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We need your feedback on the NHS | |
If you or your family members with cardiomyopathy are affected by changes taking place in the NHS, do let us know. We are keen to hear from anyone who feels their care is being affected by funding changes. We also want to hear what parents of affected children think about the proposed closure of some children's surgery centres in the UK. Email Sarah Dennis
Regional commitees
The CMA wants to set up regional committees to gain more information about cardiomyopathy services in the UK. The committees will also provide local support to the CMA activities in their areas. To learn more about this new initiative please contact CMA Chief Executive Robert Hall
Feedback on nurse specialist services
The independent research organisation PatientView is seeking patients' opinions on the care they have received in the last year from nurse specialists and nurse consultants, and ideas about measuring their performance. Interested patients will be invited to focus groups in London. Email Lynne Currie
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Cardiomyopathy in the news | |
 Your can keep up-to-date with new developments in cardiomyopathy at the CMA's website. Among the latest news stories on the site include CMA member Paul Griffin taking part in stem cell therapy trials, pulmonary heart valves that can be fitted by a catheter rather than open heart surgery, and genes playing a part in preventing dilated cardiomyopathy The site is also packed with information about the different types of cardiomyopathy, medical articles and patient stories
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Runners and walkers of all ages sought | |
 The CMA is looking for runners, joggers and walkers to take part in a variety of events. They include the Big Fun Runs, 5k events all over the country that are suitable for all the family, the Great Manchester Run and the Bupa London 10,000. The Big Fun Runs are being held at 22 locations in England, Scotland and Wales this summer and autumn. The 10k Great Manchester Run is being held on Sunday, May 15th, and the Bupa London 10,000 on Monday, May 30th. For more details about running for the CMA, email Robert Hall
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Cardiomyopathy information days | |
 We are holding three information days in the next few weeks. These include our Kent event tomorrow (Saturday) at the Holiday Inn in Maidstone Road, Chatham, our Devon event on Saturday, April 9th, at the Exeter Court Hotel, Kennford, Exeter, and our cardiomyopathy in children information day is being held at the Mayfair Conference Centre in London on Saturday, March 12th. To attend the Kent event, call Sarah Dennis on 07806 512322. For details about the other events, email Sarah Dennis
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Please help CMA get more in Gift Aid |
 If you received an email last week entitled 'Help the CMA raise its income without paying an extra penny', we would really like to hear from you.
You received this email because we don't know if you are a UK taxpayer or not. If you are, we can claim 28 per cent extra from the Government on donations you make. We also need to know if you are not a UK taxpayer so that we don't ask you again. Click Gift Aid to let us know. Thank you to those who have already responded.
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Cardiomyopathy support groups |
 We are looking for people to help run our Yorkshire Cardiomyopathy Support Group and our West Scotland Cardiomyopathy Support Group. Our Yorkshire volunteer(s) would help cardiomyopathy nurse specialist Rachel Walker run the group and our Scottish volunteer(s) would help CMA trustee Bob McConnachie. If you can help at either group, please contact Sarah Dennis
Our support groups give those affected by the condition the chance to find out more about living with cardiomyopathy and meeting others who are affected. Family members and friends are welcome to attend.
Forthcoming support group meetings: The Wilts and Hants Cardiomyopathy Support Group meets tomorrow (Saturday, February 26th), 2pm, at the Badger Farm Community Centre, Badger Farm Rd, Winchester SO22 4QB The Middlesex Cardiomyopathy Support Group is meeting on Tuesday, March 1st, 7.30pm at Northolt Methodist Church, Northolt, UB5 5AU The Darlington Cardiomyopathy Support Group is holding its next meeting on Wednesday, March 9th, noon, at the meeting rooms in Hollies Restaurant, Darlington Memorial Hospital's Social Club, Hollyhurst Road.
The Cardiff Inherited Heart Conditions Support Group is meeting on Thursday, March 17th, 7pm at the Old Church Rooms, Park Road, Rayr, CF15 8DF. The Cornwall Cardiomyopathy Support Group is meeting on Saturday, March 26th, 2pm at the Crossroads Travel Inn and Conference Centre, Scorrier, Redruth, TR16 5BP For more details about the CMA support group network or how to set up a group please contact us
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Join the CMA here and receive the information and support you require
Cardiomyopathy Association
Unit 10, Chiltern Court,
Asheridge Road
Chesham
Bucks. HP5 2PX
01494 791224
Registered charity 803262
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CMA's quarterly newsletters |  | |
Do you receive a quarterly newsletter from the CMA? If not and you would like to, email David Greenwood. For members we have a 28-page CMA News, packed full of cardiomyopathy news, medical articles, patient stories and fundraising details. For supporters we have CMA Update, an abbreviated version of the members' edition. |
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