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Dear (Contact First Name),
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It's My Heart, Inc. is ready for another explosive fiscal year full of growth and added resources! Today marks the start of our 5th fiscal year, which means we have set a new goals to support our updated Strategic Plan. Here are some of the programs we are excited to share with you: " Sew Heart Masks" - 100% cotton surgical masks made in 4 different sizes to protect those with compromised immune systems. Many Heart Transplant patients and other CHD patients must wear protective masks while out in the public. In order to make it more comfortable and tolerable, Gail Brasser (an Officer of IMH) is spearheading this project. If you have personal connections to quilting/sewing guilds looking for projects to assist sick children, please have them email gail.brasser@itsmyheart.org or click here. CHD Helpline - This program is being piloted here in Houston, TX and will go national starting January 1st. We are currently compiling resources from all over the United States and need your help! You can submit known resources online and in the meantime, continue to also watch our resource page grow on the website! CHD National Walks - There are many CHD Awareness Walk/Runs being planned across the United States through It's My Heart. We encourage everyone to participate with the chapter nearest you. If there is not one near you, we would love to assist you to start one in your area. This fundraiser is a great way to bring awareness to your community and support our cause to continually produce literature for the community and educate professionals about this disease. Use your life experiences to help others who will walk a similar road by spreading awareness and raising support for IMH programs! Grief Groups - With the multiple stresses of life, it is often overlooked that we are dealing with grief on a daily basis. Not only does grief need to be addressed after diagnosis, but also during. Many professionals refer to this as "Anticipatory Grief" which is simply, the grief we deal with through anticipating and dealing with all the "what if's". Every person copes in different ways but don't realize the impact it has on their personal life. It is important to address our fears to provide hope for today and tomorrow. In addition we have also started grief groups for those who have lost loved ones to Acquired and Congenital Heart Defects. If you are interested in organizing these grief groups in your area, please contact the nearest chapter or if there's not a chapter close to you, email info@itsmyheart.org.
As you can see, we have great programs at IMH to support the mission. It all depends on you and your help! Amazingly, after nearly 5 years of growth, we have been able to accomplish unspeakable things that have had a positive effect on thousands of people. It is our goal to replace "thousands" with "million" in just one year from today. I have been asked numerous times, "Did you ever imagine It's My Heart would become this big?" No. I never imagined how large it would become, but I dreamt many times of all that needed to be accomplished. It just so happens that I was not the only one who shared this vision. We can all pat one another on the back for a job well done. However, it doesn't stop here.......we have several more mountains to move......but it is not impossible if we keep working together. I am often reminded it is not what you know, but rather the energy, time and effort you are willing to learn and put into a project... and then it is who you know that becomes helpful too. Never give up on your dreams and continue to search for ways to keep the passion which will fuel your energy and accomplish great and magnificent things.
From the Heart, Corrie Stassen Executive Director |
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| IMH Conference CDs |
A CD of the conference is available to purchase just $5! This price also includes shipping..
Thank you Keith Mabe for making it possible for those not able to attend to still gain all the wonderful insight and knowledge from the conference! Contact info@itsmyheart.org for more information. | |
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| 2010 Hope Calendar |
All profits from the 2010 calendar sales will be donated to It's My Heart and sponsors help offset printing costs. If you can think of a potential sponsor (business or individual) that would be interested in supporting IMH, give us a hand! YOU can help by either forwarding this information or contacting debi@lifesimages.com with the suggestion of a potential sponsor. Sponsors select their month and are given that month's ad space (1 per month), a listing on the back cover, on an extra "thank you" page inside of the calendar, on the Hope Calendar website, and on one calendar date in which you may put a brief text message.
BONUS: sponsorship also comes with a few calendars to use at your business or give away.
