News from the Cardiomyopathy Association

Welcome to the Cardiomyopathy Association's email update

Issue 57 May 27th, 2011

Cardiomyopathy information day, Manchester

Find out more about the latest treatments for cardiomyopathy and new research at our cardiomyopathy information day being held in Manchester on Saturday, June 25th. Dr Perry Elliott from the Heart Hospital in London will be talking about all the main types of cardiomyopathy and answering questions. For more information or to book a place, email Sarah Dennis

Doctors learn more about cardiomyopathy

Medical conference prog 2011 Doctors from across the UK and further afield attended the CMA's national medical conference in London last Friday.

The 120 delegates, mostly cardiologists but also some heart failure nurses and genetic counsellors, heard about the latest developments in hypertrophic cardiomyopathy care. The day looked at the use of genetic testing, drug treatments and surgery and new and emerging techniques for managing irregular heart rhythms.

Runners sought for London 10k run

Please help us fill our charity places for the British London 10k on Sunday, July 10th. If you know someone who would like to take part and raise awareness and funds for the CMA, please let us know.

We ask our runners to raise a minimum of £150. Register here or email us

We have one remaining place for the London Triathlon on Saturday/Sunday July 30th and 31st. For further details see here To see our range of challenge events see here

Cardiomyopathy in the news

Calls to develop the use of mechanical heart pumps in the UK hit the headlines this month. Doctors said that because the number of heart transplants is going down, more of the pumps should be given to patients. At the same time in America doctors were reporting that a six-month-old baby given such a pump while waiting for a heart transplant was getting stronger every day and been able to go home two weeks later.

Your support can make a difference

Your donation can help the CMA provide valuable services to families affected by cardiomyopathy

♥ £5 provides three newly diagnosed people with a CD-rom on cardiomyopathy

♥ £20 provides six callers with support from the helpline
♥ £50 runs the website and message board for a week
♥ £100 funds a specialist nurse for a day
♥ £1,000 provides 15 places at a CMA information day
The CMA's work costs over £410,000 a year but we get no Government funding. We rely on the generosity of our supporters' donations, gifts in Wills and fundraising.

Cardiomyopathy support group meetings

The Middlesex Cardiomyopathy Support Group is meeting on Tuesday, June 7th, 7.30pm at Northolt Methodist Church, Church Road, Northolt, UB5 5AU.

The Darlington Cardiomyopathy Support Group has a meeting on Wednesday, June 8th, noon, at the meeting rooms, Hollies Restaurant, Darlington Memorial Hospital's Social Club, Hollyhurst Road.

The Cornwall Cardiomyopathy Support Group has a social get together on Saturday, June 18th, 2pm at Tricky's, Tolgus Mount, Redruth, TR15 3TA.

The new Bucks and Beds Cardiomyopathy Support Group is meeting on Monday, June 20th, 7.30pm at 7, Rutherford Road, Aylesbury, HP21 8AP. CMA chief executive Robert Hall is the main speaker.

The Devon Cardiomyopathy Support Group is meeting on Wednesday, June 22nd, 7.30pm at Barnstaple Rugby Club, Pottington Road, Barnstaple, Devon, EX31 1JH. CMA nurse Jane Grant will be the main speaker.
For more details about CMA support groups or how to set up one, contact Sarah Dennis

Collector's dolls house

A collector's dolls house, donated by a supporter, is being sold by the CMA. The Tudor style property that is lit, decorated and furnished has seven rooms over three floors. It is made from a Dolls House Emporium kit and priced at £2,200. A similar kit, not built, sold in the emporium's catalogue for £3,000. Details are here or to express an interest contact Celia.