March 2010

Online News
www.wagr.org

 

 P.O. Box 392
Allen Park, MI 48101
C-3 (Casual Clothes for a Cause) Day
 
Facebook Silouette
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Find IWSA on your favorite social network
  facebook twitter
Join our Mailing List!
PayPal    
Donate now QUICK LINKS
 
 
 
 

Help Support the IWSA

 

flower power  We've just launched our online fundraising campaign. We created a special landing page for all of our friends and family to come to and support our great cause!
 
For every purchase the International WAGR Syndrome Association (IWSA), will receive 50% of the sale price. 
 
What's really great about this fundraising program is that our partner, Flower Power Fundraising, is totally committed to our cause. They are putting out top-quality, best-selling flower bulbs and plants, shipping directly to your home, and, they're giving us a 100% satisfaction guarantee. It's hard to go wrong with that!
 
To start supporting our group today just click on the link below and follow the instructions once you're there. It's completely safe and any email address you enter into the site will only be used for our fundraiser. Flower Power will not sell or use the names for any other purpose.
 
Click here for more information            
Dear IWSA Family and Friends,
 
Please don't forget to mark your calendar today and join us this July 23-25th in Gaithersburg, Maryland for our 10 Year Celebration - WAGR Weekend 2010.
 
SpringHill Suites by Marriott
9715 Washingtonian Blvd
Gaithersburg, MD 20878

(301) 987-0900  or 1 (888) 287-9400
 Rooms are limited - first come, first served
 
Tentative Itinerary
 
Friday, July 23rd
6-8 PM  Meet & Greet, SpringHill Suites
8:30 PM - ?  Mom's/Ladies Night Out (location to be determined)
 
Saturday, July 24th
9 AM - 7 PM Bohrer Park at Summit Hall Farm
10 AM - Noon - IWSA Introduction, NIH Updates with Dr. Joan Han, Q&A with Dr. Han and NIH Ophthalmology/Nephrology team
12:30 PM - Catered Lunch Provided
1 PM - 6 PM - Bohrer Park activities (water park, putt-putt golf, skate park)
6 PM - Pizza Party (assorted pizza and salad)
8:30 PM - ?  Dad's Night Out (location to be determined)
 
Sunday, July 25th
Morning visit and tour of the NIH if there is enough interest
 
Families can RSVP for WAGR Weekend 2010 by visiting:
 
Family Financial Assistance Scholarships are available for those families that want to attend WAGR Weekend but may need some financial help in doing so.  Preference is given to families who have not attended WAGR Weekend in the past.  Please submit  all requests in writing  to Tammie Hefty at tammiehefty@yahoo.com by March 31, 2010.
 
The Aniridia Network - UK has planned their annual meeting. 
 
The meeting will be held on Saturday, May 8th from  10 AM - 4 PM (with a social meal in the committee room afterwards for anyone wanting to join).
 
Meeting space has been reserved at the Norfolk Heritage Park in Sheffield.  
Click here for more information:
 
 
Sincerely, 
 
Annie Prusakiewicz
International WAGR Syndrome Association
Board Member, WINGS Editor & Co-Founder
 
Through research, support and the sharing of information our hope is to improve the quality of life for individuals with WAGR Syndrome.
 
Winning Attitudes, Great Rewards 
 
 
***The IWSA is a 501 (c)(3) company, all donations are tax deductible***
 
 Tax ID #20-1947169