DEADLINE IS ASAP FOR PRINTING REASONS however rest assured Debi creates 90% of the ads for sponsors! Debi ~ Life's Images Photography, debi@lifesimages.com, ph 832.257.3880 |
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Dr. Heart to Heart |
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I'm so scared about everything I am hearing about the swine flu. What is real? What is media hype? How do I keep my child from contracting it? H1N1 (aka Swine Flu) is a new influenza virus and was first detected in the US in April of 2009. The cause for alarm is that this virus spreads person to person and since it is new, we have no natural immunity. As a result H1N1 is spreading very rapidly. It is a distant cousin of the regular flu. Since it looks very similar to the 1918 strain, it is probably a mutation. H1N1 was originally called the swine flu because many of the genes found in the new virus are similar to those found in pig influenza. However, further study has proven the case to be very different. This particular influenza has genes that circulate in pigs from Europe and Asia; as well as, avian genes (bird flu) and human genes. While there are many cases of "the flu" each year, it seems to have the most impact on the elderly and the young. However, the first detailed study of US children killed by H1N1 shows a remarkable difference. It "appears to be taking a higher toll on school age youngsters than babies and toddlers" and a much further impact on adults in the 25-49 year old age bracket. So far there have been over 38,000 positive tests in the US with 40 childhood deaths from the H1N1 virus and of those 2/3 had underlying high risk health problems such as epilepsy, Cerebral Palsy or other neurodevelopmental conditions. In those children that were otherwise healthy, secondary bacterial infection played a role in the mortality rate. With that said, the seasonal flu (A & B) kills 36,000 people a year on average. What can I do to protect myself and my family? - Wash your hands (sing 2 verses of Happy Birthday) - Don't touch your eyes or mouth until you have washed your hands - Use hand sanitizer - Stay away from sick people if you can - Crowded places such as malls & churches are good places to get infected. - Wipe down shopping cart handles and seats (or use Lysol spray) - Wear a mask if you are caring for a sick child or adult to help keep the virus from spreading What are the symptoms of H1N1? Honestly, they aren't much different than the symptoms of the "regular flu". - Fever, Lethargy, Lack of Appetite, Coughing, Sore Throat, Body aches, Chills, Headache, Vomiting/Diarrhea. What do I do if my child gets the flu or H1N1 flu? - Call your doctor and have your child tested to see if it really is the flu and which one it is. The regular seasonal flu and H1N1 will be tested for. - See your primary care doc if you have a fever greater than 100.5, sore throat, body aches (and sometimes diarrhea/vomiting). What is the difference in getting the vaccine and using Tami-flu? A vaccine is given to prevent the infection and is made from pieces of "dead" virus or weakened versions that will not make you sick, but instead will stimulate your immune system to make antibodies to the virus. Tami-flu is a treatment for the flu that is given at the onset of symptoms. When will the vaccine for the 2009 H1N1 influenza virus be available? The CDC estimates that approximately 45 million doses of H1N1 influenza vaccine will be available in mid-October. 20 million additional doses will be released in each subsequent week. Is the 2009 H1N1 influenza vaccine experimental? No. H1N1 influenza vaccine will be available in an inactivated injection and a nasal-spray that is live attenuated. Neither is experimental. The 2009 H1N1 vaccines are made using the same methods and facilities used annually to produce seasonal vaccines. The H1N1 is currently undergoing additional clinical trials to determine the correct dosages that are needed for protection. What danger do the vaccines pose to my heart child? Vaccines do not pose any danger to any child, including those with heart disease (unless you have a severe egg allergy). There is a small risk of a neurological condition called Gilluan Barre, but the risk posed by the flu is far greater. Who should be vaccinated? - All pregnant women since they are at higher risk. - All caregivers of children less than 6 months - All healthcare workers - Children over 6 months - 24 years (appears to be the group most affected) - Those between 25-64 years with chronic health conditions that may be at higher risk for complications What should I do if symptoms occur? 1. Stay at home 2. Do not return to school/work until all symptoms are gone for 2 days. 3. Cover mouth when you cough or sneeze - use a tissue or sleeve, preferably not your hands 4. Wash hands frequently (soap and water while singing 2 verses of Happy Birthday) and/or use hand sanitizer Emergency Warning Signs in Children? (seek medical attention immediately) - Fast breathing or difficulty breathing - Bluish or gray skin color - Not drinking enough fluids - Severe persistent vomiting - Not waking up or not interacting - Being so irritable that the child doesn't want to be held or comforted - Flu-like symptoms improve, but return with a fever and a worse cough Emergency Warning Signs in Adults? (seek medical attention immediately) - Difficulty breathing or shortness of breath - Pain/Pressure in the chest or abdomen - Sudden dizziness - Confusion - Severe/persistent vomiting - Flu-like symptoms improve but returns with fever and worse cough *Information for the above article was obtained from: IMH Medical Advisory Board Center for Disease Control http://www.cdc.gov/h1n1flu/ http://www.pandemicflu.gov/faq/swineflu/04.html
Dr. Heart to Heart would love to hear your questions, please e-mail newsletter@itsmyheat.org.
