Good Things to Know About...
Madison Area Down Syndrome Society
May 29, 2009
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Greetings!
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The next couple weeks are a bit of a rollercoaster in MADSSland!
On Tuesday, 30 (plus? Will you join us?) or so of us will be heading out to the ballpark for a great night of Mallards ball.
Next weekend, I hope to see many of you at the Old Fashioned for brunch- there's a MEAT raffle to benefit MADSS. You know you don't want to miss it!
Following the end of the school year, we jump right into bike camp. This is a great, but very volunteer intensive event. I could really use your help. Please see below for more information.
I hope you'll find time, between graduations and end-of-the-school year picnics and family vacations, to hook up with us at one or all of these great events. If not, never fear, more fun coming soon!
Be well,
Andrea
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MADSS on Facebook!
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Why not make the most of your time-sucking Facebook account by signing on for MADSS news?
Over 1,000 members, including Mayor Dave!
Don't miss out...
http://www.causes.com/MADSS
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Last Chance! MADSS @ the Mallards!
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Tuesday, June 2nd
7:05 pm game vs. the Rochester Honkers
Join us at 6pm for tailgaiting!
Cost: $5/person (includes ticket and dinner). Bring your own beverages.
& lest you think this is just any old game, behold:
Tuesday June 2nd is our Fireside Theatre High School Musical
Night--there will be scenes in between innings on the field! It is also
Bucky Book Night (1,000F). We will be giving out Magnet Schedules to
all fans, sponsored by Charter Communications & Chet's Car Care. We
also will have a Special Appearance by MLB Great Frank Howar
RSVP to Andrea (andrea@madss.org or 608.692.7653) RIGHT NOW to get your seat!
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Please Help Us "Lose the Training Wheels!"
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MADSS 3rd Annual Lose the Training Wheels Bike
June 15-19, 2009 Oregon High School, Oregon, WI
For one week at the beginning of summer, we will work with 25-40 kids (ages
7- adult) with all kinds of special needs to help them learn to ride two-wheeled bikes.
We NEED you!
We have 60 some volunteers, but still need more to make fantastic event happen. Please check your schedule now and let us know if you are willing to lend a hand.
This is an incredibly tough, exhilarating and rewarding
week for the riders, families, and volunteers.
I hope you'll consider helping.
More information and forms for volunteers available at: http://www.madss.org/content/view/18/44/
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June 7th: Join us for Sunday Brunch!!
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The Old Fashioned, the great supper-club/tavern inspired restaurant on the Square, has generously made MADSS their charity of the month (for TWO months!) in May and June.
Proceeds from the Shake of the Day and Sunday Brunch Meat Raffle will benefit MADSS. Visit on your own or join MADSS on Sunday, June 7th, for a 10am brunch! (kids or not, your call). RSVP to Andrea for 6/7. Whenever you go, please be sure to thank you Patrick and Marcia for their kindness and generosity!
23 N. Pinckney St.
Madison, WI 53703
tel. 608.310.4545
www.theoldfashioned.com
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Walk 2009
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 Mark your calendar! The 2009 Walk date is on SATURDAY, OCTOBER 10th. This year's event will be held at our all new location: Willow Island at the Alliant Energy Center. Registration will open in July. If you would like to be involved in the planning of this year's event,please contact Sue Dahlen, chair of the Special Events Committee, at sue.dahlen@att.net for more information.
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2009 Golf Outing
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The 2009 MADSS Golf Outing. will take place on Thursday, August 6th, at the Oaks Golf Course.
presented by Winston & Strawn, LLC
Save the date! Registration opens in June.
If you're interested in helping out during the planning of the outing or on the day of the event, please contact Sue at sue.dahlen@att.net
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Communication Sensation
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Jackie Carter, a certified and licensed speech-language pathologist
with Communication Sensation LLC, has a few openings left for summer
evaluation and/or therapy at her office on Monona Dr. in Madison. Mom
to 12-year old Jeffrey, who has Down syndrome, Jackie recommends
children with Down syndrome continue to improve their communication
skills throughout the summer months. Few school districts give
extended school year services to our children and, if they do, these
services are far too limited to provide adequate benefit. Jackie
provides research-based treatment in speech, language and reading
deficits and has extensive experience working within the public schools
prior to establishing her private practice. She is also Hanen- trained
in teaching parents to develop communication skills within their
children and consults on IEP development.
