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PAVE PIPELINE
Partnerships for Action.
Voices for Empowerment. June - September 2010
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| Health Links Corner | |
Up to 75,000 Washington children are still uninsured. Often families are eligible for coverage but they just don't know it. Health coverage doesn't just work when your children are sick. It also includes preventive care like immunizations or dental exams. If your children need coverage, check out the link below. The Social Security Income (SSI) income levels are much lower than Apple Health Kids.
If your child is eligible for services as an individual with developmental disabilities (DD) and child qualifies for Apple Health Kids let your DD caseworker know. Your medical coupon will be given a special coding which will allow your child to receive additional therapies medical services and possible medical respite hours.
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| Greetings! |
Everyone hopes a pipeline will efficiently funnel and deliver information into the waiting arms of those most important. In PAVE's case our primary focus is our families and the professionals and community members serving and caring about our families. We are investing in technology to provide you regular communication that will be searchable on our NEW dedicated web page! Doing so means you will be able to find share and use information when your family needs it.
PIPELINE on the PAVE Website
We have a new editorial committee that is made up of representatives from across all of PAVE's programs. They will work together with community members to identify, write, report and share information that we are hearing is important to families. We still plan to offer you information, tips, resources, event announcements, trends and stories that matter on an array of areas from birth to age six, educational issues, transition, well being, military life and more! The nearly instantaneous nature of an electronic newsletter will help us connect with you to keep you better informed and impart timely resources at the click of a mouse. Plus it's much easier to forward to friends, family, neighbors and co-workers! Since our aim is to help you, we in turn hope you pass it on to help another family! We do realize that technology is not accessible by all so if you and/or a family you know still needs a printed version, please call the office and we will gladly add them to our mailing list. We want to provide you and your family with tools and information you can use and share so that you can advocate for what your family needs. Thank you for being a part of the change at PAVE to serve you better! We hope you enjoy the first of what we hope will be many electronic versions of the PIPELINE.
Exectutive Director |
| Self Determination and Transition
By: Daman Wandke | |
 My name is Daman Wandke, and I am the Youth Consultant for PAVE's Family to Family Health Information Center. I am also a junior at Western Washington University (WWU), majoring in Business Administration, Management Information Systems. I have Cerebral Palsy and have become an advocate for myself and other youths with disabilities. When I was in preschool they told my parents that I would never walk or talk and that I needed a communication board. Today, I walk and talk. I also travel doing public speaking to schools and support groups. When I am not studying or doing work for PAVE, I also work for the US Department of Agriculture's Washington DC office, remotely, and I'm the President/Co-Founder of Students for Disability Awareness at WWU.
Read More On This Article |
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| Evolving to Meet the Needs of Families Through Washington State Mental Health Connections | | It was in a meeting with the six Washington State Parent Training and Information (PTI) coordinators that we discovered a large percentage of the calls we receive are from parents seeking advocacy help with conditions surrounding mental health issues in the educational setting. After some research and information gathering the Parent Training and Information Program has developed goals to better meet the needs of families working in educational settings to help their child receive an appropriate education.
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| "The 360 Program Helped Me Feel Hopeful" | |
An Army Family Member, Robin Crout, Stationed at Joint Base Lewis McChord has quoted:
"...After my 1st visit with my navigator, I remember feeling HOPEFUL.
In the process of receiving my son Zachary's diagnosis of Asperger's Syndrome, I contacted Military OneSource who told me about a program through PAVE called the 360 Military Family Center. It was so helpful to meet another military mom who had children on the Autism Spectrum and could tell me her family's story in finding services for her children...
Read More On This Article... |
| Parents As Leaders | |
 Fifteen years ago my first child was born. It was the happiest day of our lives and we were full of hopes and dreams for our child as any new parents would be. Three months after our son was born it was discovered that he had a very serious congenital heart defect and would require three open heart surgeries to keep him alive. After his first surgery, due to some complications, he suffered a stroke. The stroke has left him with some developmental delays and physical disabilities. When he turned a year old he started receiving early intervention services at our community Birth to Three Center.
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| The Elementary to Middle School Transition | |
 For many parents the move from Elementary to Middle school is a time of uncertainty. For parents of children with special needs, the emotions can be even bigger. However, as we know well, our children will adapt to the changes and transitions as well as we do. If we demonstrate that this is an opportunity for new beginnings, new friends, new teachers, and a new school environment; even though they may be nervous our positive attitude towards this change may turn their anxiety and ours into exciting times.
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| We're Glad You Asked! |
 FIRST QUESTION: I have an eleven year old in 5th grade. He has been diagnosed with ADHD and Oppositional Defiant Disorder. He is on medication which the school has been giving to him for the past two years. This year his behavior has escalated. He has 26 behavior referrals and has missed over 20 days of school. Finally the school suspended him for the rest of the school year and I had to go to a Hearing. The Hearing Officer upheld the suspension. There was some discussion at the Hearing about special education services, but the letter I received from the Hearing Officer made no mention of special education. Should I appeal this decision and what should I do about the referral I thought was going to be made?
SECOND QUESTION: I am having major concerns about the transition my child will make to middle school next year. I know it is a scary time for most parents, but my child has had an Individualized Education Program (IEP) for reading and math during most of elementary. No one has mentioned a transition meeting to discuss what will happen next year. Her teacher says the IEP isn't due until October and we can wait until then. What do you think?
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CORRECTION REGARDING SBP INFORMATION:
In the winter version of the PAVE Pipeline we put out information that was not accurate regarding passage of the Survivor Benefit Program and allowing individuals to put SBP into Special Needs Trusts. While there has been movement regarding putting the SBP into a special needs trust, there are still issues. As more information comes forward it will be put into the newsletter. |
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PAVE Staff
360 Military Family Program - Jill McCormick, Candy Reyes, Stacey Luffy
Administration - Tracy Kahlo, Heather Hebdon, Elma Rounds, Sandy Trujillo, Kady Duggan
Community Inclusion Program - Michele Lehosky, Susan Jackson, Sarah Miller
Dads Supporting Dads - Michele Lehosky
Early Support for Infant and Toddler Program - Debbie Jackson
Family to Family Health and Information Center - Julie Finholm
Parent To Parent of Pierce County - Michele Lehosky, Susan Jackson
Parent Training and Information Program - Vicky McKinney, Vanessa Lewis, Debbie Snyder,
Sherry Mashburn, Anita Partida, Jeanette Stonecipher, Rhonda Smith
Person Centered Planning - Michele Lehosky
Response To Intervention Program - Abby Pruitt
Specialized Training of Military Parents - Heather Hebdon, Adriana Martinez,
Kate Mason, Valerie Patterson
Partnerships for Action. Voices for Empowerment. |
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NON-DISCRIMINATION STATEMENT:
It is the policy of PAVE that all of the programs, employment practices, and activities of the organization or any of its contractors, vendors, grantees or volunteers will be conducted without regard to any person's race, color, national origin, marital status, disabled or Vietnam era veteran status, sex, genetic information, disability, religion, creed, age, sexual orientation, HIV/AIDS, or any other protected class. |
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