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| CHD Birthdays |
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Lindsay Simpson Tyson Gasaway JaLee Lucas
October 2, 1990 - October 5, 2006 October 5,2007
January 17, 2009
Isaac Smith Melena Abeita Maddox Perez
October 10, 2007 October 13, 2005 October 21, 2008
Raulina Thomas Orion Smithey Austin Flores
October 24, 2003 October 25, 2007 October 25, 2007
Jett Walton Lilli Ferretti
October 26, 2004 October 30, 2008
Is your child born in November? Please send us your child's birthday and picture so we can all celebrate your child's birth with you!
We also want to celebrate all your angels birthday's too! So, please send us their information so we can include them as well! E-mail to newsletter@itsmyheart.org. |
| Family Matching |
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As more and more families gain support from IMH our Family Matching program is bursting at the seams. Did you sign up for family matching while you were expecting a baby? We would love to update your info with your baby's name and date of birth. Has your child's diagnosis changed? We can update that information as well. Has your email changed? We receive many bounced emails from old or no longer working email address. Please send an updated email address if your email address has recently changed or you have not received any matches in a while. Send us positive and negative feedback regarding your match. Our goal is to give you connections to other families in similar situations.
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| Donations |
In Memory of Lindsay Simpson from Heather Vinson In Memory of Lindsay Simpson from Anissa Speight In Memory of Lindsay Simpson from Ronald Novosad In Honor of Jahmair Edwards from Vicki Smith In Memory of Lindsay Simpson from Judy Kersten In Memory of Lindsay Simpson from Richard OBrian In Memory of Lindsay Simpson from Elizabeth Aagesen In "Memory" honor of Lindsay Simpson's Birthday from Lanny, Lauren, and Lana
In Memory of Lindsay Simpson from Pam Swedo In Memory of Lindsay Simpson from Heart of Sailing (Dave McCabe) In Memory of Lindsay Simpson from Dayna Hutchings In Memory of Lindsay Simpson from Susan Blue In Memory of Lindsay Simpson, Joshua's swim buddy In Memory of Lindsay Simpson from Michelle Daniel
In Memory of Lindsay Ann Simpson from Laurie Hutchings
Donations "In Honor Of", "Memory Of", in recognition of a birthday, anniversary or "Just Because" can be made to It's My Heart. Not only will your donation go towards helping those affected by CHD, but also let someone special know you are thinking of them in a very special way. All donations are tax deductible. Your donation will further the work of spreading awareness of CHDs, fund programs such as the Comfort Bags and Care Packages to the hospitals, etc.
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| IMH Happenings |
To learn more about upcoming events or how to get involved, visit our chapters at www.itsmyheart.org. |
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It's My Heart Chapters |
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It's My Heart is dedicated to our mission which is to provide support, spread awareness, educate and advocate for those affected by Congenital Heart Defects by creating alliances with fellow families, hospitals, support groups, and the community. Creating chapters of IMH throughout the country is imperative to our ability in achieving our mission.
The objective of chapter development advances our opportunity to increase awareness, support and thereby advocate for those affected by CHD.
If you are interested in organizing a chapter or becoming a Regional Coordinator in your area, please contact the It's My Heart National Office at (281) 578.7343 or (888) HEART.07 or e-mail chapters@itsmyheart.org.
Check out the IMH Chapter nearest you:
Fresno, California Central Louisiana Indiana Boston, Massachusetts Detroit, Michigan Michigan Northern New Jersey Southern New Jersey Cleveland, Ohio Columbus, Ohio Oklahoma City, Oklahoma Portland, Oregon Memphis, Tennessee Austin, Texas Fort Worth, Texas Houston, Texas San Antonio, Texas Central Virginia
Seattle, Washington
coming soon......... Orange County, California Daytona Beach, Florida
Tulsa, Oklahoma
Southern Florida
Waco, TX
Rhode Island
and many more ..........
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