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PAVE PIPELINE
December 2010 - March 2011 Vol. 1, Issue 3
Greetings!

This edition conveys the spirited voices of our youth, the wisdom of those beyond that time in their life and the vision of what is possible from all corners of the world. In reading the articles, words like hope, belief, passion, inspiration, determination and empowerment seem to weave a common thread connecting this issue.

 

Embedded in a couple of articles is the opportunity for YOU to share YOUR INPUT! We look forward to hearing from you as we want the PIPELINE to be an exchange of ideas and an opportunity to communicate with each other. Check out the links in the strategic planning and new edge for the conference to share your feedback!

 

We hope you will continue to forward the PIPELINE to friends, coworkers, family and neighbors. You can click on the link at the bottom of every issue "Forward Email" or you can encourage them to enter their own email address by clicking "Join Our Mailing List" at the bottom of each newsletter. We hope you enjoy.

 

Best Regards,

Tracy Kahlo

Executive Director

In This Issue
My Child's Map to Services
Kids Included Together...Is Norm!
Helpful Holiday Tips
PAVE Board and Staff Achieve Historic Milestone
A New Edge to PAVE's Traditional Conference
International Exchange with Representatives from Mongolia
Emergency Preparedness
Embracing Your Sibling with a Disability
Community Transition Program Empowers Young Adult
Personal Caregivers
We're Glad You Asked!

My Child's Map

to Services

  








 Sometimes after receiving a diagnosis of autism or other developmental delays,

 parents are confused

about what to do next.

 This template will help you

 know who to contact and

 how to start getting help

for your child.

Find this helpful tool at

 Family Voices of WA Website


Kids Included Together...Is Norm!

The Community Inclusion Program youth were lucky enough to join the Kids Included Together National Conference in San Diego, CA this September. While there, they learned about many ways to include children in activities in and out of school. When asked what their top highlight was about the trip, the "I am Norm" campaign blurted out of all of the girls' mouths.

 

 I am Norm is a fun and creative teaching tool for educators, club and scout leaders, and other youth organizations. I am Norm is a perfect way to celebrate Inclusive Schools Week! Download the free I am Norm Educational Guide HERE and learn how to win a free HD video camera.

Helpful Holiday Tips 

It is important to make sure the entire family feels comfortable during this time of year. Here are some ideas that may prove to become helpful for this season. 

 

1. Have an Escape Plan  

When things are not working for you and your child, leave before things get worse

2.Time Your Trip

When your holiday involves travel, plan how long you will travel. 

3. Have an Agenda

 Children work well off agendas. If they know what is expected of them, they usually have better behaviors

4. Find a Safe Place

If you are staying at a relative's home look for a place where you and your child can decompress 

5. Comfort

Some children feel OK no matter where they are as long as they have a constant item with them.

 

Read More on These Tips 

PAVE Board and Staff Achieve Historic Milestone

Poll any number of people who are involved with nonprofits and don't be surprised by the often involuntary reactions of these two words - strategic planning. The reactions can range from groans to glazed looks to quiet murmurings of those who enjoy thinking and planning strategically. Why this range? Over the years the nonprofit sector has embraced strategic planning so tightly we have nearly choked out the creative process by following standard methods. Months of toiling followed by endless meetings to produce a document of enormous thought and importance that once done sits proudly on a shelf as testimony to all the hard work. Many a nonprofit staff has at least one story of providing input and can point to the plan on a tour of the organization collecting dust and may have a hard time recalling what they hoped to achieve.

 

Read More On This Article 

 

Tell Us What You Think About the New Plan

A New Edge to PAVE's Traditional Conference

 Since 2000, PAVE has offered an annual conference entitled "You are the Expert" (YATE). It has held its shape all these years as a one-day to a day and half conference located in either Eastern or Western Washington. There is always a keynote speaker and break-out sessions. This format is typical of many conferences offering all who attend the chance to network, interact with presenters and gain knowledge on a range of relevant topics. In response to the economic challenges facing families in WA State in regards to both time and money PAVE has remodeled the conference structure to make it affordable while still offering important information, quality speakers and the chance to network! The format we are experimenting with is bringing speakers to locations that can record the presentation so that people can gather to listen and network with one another while learning.

