Good Things to Know About...
Madison Area Down Syndrome Society
September 16, 2009
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Greetings!
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How is it possible that we're half way through September? I hope you're enjoying the warm weather and avoiding the viruses that seem to be circulating.
In addition to our own Step UP Walk in just a few weeks, there are some fabulous events you should know about in our community this week, several benefiting other great causes: check out the information on the Half Pint Resale, the Willy Street Fair, and Including Samuel. Hope to see you there!
Andrea
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Hey Moms!
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Mom's
Nights are great, but we're looking to branch out a little bit and get
more moms involved. We want to know how you feel about a monthly Bunco
night for a chance to get out of the house, have a little fun, and
spend some time getting to know new friends - you don't even have to
talk about Down syndrome if you don't want to!
Bunco is a fun dice game - no skill or strategy involved! Players rotate throughout the evening so you get to meet lots of people while having a great time. Ideally we would need at least 12 moms each time we get together, but no one has to commit to being there every time. To start, we'd plan to meet at a different home each month so the location would change.
Please contact Tina Gefke if this is something you'd be interested in!
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Register NOW
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Registration Now Open!
STEP UP FOR DOWN SYNDROME
Walk 2009
New Name! New Location! No Rain!
Schedule of Events:
Friday, October 2, 2009
Silent Auction
Early Bidding Opens Online!
Sunday, October 4, 2009
Great Dane Hilldale Pre-Party
4-7pm
357 Price Place
Great Dane's Hilldale location
Madison, WI 53705
An opportunity to get event information, drop off pledges, and pick up
your walk t-shirts. Light appetizers and non-alcoholic beverages will
be provided courtesyof MADSS and the Great Dane.
Saturday, October 10, 2009
9:30am Registration Opens
*silent auction, bounce house, kids' activities, and more!
10:00am Performance by Ken Lonnquist!
11:00am WALK Begins
*Lunch Follows*
Stay after the Walk for auction results, more kids' activities, & dancing!
Register NOW
Pledge sheets & Event Schedule available at www.madss.org
This year's event will be held at our all new location:
Willow Island at the Alliant Energy Center.
Bucky, Brat Man, Maynard, Dottie T. Dot, & Crash Helmet will all be there...Will you???
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Brewers V. Cubs: DADS Night Out!
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DADS - Brewers vs. Cubs // Sept 22nd, Tuesday Night
This is our 2nd annual DADS only Baseball game. This is a "fathers night out" type event (no kiddos this time). Bleacher seats ($30-$35)
We will likely meet at the HWY 51 & beltline Park and ride, and car pool over to MKE.
Please RSVP to Joe
608-358-7182
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Mark Your Calendars: Great MADSS Events Ahead!
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DADS-only Brewers Outing
Sept 22
Step UP Online Auction
Early Bidding at www.madss.org begins Friday, October 2
Step UP Walk Preparty
Sunday, October 4
4-7pm
Great Dane Hilldale
Step Up for Down Syndrome Walk
Saturday, October 10th, 2009
Willow Island at the Alliant Energy Center
Registration Open HERE
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Half-Pint Resale
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Half Pint Resale's Much Anticipated Fall/Winter 2009 SaleSupport local charities and find fantastic deals on kids' toys and clothes! Goodman Community Center
Thursday, September 17 1pm-8pm *Consignor Item Drop-off Friday, September 18 2pm - 8pm - Public Sale Saturday, September 19 8am - Noon - Public Sale 1pm - 5pm - Half Price Sale
Half-Pint Resale can not only help families purchase items they need at
affordable prices, but that we can also support local charities who
serve families and children in our community. These charities are
supported through the donations from consignors of unsold items.
Kindred Kids
- Donations of gear, toys, DVDs, and books will be directed to Kindred
Kids. A free resource to families that have chidlren with special
needs, Kindred Kids provides a lending library, complete with toys,
books, games, and therapty equipment, as well as wheelchairs and
communication devices. For many kids with special needs, therapy is
toys. But with family budgets stretched tight by decreasing insurance
coverage and increasing cost,(or no insurance at all!) it can become a
challenge to afford the things that a "special needs" child needs to
grow and develop. Kindred Kids is also a community resource, and
offers playgroups, informational and support groups, and a place for
parents to support each other. Kindred Kids is located in Columbus,
Wisconsin, and was started by a Half-Pint supporter.
Middleton Outreach Ministry -
Donations of Clothing and linens are directed to the free Clothing
Closet program at Middleton Outreach Ministry (MOM). This program
supports families in need with free clothing and household items to
help stretch their budgets in order to pay for necessities such as
rent, utilities, and food. MOM supports families on the west side of
Madison as well as Middleton and Cross Plains.
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Reasons to Dream
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Reasons to
Dream Conference
Sponsored by:
Down
Syndrome Association of WI and
Down Syndrome Clinic of WI
Saturday, October 24, 2009 · 8:30
a.m. to 3:30 p.m.
For families, educators, and individuals with special
needs
Where:
Children's
Hospital of Wisconsin - Auditorium
9000
W. Wisconsin Ave., Milwaukee
$20 DSAW Members
$25 Non-Members/Professionals
(Free parking in the parking
structure at north end of hospital)
8:30 a.m. Registration
and continental breakfast
9:00 a.m. Intro
and Welcome
Keynote address: Dwell in the Possibilities by Bridget Brown (Self-Advocate)
9:30 a.m. Workshop:
Honey, I Blew Up the Curriculum by
Nancy & Bridget Brown
Adaptations and Accommodations: The IDEAL Method of Adapting
Curriculum
Participants will learn how to adapt
curriculum to meet the needs of a diverse classroom. Parents will learn how to
help their children at home, and make easy adaptations that will help children
access the general education curriculum and be a full participant in the
educational process.
