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Greetings! |
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Is summer really almost over? It's hard to believe that another school year is about to begin and yellow school buses will be spotted along the roads and new best friend's will be made. Unfortunately for the Congenital Heart Defect community, we are reminded to prepare for the possible increase of doctor's visits from the many germs shared at school and faced with fears our school nurses or coaches might not prepared for children with compromised hearts. Going back to school with CHD raises many concerns for caregivers. ♥ Will the teacher notice my child out of breath? ♥ Will my son or daughter get teased about their scar? ♥ Will the school faculty contact me if there are any concerns? ♥ How does my child keep up with school work when absent? ♥ What if there's another scare like Swine Flu? As you prepare for the school year, It's My Heart wants to offer some materials which will better prepare the school and offer peace of mind. 1. CHD Awareness Brochure - meant to educate the general community about the symptoms and facts about CHD. Click here to request brochure(s) online or call 888.HEART.07 to get your copy today. 2. My Heart Bio - a medical journal used to record all information pertinent for a simple reference while filling out forms, doctor's visits or any medical emergency. Click here to request them online or call 888.HEART.07 to get your copy today. 3. Heart Cents Fundraiser - educate your child's school through a simple fundraiser, collecting loose change while bringing awareness about CHD. Click here and submit your child's school online or email heartcents@itsmyheart.org to learn more information about implementing this program today. As the school year progresses, we hope you keep in touch with our website and utilize the many resources constantly added to help make life easier. We also welcome you to attend our support meetings where up to date information is provided by professionals who work hard to enhance the lives of those living with CHD. It is through advocating and awareness, our community will embrace and support the needs for CHD. From the Heart, Corrie Stassen Executive Director |
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Dr. Heart to Heart |
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I am overwhelmed with taking care of my child in the hospital and I feel guilty that I am not with my other children. How do I know they are okay? What can I do? I can't do it all.
Feeling stretched and overwhelmed seems to go with the territory of a child in the hospital. Add the additional burden of other children and you have a guilt ridden situation on your hands. AboutKidsHealth has ideas to help you know if your children are having a hard time and things you can do! "Siblings in the Hospital: Helping Your Children Cope When a child goes to the hospital, the child's brothers and sisters may have a hard time understanding what has happened. They may feel angry, confused, or afraid. They may need extra support from you. This page discusses some things you can do to help your other children while their brother or sister is in the hospital. Different children have different reactions Some children cope by being on their best behaviour, while others act out. The following are all signs that your child may need extra emotional support: - nightmares - problems at school - changes in eating or sleeping habits - being quiet or teary - getting into fights - Feeling angry or confused are common reactions to having a brother or sister in the hospital. Brothers and sisters can feel they may have caused their sibling's illness. Children may also feel they are being punished in some way. Children may have questions while their brother or sister is in hospital Here are some things your children may wonder about: - What is wrong? Will my sibling get better? - Is it my fault that my sibling is hurt? - Could it happen to me, too? - Why wasn't it me? Don't you care about me? - Will my sibling still know me? - Why does my sibling act like that? - Why does my sibling get all of the attention?
Talk to your children Children need to know that it is okay to talk about their feelings, and that they will get support and comfort when they need it. Some children avoid telling their parents what they're worried about because they think that it will add to their parents' stress. Many children know or overhear some of what's going on with their brother or sister. It is helpful to tell children to share their feelings and worries with you, and to ask you any questions they may have. Prepare your children for a visit to the hospital - Talk to them about visiting the hospital. Explain when you will visit, where the hospital is, and how you will get there. It is better to talk to them about things than to have them imagine what might be going on. - Explain how long you will be at the hospital. Tell them when you are leaving. - Talk to them about what they will see such as medical equipment or how their brother or sister will look. Pictures can help. - Tell them it's okay to feel nervous or scared. Help them handle and express their feelings. - Ask them if they have any questions or concerns about the visit. -
Answer questions honestly -Answer your children's questions honestly, directly, and simply. It's okay if you don't have an answer. You can always check with hospital staff. Talk about what is happening by using words that your children can understand. Check to make sure that the meaning of the words you use is clear to your children, especially medical words. Spend time together Parents often spend a lot of time away from home when they have a child in the hospital. When you are not at the hospital, try and plan special time with your other children or call them regularly on the phone so you can keep in touch. Keep a routine It is important for children to feel that some part of their world has stayed the same, even though many things may have changed. Routines help children know what to expect. This allows them to feel that they have some control in their lives. When family and friends ask, "What can I do?" ask that they help your children stick to their schedules. They can take them to things such as piano lessons or soccer games. Help your children feel involved Children benefit from feeling that they are involved in their sibling's care. This means being part of conversations with and about their sibling. It also means being able to help. You can: - Introduce your children to the health care team. Take a tour of the hospital. - Help them start a journal for themselves or to keep as a record for their sibling. - Ask them to choose favourite dolls, books, or music to bring to the hospital to help their sibling be more comfortable. - See if they'd like to paint a picture or do some crafts to decorate the hospital room. - Arrange for the children at home to phone their sibling at the hospital if visits are not possible. This will help them feel connected. - Write or tape-record messages from your hospitalized child and send them home to your other children. The children at home can respond by recording a bedtime story or favourite song. - Share photos and write emails, letters, and cards. If you need more information about coping, contact the child life specialist or social worker with your child's program. Key points When a child goes to the hospital, brothers and sisters may have a hard time understanding what has happened. They may react in different ways. Talk to your other children. Encourage them to ask questions. Answer their questions honestly. Help your children feel involved while their sibling is in the hospital."