Read More On This Article

 

 

International Exchange with Representatives from Mongolia

We were notified that ten international professionals and guests of the U.S. Department of State from Mongolia, 2 Interpreters and 2 Administrative English Language Officers were interested in meeting with representatives from PAVE. The World Affairs Council of Seattle hosted the delegation. These professional have been nominated as upcoming leaders in their field and invited to the U.S. as guests of the Department of State on an exchange program entitled, "Disability Awareness & Communication." PAVE was identified by the delegates because "it is their professional counterpart."

Read More On This Article 

 

Emergency Preparedness
For Families of Children with Special Needs
By: Daman Wandke

With the holiday season coming, winter storms sometimes leave us stranded in our home or other places for long periods of time.  As I am writing this article there are 3 inches of snow here in Bellingham, WA. The snow has turned to ice and I am unable to use my scooter to get out of the house because the sidewalks are sheets of ice.  To make emergencies go more smoothly, here are some tips to prepare for when disaster strikes.

 

Read More On This Article 

Embracing Your Sibling with a Disability
By Debbie and Tayler Jackson

Families that have infants and toddlers with disabilities often times have more than one child in the family.  In my household our son, who has a disability is our oldest and we have a daughter two years younger.  She has grown up with a big brother with disabilities and has had her own thoughts and feelings about what it has been like.  Sometimes we as parents are unaware of the burden that it places on siblings to grow up with disabilities in the household.  Often they feel left out or feel that the sibling gets more attention than they do.  I know that from my own experience that my daughter at times felt that the needs of our son were put ahead of her needs, and that she had to carry the burden of his disability.   

Read More On This Article

Community Transition Program Empowers Young Adult
By: Kayla Bailey

 My name is Kayla Bailey. I am 19 years old and I am deaf. I use sign language to communicate with people as well as pen and paper to write back and forth. I go to the Community Transition Program (CTP) in Gig Harbor. The Community Transition Program is a program that you attend after you graduate from High School. It is for Peninsula School District students that are 18-21 years old and have a disability. We learn life, community, and work skills. I am writing this article to tell my story of transitioning. I was a student at Peninsula High School. I was very excited to graduate high school and get my diploma. Graduation day was fun and I enjoyed walking on stage with my class. I was excited and looking forward to going to CTP.

 

Read More On This Article

Personal Caregivers
"Learning Your Strengths and Weaknesses"
By: Michael Dolan

 As children, we are taught that we are responsible for taking care of ourselves by doing everything ourselves.   For people who have a disability, depending upon the severity of it, they are told by their family.  Parents may tell their child with a disability the fact that they will outlive them and they need to learn to be self sufficient.  However, I believe that independence realistically refers to being interdependent with one another because there are and will be certain activities that assistance will be required to complete.   An independent person is one who can do for themselves and have the wisdom to find assistance in the areas they can't do for themselves. An interdependent person knows how to ask for help and create a community of trusting people who they can ask for support when needed. With interdependency and independency, a caregiver of some sort is often needed.

 

Read More On This Article

We're Glad You Asked!
  

Q: My daughter is in fourth grade and has a severe learning disability. For the past 3 years I have been attending her IEPs.  I have always felt pressured to sign the document at the meeting. I have learned that I need time to review it in order to clearly understand it. So I asked for a Draft to be sent to me a few days before the meeting. The teacher did as I requested. However, when I got to the actual meeting there was again changes made to the IEP. I don't know what to do. Could you help me?

Read More On This Article

   360 Military Family Program - Jill McCormick, Candy Reyes, Stacey Luffy
   Administration - Tracy Kahlo, Heather Hebdon, Elma Rounds, Sandy Trujillo, Kady Duggan
   Community Inclusion Program - Michele Lehosky, Susan Larsen- Jackson, Sarah Miller
   Dads Supporting Dads - Michele Lehosky
   Early Support for Infant and Toddler Program - Debbie Jackson
   Family to Family Health and Information Center - Julie Finholm
   Parent To Parent of Pierce County - Michele Lehosky, Susan Jackson
   Parent Training and Information Program -  Vicky McKinney, Vanessa Lewis, Debbie Snyder,
           Sherry Mashburn, Anita Partida, Jeanette Stonecipher, Rhonda Smith
   Person Centered Planning - Michele Lehosky
   Response To Intervention Program - Abby Federici, Tiea Tobey, Heather Hebdon
   Specialized Training of Military Parents - Heather Hebdon, Adriana Martinez,
           Kate Mason, Valerie Patterson, Brianna Ybarra
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