News from the Cardiomyopathy Association

Welcome to the Cardiomyopathy Association's email update

Issue 58 June 24th, 2011

Patient expert sought to work with NICE

Nice logo

The CMA is looking for patients to take part in discussions at NICE about the stroke preventative rivaroxaban.

NICE (the National Institute for Health and Clinical Excellence) is appraising the use of the drug in atrial fibrillation, and will then provide guidance on its use in the NHS.

NICE is looking for patient experts who are willing to attend a meeting in London on November 16th, submit a personal statement and comment on any consultation documents produced. Ideally the patient would be using the drug, but this is not essential. For more details email Sarah Dennis

Big Fun Runs for all the family

Big Fun Run (Colywns) People of all ages, including children, can support the CMA by walking, jogging or running a 5K Big Fun Run.

The runs, designed to be fun rather than competitive, are being held in 22 spots across England, Scotland and Wales this summer. If you are interested in taking part, email Robert Hall or see here

Richard's big-hearted show

Utter Richard Tyrone Jones, who has dilated cardiomyopathy, is talking about his big heart in a show in London next Friday.
Richard is hosting Utter! Heartbreak at the Drayton Court Hotel, 2 The Avenue, on July 1st, 7pm. The show is in aid of the CMA and the British Heart Foundation. Other talent includes Highgate poet and star of Radio 4's Poets' Tree Paul Hamilton (Kevin Eldon), poet Tim Wells, and poet and actress Zena Edwards. Richard is presenting extracts from his debut show RTJ has a Big Heart and asking: How do you fight back when your own heart tries to kill you? Tickets are £10 pre-booked here or £13 on the door.

Charity cycle to Paris

Paris cycle

Adventurous volunteers are being sought to cycle from London to Paris.
Pedalling through pretty English villages and stunning rural France you'll pass historical landmarks and World War I battlefields.
In 2012 we have two five-day cycles you can join - April 18th to 22nd and May 9th to 13th. If you are interested do book now as places are limited.
If you are interested in this challenge or others, including one to the Sahara, contact Celia for an information pack.

Late places available in the Great North Run

We still have places for runners in the 2011 Great North Run, Europe's premier half marathon.

The event is being held on Sunday, September 18th, and CMA runners are asked to raise a minimum of £250.

The deadline for entry is July 8th.

For more details, see here or email Robert Hall

Cardiomyopathy support group meetings

The Wilts and Hants Cardiomyopathy Support Group meets at Memorial Hall, The Borough, Downton, Salisbury, SP5 3NB on Friday, July 8th, 2pm.

The Darlington Cardiomyopathy Support Group has a meeting on Wednesday, July 13th, noon, at the meeting rooms, Hollies Restaurant, Darlington Memorial Hospital's Social Club, Hollyhurst Road.

The Cornwall Cardiomyopathy Support Group is meeting on Saturday, July 30th, 2pm at the Crossroads Travel Inn and Conference Centre, Scorrier, Redruth, TR16 5BP.

For more details about CMA support groups or how to set up one, contact Sarah Dennis

Text a donation to the CMA

Text donation Supporters can now text a donation to the CMA. You can make a donation of £1, £2, £3, £4, £5 and £10 and up to three donations can be made each month.

If you wish to make a donation of £10, for example, text HART10 £10 and send to 70070. 100 per cent of the donor's donation goes to the CMA. Gift Aid can also be claimed on the donations.

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