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PAVE PIPELINE
Winter Edition
December 2011 to March 2012
Vol. 3, Issue 2
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| Click Below for our Upcoming Events!
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| A Youth's Perspective
"The Journey of Willa"
By Alyssa McCormick
Welcome to the journey of Willa, a 15 year old sophomore with an anxiety disorder in her first year in High School. Last episode was Willa's first day at the school. She struggled with feeling safe with all of the other students. This episode she forgets where to go for class and in a panic. She runs and bumps into another student. Willa's journey exemplifies how students with anxiety issues often float from one crisis to another because their fear and anxiety amplify any problem or issue. Join us next time and see where Willa's journey takes her next.
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My Life with Autism
Hi, my name is Tia Marie. I am a highly functioning 22-year-old woman with Autism. This year, my autobiography was published with Tate Publishing! It is entitled, "The Disregarded Child, My Life with Autism." Let me tell you a few things about myself. I currently live with my parents, 17-year-old brother, and a dog (Halo), a cat (Baby Kiwi), and some fish. I love all of my pets, but my favorite animals are cats. Ours was named, Baby Kiwi, because she was the runt of the litter and has kiwi green eyes, in case anyone was interested to know.Read More About Tia and her book
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The Perfect New Year's Resolution:
Join an Effective Team!
If one or more of the following are on your checklist, please consider being a board member for PAVE or serving on one of our committees!
- Assist families with a child or children attending public school.
- Support the work that PAVE does on behalf of individuals and families who experience disabilities in their lives.
- Share my experience with families with disabilities.
- Want to make a valuable difference in our community.
- Meet new people and share my talents and time.
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Greetings!
This winter edition of the Pipeline covers an important time - winter to the advent of spring. Endings and beginnings...a year, a month, a week, they all remind us that taking time for ourselves and our families is important. Now is a perfect time to stop, take a breath, scan this issue and read what you can just for now, click on a link and forward to friends, family members, coworkers and neighbors. Now is always a good time to learn something new or revisit a tip for your family and your future. Above all, we hope you to find peace of mind in the information provided and encourage you to contact us with your ideas. We would love to hear from you if you have a topic you want to see in a future issue, want to contribute a story or have suggestions for how we can improve the Pipeline for you and your family.
Wishing you all the best,
Tracy Kahlo
Executive Director
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Building A Masterpiece: Everlasting Memories Built at PAVE's Annual Event
On October 29, 2011 friends, family, and staff came together to celebrate the "30 Years of PAVE". The Partnership for Action, Voices for Empowerment (PAVE) organization has been available to support families and individuals who have disabilities and special health care needs since 1981. The theme was "Dancing through the Decades" and it set the stage for reaching out to families who have worked with PAVE. Going through our "memory" banks, we contacted families each representing one of the three decades. We asked them five questions exploring the difference PAVE has made in their family's life. Two questions were - "What if there was no "PAVE" to call and what would you like to tell the guests attending "Dancing through the Decades?"
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Dancing Through The Decades: A Historic Evening
"I can't believe this is your first event!" many exclaimed. So true! It was high time to celebrate and showcase the work of PAVE in our communities for the past thirty years to the present. The art deco beauty of the Temple Theatre Ballroom set the stage for the night. The red, black and white theme set the backdrop for the silent auction tables that displayed hundreds of items accentuated by clusters of balloons in prominent locations. The ballroom's three tiers led to the stage where the live auction items were creatively featured. There was a donated Chihuly to a gleaming red wooden kayak to glistening jewelry items. Great sports enthusiast selections and a number of sensational travel experiences to list a few live auction items. Nestled in the main reception area, Emerald City Photo Booth graciously donated their booth, which had a steady stream of people trying on hats, choosing huge eyeglasses, tiaras, masks, and feather boas to wear for their photo strip! Many of these fun moments went into a photo album while others became mementos of the night.
Read More On This Article...
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Team Members Needed on the SRC
The State Rehabilitation Council (SRC) is a citizen advisory c ouncil that supports the Department of Services for the Blind in ensuring that people who have significant visual impairments pursue their goals and dreams, enabling them to participate socially and economically in the community. The SRC is currently recruiting for the following positions: - Business, Industry and Labor;
- Parent/guardian of a blind, multiply disabled individual; and
- A qualified vocational rehabilitation counselor.