You can check out her website at www.communicationsensation.com
Jackie's contact information is Jackie@communicationsensation.com and (262)949-4119. |
ICC Garage Sale Fundraiser
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First Annual Fundraiser Garage Sale to Benefit ICC - Bridges for Families
Date: Saturday, June 6th
Time: 8am - 2pm
Place: ICC Parking Lot
14 Ellis Potter Court
Madison, WI 53711
Come, shop, and benefit young children with developmental delays and their families. There will be toys, clothes, household items, furniture, and lots of miscellaneous items.
If you have clean, gently used items that you would like to donate to the sale, please bring them to the address above or call Kim @ 204-6242 ext. 11. Donations will be accepted starting June 1st - June 4th from 8am to 4pm. Thank you in advance for helping to benefit our program.
All proceeds will be used to help fund our toy and equipment lending library to support families in the Madison area who have children in the program.
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Funding For Families
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In response to families' needs and feedback, the Learning Enhancement program has been revamped. To increase flexibility and ease of use, $400 per person with DS will now be available each year. The funds can be used for materials, conferences (including family members), program, therapies, classes, and other disability related education. Please see www.madss.org for the application form (front page) and more information.
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Familias Unidas con Ninos Especiales (FUNE)
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*We are a Support Group for Spanish speaking families with Special
Needs Children.* *We welcome also service providers and family members who care for
children with disabilities or limitations of any type.*
*When? Last Saturday of every month*
*Where? **The Epilepsy Foundation*s offices at *
*1302 Mendota St.**, Madison WI*
*Time: **2:30 PM * 4:30 PM*
*For more information please call 442-5555 or 906-9010*
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*FUNE (Familias Unidas con Niños Especiales) *
*Grupo de Apoyo de Padres Latinos*
*Para familias que tienen niños con discapacidad o cualquier clase de
limitación, también para proveedores de servicios y para personas que cuidan
niños con discapacidades.*
**Cuando? El ultimo Sábado de cada mes*
**Donde? en las oficinas de la Fundacion de Epilepsia en la calle 1302
Mendota St., Madison, WI*
*Hora: 2:30 PM * 4:30PM*
Para mas información llamenos
(608) 442 5555
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T21 Traveling Afghan Project- Don't miss out!
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 Created by CJ, one of our own WI moms:
One blanket. Many states. Many countries. Hundreds of families. One common thread!
The T21 Traveling Afghan Project was begun to link families all over the world who share the common bond of raising a child with Down syndrome. The afghan travels from one family to another, along with a journal. Each family takes pictures of their child with the afghan, which then gets posted on the project blog.
It is never too late to sign up!
For more information, check out The T21 Traveling Afghan Website at http://thet21travelingafghaproject.blogspot.com
There is also a visual map showing the path the afghan has taken to date. If you click on the button over a location, you will see a picture of the child who held the afghan at that location, as well as a link to their blog, if applicable.
http://maps.google.com/maps/ms?ie=UTF8&hl=de&msa=0&msid=107262760150343642409.000463e8a94bed98e64ff&ll=42.30169,-91.955566&spn=6.280148,11.206055&t=p&z=7
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Times Square Video Contest 2009
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Celebrate the 15th Anniversary of the Buddy Walk® by entering the Times Square Video Contest. The video, which showcases individuals with Down syndrome from all over the world, will air on a jumbo screen in the heart of Times Square on September 26, 2009 at 10:30 a.m. The New York City Buddy Walk will immediately follow the video presentation at the Great Hill in Central Park.
Each year, NDSS receives thousands of photo submissions for the Times Square Video Contest. Because the Buddy Walk promotes acceptance and inclusion of individuals with Down syndrome, the winning photographs feature children, teens and adults with Down syndrome working, playing and learning with friends and family.
For more information, or to submit a photo, please click here. The deadline for submitting photos is July 15, 2009.
ONE photo per individual can be submitted to the contest. Please note that this is different than in the past. If you send more than one photo, NDSS will only use the first submission.
Winners will be contacted by a representative from NDSS via email starting the week of August 3, 2009. You will not be contacted if your photo is not selected. Photographs will not be returned.
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Summer Classes at Imagine a Child's Capacity
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ICC's summer class schedule has been announced! Check out the website to learn more about yoga, friendship groups, and parent trainings!
Imagine a Child's Capacity
kpierick@icc-wi.org
www.icc-wi.org
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"At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us."
-Albert Schweitzer
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Andrea Wipperfurth
Madison Area Down Syndrome Society
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