press Democrat article.
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October Events
Some highlights...
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Pasadena Convention Center - - May 3- 5, 2013
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Like Us on Facebook
and you will have access to our frequent updates on news, events, articles, restaurants and products. __________________________________________________________
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 Cooking event in Los Altos on October 13th - Join us!
Did you see the invitation we sent today?
Wonderful FREE gluten-free cooking event at Whole Foods in Los Altos on October 13th from 4-6 PM. BOLD Organics chef Eric Brenner will be cooking up and serving a tempting menu of cozy and comforting favorites that are easy, healthy and delicious: BOLD Organics Gluten Free & Dairy Free Pizzas, Sweet Potato and Poblano Chilaquile with Choptle Salsa , Princess Chicken Stir fry, and Flourless Chocolate Cake (contains dairy).
RSVP: consumerinfo@bold-organics.com . BOLD Organics is a gluten, dairy and allergen-free company that makes four varieties of great tasting pizza.
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Participate in New Stanford Celiac Research
We have a special relationship with Stanford University School of Medicine, where our foundation got its start. A researcher there mentioned that our community's recent participation in their research has been "amazing" and is a key component helping shed some light on celiac disease and autoimmunity.
More on that when the research gets published. In the meantime, below are two more opportunities to jump in and be a part of this important work.
Participation requirements for both studies: - Age > 18 years - Weight > 110 pounds - No history of anemia - In generally good health These are government-sponsored studies to improve the understanding of celiac disease, and not for profit. The studies have been approved by the Stanford Institutional Review Board. For information on participating in the studies, please contact Dr. Arnold Han at ahan2@stanford.edu. For general information about patient rights, please contact 1-866-680-2906. |
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STANFORD STUDY 1
Are you on gluten-free diet for celiac disease?
We are conducting a study to understand the immune system's response, specifically the response of T cells, to dietary gluten. We hope that this study improves our understanding of celiac disease.
We are recruiting volunteers with a known diagnosis of celiac disease on a gluten-free diet.
The study involves:
- One 100cc blood draw
- Ingestion of 4 slices of white bread per day for 3 days
- A second 100cc blood draw 7 days after the first one
If eligible, you will be compensated $200 for your time and any inconvenience once your involvement is complete.
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STANFORD STUDY 2
Do you have recently diagnosed celiac disease?
Do you have active or refractory celiac disease?
We are conducting a study to understand the immune system's response, specifically the response of T cells, to dietary gluten. We hope that this study improves our understanding of celiac disease.
We are recruiting volunteers with celiac disease that has been recently diagnosed and have not yet started (or only recently started) a gluten-free diet, or volunteers with celiac disease that his refractory to a gluten-free diet. This study DOES NOT entail voluntary ingestion of gluten- only blood donation.
The study involves:
- One 100cc blood draw at Stanford Hospital
If eligible, you will be compensated $100 for your time and any inconvenience once your involvement is complete.
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Diablo Clinical Research still seeking
participants for celiac research
and also starting support groups
Diablo Clinical Research in Walnut Creek is conducting a clinical trial locally for celiac disease to look at how effective and safe an investigational medication is. The study will include people who have been diagnosed with celiac and have been on a gluten-free diet for 12 months or more before study entry. To participate in a survey to determine whether or not you qualify and to connect to a study site near you, call Ava at Diablo Clinical Research at (925) 930-7267 or email apaulazzo@diabloclinical.com
They are also starting monthly support groups for various medical conditions and would like to hear from you about what medical condition you are most interested in. Email Kelly Bradshaw kbradshaw@Diabloclinical.com or call (925) 930-7267x244.
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Jennifer Iscol
President
Celiac Community Foundation of Northern California
P.O. Box 1506
Healdsburg, CA 95448
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Gluten and Allergen-Free Expo
Celiac Disease Foundation
