Int'l WAGR Syndrome Association

Online News - December 2010
International WAGR Syndrome Association


P.O. Box 392
Allen Park, MI 48101
Dell - ask letter prep
"Thanksgiving Stuffing" - Julie Dell and family stuff the End of the Year Ask letters on Thanksgiving Day.
 Become an Asker.....and a Giver   
by Shari Krantz
 

For many years I have supported numerous local charities, activities, and events.  There was never a question whether I would buy Girl Scout cookies, raffle tickets, pizza kits, or magazine subscriptions.  Neighborhood kids and local businesses could always count on me to help out with a purchase or donation.  I never gave much thought to how the money would be spent, who would manage it, or how much was being raised.  That all changed when I became involved with the IWSA.

 

As a non-profit organization, the IWSA relies solely on donations and volunteers to carry out its mission.  In my role as an IWSA board member and WAGR parent, I am involved with planning and budgeting as well as many other organization tasks and projects.

 

Our biggest event each year is WAGR Weekend.  As the host family for WAGR Weekend 2009 and 2010, I naively volunteered to raise money to help offset some of the event costs.  I had quickly gone from being a giver to being an asker.

 

At first this new role was uncomfortable and uncharted for me, but it became my mission.  Feeling very passionate about our cause, I turned to family, friends, and my business community for financial support.  I was completely overwhelmed by the generous and compassionate response.  The IWSA not only received monetary gifts and offers for volunteer assistance at WAGR Weekend but donated items like water bottles and gifts for the kids.  I was also afforded the opportunity to share my personal experiences of raising a WAGR child.  I found that most people who support charities prefer to give to organizations that they have a connection to--ones where they know the people it helps, the services it provides, and that the money is used to serve a great need.

 

IWSA board members and officers are also tasked with developing and encouraging participation in our fundraising efforts.  The variety of donation methods has increased tremendously through use of the Internet and social networking sites.  You can continue to contribute to the IWSA through the United Way, PayPal, Network for Good and Guidestar.  

 

We know it takes a village to raise a child.  We are learning that it takes many villages to support the missions and goals of organizations like the IWSA.  Like I did, consider being an asker--share your story and ours--and help the IWSA continue to serve families facing the challenges of raising and caring for children and adults with WAGR Syndrome.

 

Please consider sharing our End of the Year Ask letter with your family and friends this Holiday Season. 

 

Click here to view a recent newspaper article on the IWSA.

WAGR Weekend 2011
July 15-17, 2011

Holiday Inn - Southgate, Michigan
17201 Northline Road
Southgate, MI 48195
Phone: 734-283-4400
WAGR Weekend room rate $87.99/night
Limited rooms available - first come, first served

Click here to RSVP today
Holiday Inn Priority Club members will receive breakfast coupons

To learn more or sign up, click here

 


 


 

 



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The IWSA board and officers would like to wish you and your family a very Merry Christmas.   We hope your new year is filled with happiness, joy and good health.

Thank you for your continued support!
 
IWSA Lending Library
 
The IWSA has purchased a few books to start a lending library.  Descriptions can be found on Amazon.com.  Please take advantages of these new resources.  If you want to donate books or borrow a book, please contact Rhonda Sena, at CasaSena5@yahoo.com


Book Titles Available

Children with Visual Impairments:  A Parent's Guide by M. Cay Holbrook.

A Parent's Guide to Special Education for Children with Visual Impairments by Susan LaVenture.

The Out of Sync Child by Carol Kranowitz.

The Out of Sync Child Has Fun by Carol Kranowitz.

Growing an In Sync Child by Carol Kranowitz.

Special Education Law by Wrightslaw.

From Emotions to Advocacy by Wrightslaw.




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Partners In Trustguidestar logo

The officers and board of the International WAGR Syndrome Association are proud to announce that IWSA has received the Guidestar "Valued Partner" Exchange Seal.  Guidestar is an information service which provides data on more than 1.7 million US nonprofit organizations.  The Exchange Seal means that IWSA has met Guidestar's standards for nonprofit transparency and accountability.  Visit http://www.guidestar.org, and you can find in-depth information about the IWSA's mission, funding, people, programs and budget.


Through research, support and the sharing of information our hope is to improve the quality of life for individuals with WAGR Syndrome.

 

***The IWSA is a 501 (c)(3) company, all donations are tax deductible***

  Tax ID #20-1947169