Dr. Heart to Heart would love to hear your questions, please e-mail newsletter@itsmyheat.org.
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Quote of the Month |
"Let no one ever come to you without leaving better and happier. Be the living expression of God's kindness: kindness in your face, kindness in your eyes, kindness in your smile."
- Mother Teresa
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| Comfort Bags Officer Needed |
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| Heart Journey - Elijah Marsh |
Heart Journey told by Elijah's mother, Shannon Marsh.

September 14, 2007 my husband and I welcomed our first child, Elijah. He was born a healthy 8 lb 6 oz, full of joy and energy, and looked to be the picture of health. We were sent home from the hospital and our life with our beautiful, joyful little guy began. At his second month check up our world was flipped upside down. Elijah's pediatrician noticed that he was breathing hard. She made a referral to a pediatric cardiologist. About a week later we sat nervously in the pediatric cardiologist's office praying that nothing was wrong with our little guy. Within a few seconds of his EKG, the nurse told us not to move that the cardiologist needed to see Elijah right away. At the end of that appointment, which included a very thorough echo we were told our healthy little boy had a very large VSD and was in the beginning stages of congestive heart failure. We were sent home with medications and more follow up appointments. Our world as we knew it crashed, stopped completely and we prayed every moment of every day that this nightmare was all a dream. At Elijah's 4 month check up it was deemed that his liver and spleen were being affected by his heart and lungs. In addition to that, he dropped into the 5th percentile for weight gain as he simply could not eat enough without being worn out. It was then that the referral for surgery was made. Two weeks later, we headed 3 and 1/2 hours out of town to MUSC so our little one could have open heart surgery to repair his special heart. As we tearfully gave our little guy over to the surgeon we prayed that no other family would ever have to know the anguish we felt that day. His surgery was a success and many prayers led our little one through like a champ. Today we know how blessed we are that Elijah's heart could be mended. He is a thriving 16 month old that brings us joy and laughter. We are so blessed to have been touched by a heart baby!
Do you have a heart journey to share? E-mail newsletter@itsmyheart.org for more details.
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| CHD Birthdays |
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Gracie Heath Reagan Farrow Tyson Schreier Haleigh Hinkle
August 1, 2008 August 8, 2004 August 10, 2006 August 11, 2007
Alexander Bulger Madelyn Mize Sebastian Martin Jillian Lalonde
August 16, 2007 August 18, 2006 August 19, 2006 August 22, 2007
Brennan Gable Shelby Gay Ethan Bradley
August 27, 2007 August 27, 2008 August 2, 2007
Is your child born in September? Please send us your child's birthday and picture so we can all celebrate your child's birth with you!
We also want to celebrate all your angels birthday's too! So, please send us their information so we can include them as well! E-mail to newsletter@itsmyheart.org. |
| IMH Happenings |
To learn more about upcoming events or how to get involved, visit our chapters at www.itsmyheart.org. |
| Donations |
Donation for Ethan Pennington by Jennifer Shepherd In Honor of Ethan Pennington's 1st Birthday!!! by Autumn McDaniel Donate to It's My Heart - referred by Debe Lien contributed by Paul Nguyen
Donations "In Honor Of", "Memory Of", in recognition of a birthday, anniversary or "Just Because" can be made to It's My Heart. Not only will your donation go towards helping those affected by CHD, but also let someone special know you are thinking of them in a very special way. All donations are tax deductible. Your donation will further the work of spreading awareness of CHDs, fund programs such as the Comfort Bags and Care Packages to the hospitals, etc.
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It's My Heart Chapters |
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It's My Heart is dedicated to our mission which is to provide support, spread awareness, educate and advocate for those affected by Congenital Heart Defects by creating alliances with fellow families, hospitals, support groups, and the community. Creating chapters of IMH throughout the country is imperative to our ability in achieving our mission.
The objective of chapter development advances our opportunity to increase awareness, support and thereby advocate for those affected by CHD.
If you are interested in organizing a chapter or becoming a Regional Coordinator in your area, please contact the It's My Heart National Office at (281) 578.7343 or (888) HEART.07 or e-mail chapters@itsmyheart.org.
Check out the IMH Chapter nearest you:
Fresno, California Central Louisiana Indiana Boston, Massachusetts Detroit, Michigan Michigan Northern New Jersey Southern New Jersey Cleveland, Ohio Columbus, Ohio Oklahoma City, Oklahoma Portland, Oregon Memphis, Tennessee Austin, Texas Dallas, Texas Fort Worth, Texas Houston, Texas San Antonio, Texas Central Virginia
coming soon......... Orange County, California Daytona Beach, Florida Seattle, Washington
Tulsa, Oklahoma
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