The feelings associated with having a baby prematurely or having a baby born with special needs, medical or otherwise can be summed up in the poem Welcome to Holland by Emily Perl Kingsley. It is a very scary and anxiety laden journey and has been compared with a roller coaster ride by many parents.

Here are some facts about prematurity that may or may not be surprising to you:

• Almost 13% of all babies born in the USA are born at less than 37 weeks gestation (which means 1 in every 8 births)

• Due to medical advances more than 90% of babies born weighing at least 2 pounds are surviving today, which is a dramatic rise in the last 20 years

• Babies born prematurely are at a greater risk for many medical/health complications.

• Studies that have followed NICU babies into school-age have shown that learning problems, developmental delays and behavioral problems can occur

• Once discharged to home preemies are still more susceptible than their full term peers to infections like RSV, bronchiolitis, pneumonia, jaundice and dehydration which are the 5 leading causes of hospitalization for infants less than one year of age in the USA

• Premature babies have a lung volume half that of a full term baby

• Preemies airways are smaller & narrower than a full term baby

• Babies born at less than 36 weeks have not received the full transfer of maternal antibodies to protect them against RSV

As soon as a baby is born early, a parent's number one fear is usually "will my baby survive?". Think of how heart wrenching that alone would be. Your baby is whisked from the delivery room to the NICU and some babies spend 3 or more months in the NICU before ever coming home. Some parents never got to hold or see their baby as soon as he/she was born. Talk about traumatic.

Now, when the time comes to finally see their newborn, the baby is SO tiny and SO fragile that parents may feel scared or helpless and unsure of how to hold, feed, change or bathe their preemie. Remember, a preemie may be hooked up to all kinds of tubes, wires and monitors, so simply picking the infant up is a whole new challenge. Diapering around those tubes and wires also presents a new set of challenges for a parent, especially a first time one!

Think of the bond you develop with your newborn while breast or bottle feeding them, the snuggling and nuzzling...now imagine a baby that is not yet able to breast or bottle feed and is fed by a tube.

The emotional & physical strain of having a preemie can be overwhelming. Being a new Mom or Dad is challenging enough, but being a parent of a preemie leads to even more intense stress. Parents face sleepless nights, loss of work, loss of income, lack of time with their other children, etc. These are all very real concerns that health professionals, early intervention professionals and family members must recognize and help support. Don't be surprised if a preemie parent feels depressed, helpless, hopeless or even angry.

Be aware that preemies, even if "doing well" may have health complications related to their hearts (PDA, septal defects, heart valve issues, tetrology of fallot, transposition of the great arteries), breathing (apnea, RDS, BPD, pulmonary hypertension), eyes (ROP or strabismus), ears (hearing loss, sound sensitivity) and other organs. They are at higher risk for infections including meningitis and sepsis, as well as those already mentioned above. Many preemies also have issues with feeding, sucking, low blood sugar or necrotizing enterocolitis because their underdeveloped intestines can't cope with digestion.

Now imagine the day has finally arrived for your preemie to be discharged and come home. What a happy day right? Not necessarily...