Dear IWSA Family and Friends,
Summer will be here before we know it and WAGR Weekend 2010 will be a highlight for many of us. We will be meeting in Gaithersburg, Maryland, July 23-25th, 2010, for a fun-filled family weekend. In addition to spending time with other WAGR families and friends, we have a great day planned at Bohrer Park. Planned activities include brief presentations by our NIH medical teams involved with the WAGR Syndrome studies, gym time for kids of all ages, catered lunch and dinner, and admission to the park's water park and putt-putt golf course. Our NIH team has also volunteered to be available during the day to meet privately with families who may have questions or concerns.
This year's weekend gathering, like the many others in the past, provides a unique and wonderful opportunity for families to meet and spend time with others who understand and live with the day-to-day challenges of WAGR Syndrome.
Please visit our website at www.wagr.org to RSVP and make hotel reservations. It is very important that we get accurate counts of families planning to attend so we can make arrangements for catering and activities.
Hope to see you all there!
SpringHill Suites by Marriott (booked)
9715 Washingtonian Blvd
Gaithersburg, MD 20878
(301) 987-0900 or 1 (888) 287-9400
Alternate Hotel - Courtyard Gaithersburg Washingtonian Center
204 Boardwalk Place
(301) 527-9000
Tentative Itinerary
Friday, July 23rd
6-8 PM Meet & Greet, SpringHill Suites
8:30 PM - ? Mom's/Ladies Night Out (location to be determined)
Saturday, July 24th
9 AM - 7 PM Bohrer Park at Summit Hall Farm
9:30 AM - Group picture (gym)
10 AM - Noon - IWSA Introduction, NIH Updates with Dr. Joan Han, Q&A with Dr. Han and NIH Ophthalmology/Nephrology teams
12:30 PM - Catered Lunch Provided
1 PM - 6 PM - Bohrer Park activities (water park, putt-putt golf, skate park)
6 PM - Pizza Party (assorted pizza and salad)
8:30 PM - ? Dad's Night Out (location to be determined)
Annie Prusakiewicz
International WAGR Syndrome Association
Board Member, WINGS Editor & Co-Founder
Through research, support and the sharing of information our hope is to improve the quality of life for individuals with WAGR Syndrome.
Winning Attitudes, Great Rewards
***The IWSA is a 501 (c)(3) company, all donations are tax deductible***
Tax ID #20-1947169
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The orders are tallied, the plants have been shipped, and we are thrilled to have raised $400 for the IWSA. The FlowerPower fundraising program provided the IWSA fifty percent of our group's total sales. This recent sale was for spring and summer flowers and plants and was available for participation online and through catalog sales. 