December 2011  

Vol 6, Issue 12       


               Artey Trademark

It's My Heart Newsletter

IMH Monthly Spotlight

                    

 'Tis the season...

 

...to get involved with our annual "Keep the Beat" CHD Awareness Walk! That's right - it's right around the corner and will be in Houston on February 18, 2012. Want to be involved, but not sure about all the ways to do so?

  

You can:

1. WALK! Participate in the walk either as an individual or with a group. Previous participants have raved about how much fun they had and how awesome it was to participate in an event where they could connect with other CHD families and support this great cause at the same time.

 

2. CHEER! Show your support by attending the event and offering encouragement to the participants. You'll help motivate them and get to enjoy the event as well!

 

3. DONATE! You can donate to a participant (or their team) or to IMH.

 

4. SPONSOR! If you have your own company, please consider being one of our sponsors.  This is such an important element in this event and all support is greatly appreciated!

 

5. REFER! Even if you don't have your own business, you can still refer sponsors to this event. If you work for a corporation, we encourage you to consider speaking with the appropriate person to see if they would be willing to be a sponsor. Any referral effort would make a huge difference!

 

*If you decide you'd like to refer a sponsor or offer sponsorship through your own
 company, please contact us at info@ktbwalks.org.  

 

 

To register, donate, or find out more details about the walk, please visit our walk registration site


 

  

Heart Links

 
 
 
 



 


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Sharing our Heart Journeys 
 

We invite you to share your personal Heart Journey story with our CHD community! They will now be featured on our blog site "Learn About CHD."  If you'd like to have yours featured, please include the following in your story: your (or your child's) diagnosis (how and when), your treatment plan, and an update on how you (or your child) is doing now. Please send a picture(s) to go with your story and submit it to info@learnaboutchd.org.  As soon as we have some submissions and get them posted, you'll be able to read them on our blog site.   

December CHD Birthdays

         

Happy Birthday to...

 

 

Jenna Scout ~ Born Dec. 5, 1997
Jenna Scout ~ Born Dec. 5, 1997

 

Dylan Lee ~ Born Dec. 9, 2003 ~ Dylan was born with severe Aortic Stenosis; He had a valve repair in June 2005 and will eventually need his aortic valve replaced
Dylan Lee ~ Born Dec. 9, 2003 ~ Dylan was born with severe Aortic Stenosis; He had a valve repair in June 2005 and will eventually need his aortic valve replaced
Hadley ~ Born Dec. 13, 2006
Hadley ~ Born Dec. 13, 2006
Carley ~ Born Dec. 17, 2001 ~ Norwood 12/2001, Glenn 07/2002, Fenestrated Fontan 10/2003
Carley ~ Born Dec. 17, 2001 ~ Norwood 12/2001, Glenn 07/2002, Fenestrated Fontan 10/2003
Olivia Susan Harvey ~Born Dec. 19, 2002
Olivia Susan Harvey ~Born Dec. 19, 2002
Charlie Tester ~ Born Dec. 21, 2006 ~ Charlie was born with a coarctation of the aorta and was operated on at five days old
Charlie Tester ~ Born Dec. 21, 2006 ~ Charlie was born with a coarctation of the aorta and was operated on at five days old

 

       

  

 

 

 If your child has a January birthday and you'd like it to be included here next month, please submit a picture, name, and birthdate to newsletter@itsmyheart.org by December 20th.  

 

 

 

 

 

 

TCH

 

 

 

 

 

 


CHD in the News
 

First-in-the-Nation New Jersey Newborn Heart Defect Screening Law Already Saving Lives
 

Wednesday, November 9, 2011 

 

NEWTON - Gov. Chris Christie today toured Newton Medical Center and met with the Gordon family, whose two-month-old son, Dylan, is alive because of detection and treatment resulting from New Jersey's first-in-the-nation law requiring newborns to be screened for life-threatening heart defects before leaving the hospital.

  

On Sept. 1, a day after the law mandating inclusion of pulse oximetry testing on newborns became effective, a hospital pediatrician informed Lisa and Bill Gordon of Newton that the test performed on their baby was abnormal and that he had a heart murmur. Dylan was rushed to Morristown Medical Center, where it was determined he needed specialized pediatric cardiac surgery. Dylan was transferred to Columbia University Medical Center, and several days later had the life-saving surgery correcting the abnormality discovered from the newly mandated newborn testing.

 

"As Governor, you sign a lot of bills into law, but it's a rare day when you know a piece of legislation you signed saved a life," said Christie. "As a father of four children, I can just imagine the fear Lisa and Bill endured in those days after the diagnosis. But I can also imagine the relief and joy that overtook their fear when they realized Dylan would be fine. I'm proud to say that New Jersey has led the way in requiring this life-saving test, which demonstrates our commitment to early detection in children like Dylan."

 

"It is because of your law that our son's life was saved, and my husband and I are very grateful to you," the Gordons wrote in a letter to the Governor last month. "We just can't thank you enough for passing this law and we hope that other states will pass this law in the future. Our son Dylan is proof that the test is worth doing."

 

Mrs. Gordon said she hoped to bring greater attention to this important new law by speaking publicly about Dylan's story.  "Congenital heart defects are not easily detected, but among birth defects, they are the leading cause of infant death, according to the federal Centers for Disease Control and Prevention (CDC)," said Health and Senior Services Commissioner Mary E. O'Dowd. Untreated, congenital birth defects may cause physical and mental disabilities, or even death.

"This new requirement solidifies New Jersey's position as a leader in early detection and treatment of children," said Commissioner O'Dowd. "More than 102,000 babies are born in New Jersey each year and we know this simple and inexpensive screening test will save other babies' lives."

 

Since Christie signed the pulse oximetry law on June 2, U.S. Health and Human Services Secretary Katherine Sebelius last month added pulse oximetry to the list of nearly 60 recommended tests for newborns - a list states are not bound to follow but many do. Maryland and Indiana will implement pulse oximetry screening measures next year; other states currently considering legislation include New York, Pennsylvania, Missouri, Tennessee and Nebraska. Minnesota is operating a pulse oximetry screening pilot program at five hospitals in the state.

Dylan was released from Columbia University Medical Center on Sept. 18 and requires a follow-up visit with his pediatric cardiologist every two months.  "Screening all newborns for pulse oximetry allows us the ability to better respond in delivering high-quality care to the most vulnerable of our patients," said Joseph DiPaolo, Director of Operations for Newton Medical Center.  "With this simple, non-invasive test meaning the difference between tragedy or a healthy life for this little boy, there's no question that the law mandating pulse oximetry testing has already proved its necessity," said Sue Calvert, RN, the nurse in Newton Medical Center's Maternity Center who performed the test on Dylan. "Performing this test on each of our newborns simply makes sense."

 

Sponsors of the legislation in the Assembly include Assemblypersons Jason O'Donnell (D-Hudson), Connie Wagner (D-Bergen) and Ruben J. Ramos, Jr. (D-Hudson). Senate version sponsors are Senators Richard J. Codey (D-Essex) and Joseph F. Vitale (D-Middlesex).

 

 

 SOURCE - http://njtoday.net

 

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