12:00
p.m. Lunch
(provided)
1:00
p.m. Workshop:
Person Centered Planning by Nancy
& Bridget Brown
How to Design Positive and
Possible Futures with Hope
Participants will learn about Person Centered Planning. They will
learn about a process that can be facilitated with a team or done with families
and individuals with special needs. In this process, the student with a special
need is the heart of the process. Educators can use this tool to bring teams
together (including families and students with special needs) to plan for a
full and inclusive life. Families can use this process to learn how to be a
leader in their child's life. Students entering into their transition years can
use this process to speak on behalf of themselves learn self-determination
skills, learn how to set goals, find their own voice, and present at their own
IEP meetings.
For
presenter bios and more details about these workshops, visit www.butterfliesforchange.org
Contact the DSAW office toll-free at 1-866-327-3729
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Including Samuel
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Over the past four years, photojournalist Dan Habib has documented his family's efforts to
include his son Samuel, 9, in all aspects of school and community. In
these photos from the documentary, Habib honestly portrays the social,
emotional and health challenges that his family constantly navigates,
along with joy that Samuel brings to his family, classmates and friends.
We will lucky enough to have Mr. Habib in Madison in a few weeks. Please join us for a screening and Q&A with the filmmaker!
University of Wisconsin Union Theater
800 Langdon Street, Madison, WI 53706
September 24, 2009 - 5:00 P.M.
Screening will be followed by a Q&A with filmmaker, Dan Habib
Questions? Contact Fil Clissa (fil@tds.net), Mary Nielson (mnielson@madison.k12.wi.us), or Beth
Swedeen (INeedMyCoffee2@aol.com )
SCREENING SPONSORED BY
Madison Partners for Inclusive Education
MMSD, Department of Educational Services
Board for People with Developmental Disabilities
View the Trailer HERE
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Statewide Youth and Parents in Partnership for Empowerment
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The statewide Youth and Parents in Partnership for Empowerment (YiPPE) program still has openings for parents and youth with disabilities ages 15-20. Please see and disseminate the attached brochure to families who might be interested.
Families and youth MUST attend all five sessions and commit to a community action project. The program is for youth with all kinds of disabilities who have a reliable form of communication and can commit to working toward a plan with help from adults.
Click here for the Brochure.
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Community on Transition
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Register now for the Oct. 22 Community on Transition half-day meeting on the wsti.org website. This meeting begins at 9 a.m. at the Goodman Community Center in Madison. The meeting is FREE and the focus will be on family involvement and led by the family involvement practice group. Updates on the other practice groups's work (employment, health and transition, youth leadership, post-secondary, and autism) will also be available.
Please go to www.wsti.org to register and you will see a button in the middle of the home page saying "other meetings now available to register." Click and submit your registration info.
Please register soon for this really useful statewide Community on Transition meeting.
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Highly Recommended
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Visit the Catalyst Center to find two new briefs outlining elements necessary for CYSHCN (children and youth with special health care needs) in health care reform:
What do Children with Special Health Care Needs Require from Health Care Reform? identifies the three main components of optimal healthcare coverage for CYSHCN. Namely, coverage must be adequate, affordable and continuous.
Health Care Reform and Children and Youth with Special Health Care Needs: Coverage Is Not Enough
provides more specific information. This brief identifies the impact of
thin benefit packages on CYSHCN and their families and offers specific
policy suggestions to alleviate underinsurance.
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Highly Recommended
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Are you or someone you know a high school or college student with a
disability who is interested in ecological restoration and
conservation?
Announcing a new Midwest Alliance event for
students with disabilities at the University of Wisconsin-Madison Arboretum
Are you interested in ecological restoration and conservation? Do you
want to learn more about the various plant life native to Wisconsin?
Then come join us at the UW-Arboretum on October 16th at 4:00 pm. We
will be taking a guided tour through the Native Plants Garden to learn
more about ecology and the science behind restoration. The tour will
last for approximately 1 to 1 1/2 hours and is wheelchair accessible.
Please sign up today sign up today
as space is limited. We hope to see you there!
Please note that any younger children (12 and under) must be accompanied
by an adult.
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Fun Stuff: Willy Street Fair 2009
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A great neighborhood and a great event:
September 19 & 20
Need the details? Here you go!
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Fun Stuff: Ducktoberfest is coming!
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Saturday, October 3: 2:00 - 8:00 p.m.
Ducktoberfest featuring live music,
beer, brats and family fun!
Join us for the first-ever "Ducktoberfest," a German-themed celebration in the outfield with music from Greg Anderson (polka) & the ever-popular Gomers along with tons of activities for the kids! More bands and details to come.
Food & drink will be served out of the Great Dane Duck Blind and general admission tickets purchased in advance are only $5!
Call the Mallards box office at 608.246.4277 for more details!
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As I get older, I've learned to listen to people rather than accuse them of things.
--Po Bronson
There
are people who, instead of listening to what is being said to them, are
already listening to what they are going to say themselves.
--Albert Guinon
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Andrea Wipperfurth
Madison Area Down Syndrome Society 
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