If you (or someone you know) is interested in becoming a member of this dynamic and diverse team, you may contact Marla Oughton at the Department of Services for the Blind at 1-800-552-7103 or visit the SRC website at http://www.dsb.wa.gov/about/src.shtml
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| Thirty Ways to Plan for an Emergency
When an emergency situation arises it is important for families to be prepared and well-practiced in what to do. This is especially vital for families who have a loved one with special needs. Preparing for individual healthcare needs and special accommodations can take a little extra preparation. From preparing emergency kits to creating an evacuation plan there are little things families can do to prepare their loved one with special needs for an emergency.
Read More On This Article...
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New Training: Webinars for Families of Infants and Toddlers
As families with infants and toddlers enter the world of Early Intervention it can sometimes be a scary and confusing time. Learning that your child has a developmental delay and needs some intervention can be a stressful time for families. I am so excited to announce that PAVE in collaboration with the Early Support for Infants and Toddlers program has launched a new training series for families of Infants and Toddlers with disabilities that will guide them through the Early Intervention process to Transition into special education preschool services. The PAVE website is hosting the training series "Families are Important" and "Our Next Step" and is available free of charge for families and the professionals that work with our families. Read More On This Article... |
Response to Intervention: Resources for Parents With the school year in full swing and parent/teacher conferences underway, many schools and families are discovering the benefits of the Response to Intervention (RTI) Process. When children begin struggling in school; either academically or behaviorally, RTI is a great way to get them the help they need and identify the reasons why they are expe riencing difficulty (i.e. cultural or language differences, poor attendance, lack or appropriate instruction, learning disabilities). When RTI is implemented correctly and with fidelity schools are able to improve the education students are receiving through research based interventions.
Read More On This Article...
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What is Palliative Care?
Palliative care for children is the active total care of your child's body, their mind and spirit and it offers support for your entire family. It begins when illness is diagnosed and continues regardless of whether or not your child receives treatment directed at the sickness. Effective palliative care requires a broad multidisciplinary approach that includes the child that is experiencing a life limiting condition and/or disease, their family and the professionals that serve them. This is such a sensitive subject not only for families to discuss, but also for professionals. Read More On This Article... |
We're Glad You Asked!

Question My son is really struggling in his 1st grade class. I just went to his conference and it made me want to cry. He is failing almost everything and beginning to display behaviors that are disruptive in his classroom. His teacher explained that they have been using "Response to Intervention" to try to support him and it does not seem to be working. She is very concerned. What can I do? Answer "Response to Intervention" (RTI) is a process based on a student's response to researched-based interventions. (WAC 392-172A-03060) They can be used to determine if a student has a specific learning disability. Some interventions may provide additional instruction, specific high quality materials, and frequent monitoring of a student's progress. These are only some of the interventions that may be used with an individual student. You can and should be a part of the RTI process. If you do not feel that he is making progress, then at any time you can make a formal referral to request a special education evaluation. I know you have already talked to his teacher but I suggest you do so again. Tell her you are making a referral to the school psychologist. Ask her to make a list of accommodations she may already be using to support him. Make sure you have copies of all his test results and his report card, and any medical information that may be important. There is a terrific parent manual that has been put out by the National Learning Disabilities Association. It provides families with great information about the RTI process and things you may wish to ask or to consider. |
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Partnerships for Action, Voices for Empowerment
Administration - Tracy Kahlo, Heather Hebdon, Elma Rounds, Sandy Trujillo, Kady Duggan
360 Military Family Center - Jill McCormick, Sybille White, Stacey Luffy
Community Inclusion Program - Michele Lehosky, Susan Jackson, Sarah Miller
Early Support for Infant and Toddler Program - Debbie Jackson
Family to Family Health and Information Center - Julie Finholm
Parent To Parent of Pierce County - Michele Lehosky, Susan Jackson
Parent Training and Information Program - Vicky McKinney, Vanessa Lewis,
Sherry Mashburn, Anita Partida, Jeanette Stonecipher, Jessica Kaluza, Pat Barkley
Person Centered Planning - Michele Lehosky
Response To Intervention Program - Michaela Duggan
Specialized Training of Military Parents - Heather Hebdon, Adriana Martinez, Kate Mason, Valerie Patterson, Brianna Ybarra
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