International WAGR/11p Deletion Syndrome Association

putt putt

You're invited!

To a very special event

 dell pool

 

Join us!
 

Event Name:

WAGR Weekend 2012 

Date: July 20th - 22nd

Location:

Gaithersburg, MD 

Contact: Shari Krantz for more Information
Hotel Information
SpringHill Suites

  

SpringHill Suites by Marriott  

9715 Washingtonian Blvd.

Gaithersburg, MD 20878

(301) 987-0900 or

 (888) 287-9400

 

Ask for the IWSA group rate $69.99/night (double beds)

limited availability

 

Hotel Website 

Boherer Park

506 S Frederick Ave
Gaithersburg, MD 20877

 

Click here for additional park info.

Join Our Mailing List!

Dear IWSA families,

 

Time to make plans to attend WAGR Weekend 2012 in Gaithersburg, Maryland, July 20-22.
 
WAGR Weekends are fun, informal gath­erings where we get to meet with each other in person. It's wonderful to spend time with other families who know just what your life is like. And meet­ing each other's children is the greatest! Our kids with WAGR get to meet other kids who are "just like me," and their siblings get to see that they're not alone either. For many families, it's a rare op­portunity to just relax, reconnect with friends and make new ones!
 
Plans are all set for WAGR Weekend 2012 and we hope you plan to join us this year! We're returning to Gaithersburg, Maryland--in the suburban Washington, DC area. We've secured a great rate at a hotel that has an indoor pool and provides free breakfast, reserved our meeting and play space, and are anticipating another fantastic weekend for our families. Members of the National Institutes of Health WAGR/11p Deletion studies research team will join us for our Saturday morning informal meeting and will be available to chat privately with interested families as well. At Bohrer Park, the airconditioned facility where we will gather on Saturday, we reserved meeting space as well as the gymnasium. We'll have volunteers to help supervise and play in the gym with the kids. The park also features a wonderful waterpark/pool (with a separate pool for little kiddies), puttputt golf course, skate park, and outdoor walking paths. Both lunch and dinner will be served at the park, which is just a few miles from the hotel. Friday evening, the moms get together and then on Saturday evening, it's the dads turn!
 
Options for Sunday activities and arrangements to tour the NIH are underway and will be shared once plans are in place.
Washington, DC is an easy 20-minute drive from the hotel and the area's Metro transportation system has a station just a few miles from the hotel--and you can ride the Metro into DC to see the sights!
 
COMBINE NIH STUDIES WITH WAGR WEEKEND
Consider participating in the NIH WAGR Syndrome/11p Deletion studies and attending WAGR Weekend all in the same trip. The National Institutes of Health is located in Bethesda, Maryland, a 10-minute drive up the highway to the hotel in Gaithersburg. For information about the NIH studies, please contact Dr Joan Han at hanjo@mail.nih.gov or Amanda at amanda.huey@nih.gov
 
For more information about WAGR Weekend and how to register, visit the link below on the wagr.org website

 

Please RSVP today by visiting www.wagr.org so we will have accurate counts for meals, park tickets, etc. 

Financial Assistance available

 The IWSA has budgeted $3,000 to assist families who would like to attend WAGR Weekend but may have difficulty with costs associated with travel, hotel, etc.  Click on the link below if you and your family would like to attend but need help.  Requests for financial assistance must be submitted by

April 1, 2012

 

http://www.wagr.org/wagrweekendassistance.html

ww11 groupDon't miss out on this great opportunity to join other WAGR families for a weekend of fun, information sharing and relaxation.