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NEWS YOU NEED TO KNOW


JUNE, 2012  

Greetings!

We turn the page on the calendar to June and, no doubt, think, "Here come the dog days of summer!"  Here at The Arc of Aurora there are, admittedly, fewer IEP meetings, but membership renewal becomes a major focus.   See the Hot Topic article below for a listing of some of the benefits of membership with The Arc of Aurora and for the links to paperwork to print, complete, and mail with your check to continue your membership.

The dog days of summer also have us planning a Member Picnic.  What better way to spend an evening:  a little fun music, a few fun people, a lot of good food, and all for no charge!  See the note under Members' Corner for details on this opportunity.  RSVPs are required so we are sure to have enough food and beverages.  What a fun family event this will be!

June also offers us a day to honor our fathers.  As I did for Mother's Day, I have assembled a few quotes that may help focus our thinking about our dads:

"Any man can be a Father but it takes someone special to be a dad." -- Anne Geddes

 

"My father didn't tell me how to live; he lived, and let me watch him do it." -- Clarence Budington Kelland

 

"By the time a man realizes that maybe his father was right, he usually has a son who thinks he's wrong." -- Charles Wadsworth

 

"Father taught us that opportunity and responsibility go hand in hand. I think we all act on that principle; on the basic human impulse that makes a man want to make the best of what's in him and what's been given him." -- Laurence Rockefeller

 

"When I was a kid, I said to my father one afternoon, 'Daddy, will you take me to the zoo?' He answered, 'If the zoo wants you, let them come and get you.'" -- Jerry Lewis

 

A very Happy Father's Day to the Dads among us!  

 

We look forward to receiving your membership renewal paperwork.  Your initiative completing and returning that shows your respect for our work with and for you -- thank you!  Too, we hope to see you at next month's Picnic!

 

Keep cool, have fun, stay safe, and enjoy a great summer!

 


Jean N. Solis
Editor and Director of Marketing and Development
Policy Profile: States' Levels of Services Ranked
Arizona Tops 50-State Ranking Of Disability Services ... Colorado Ranks 28th  

Arizona's Medicaid program provides the best services for people with intellectual and developmental disabilities, according to a national ranking released Wednesday.

The annual list, produced by United Cerebral Palsy, compares services and quality of life for people with disabilities all 50 states and the District of Columbia.  Arizona, Michigan, California, New Hampshire and Vermont came in at the top of the list this year.  Meanwhile, for the sixth year in a row, Mississippi was dead last, with Illinois, Arkansas, and Texas rounding out the low performers

 

The analysis looks at a number of factors including the way people with disabilities live and participate in their communities in each state, how satisfied people are with their lives, and how easily they are able to access services and supports.  The latest ranking is based primarily on data from 2010, the most recent available. Even though some states outperformed others in the ranking, those behind the report caution that all states have room for improvement. They point out that 268,000 Americans with disabilities are currently on waiting lists for Medicaid waivers which would allow them to receive home and community based services.  On a positive note, however, the analysis found that in 36 states, at least 80 percent of residents with developmental disabilities are now being served in the community.


Hot Topic:  Membership Renewal Time!
Your membership with The Arc of Aurora expires July 1, and we invite you to renew that membership now! 
 
Benefits of membership with The Arc of Aurora include: 
- prioritization of advocacy support 
- 15% off at arc Thrift Stores discount card 
- invitations to and discount admission (where applicable) to member events 
- eligibility to apply for annual scholarships 
- access to the in-office non-perishable food bank and eligibility for consideration for other similar support programs 
- monthly e-newsletter (or every other month printed newsletter) 
- strengthening the voice of those who advocate for and care about people with intellectual and other developmental disabilities 
 
The Arc of Aurora requires payment of an annual $40 processing fee for cases for which advocacy support is provided.  This fee is waived for members.  Membership is $30 annually.  In addition to completion of the Membership Application and the payment of those membership dues, in cases where advocacy support is provided by The Arc of Aurora, members will work with their assigned advocate to develop and sign an Advocacy Agreement.
 

The Rest of the Story
what's happening

Committee Takes Heat Over 'Mental Retardation' Update

May 29, 2012 

As experts behind a forthcoming update of the Diagnostic and Statistical Manual of Mental Disorders look to revise psychiatry's definition of "mental retardation" their efforts are becoming unexpectedly contentious. Read on...

PEAK Parent Center's summer edition of its SPEAKout newsletter is available and includes articles on summertime ways to stay connected, high school inclusion, NCLB waivers and more.

Discover Apps for Autism: The Apps That Can Make A Difference and Why

Join Autism NOW Tuesday, June 19, from 2:00 to 3:00 p.m. EST for an informative Webinar on mobile communication tools. iPads are quickly becoming the "go-to" communications device for individuals with autism and other developmental disabilities. Popular for its features and apps, it offers dynamic and cost-effective tools to both children and adults with autism and other developmental disabilities. Attend this webinar to discover how iPods, iPads, & apps can be useful learning, therapeutic, and leisure tools for individuals! Reserve your seat now. 


The Autism Society of Colorado's 2nd Annual Faces of Autism Awards event is Wednesday, October 24, 2012.  There are four nominated categories of awards: Outstanding Professional, Outstanding Volunteer, Citizen of Distinction, and Compassionate Youth, ages 10-18. Nominations are due by 5PM June 15. Check out the Autism Society's
website or contact Gwen Smiley at gwen@autismcolorado.org with questions or for more information.

 

Project SEARCH is a school-to-work transition program for high school students with developmental disabilities such as Down syndrome, cerebral palsy, and low IQ. The special education students in Project SEARCH have graduated from Aurora Public Schools and earn internships in various departments at the hospital. They're exposed to different potential career paths that involve assisting doctors, nurses and hospital officials. Project SEARCH, which used to be an acronym, is a partnership among Aurora Public Schools, Children's Hospital Colorado, and other organizations such as The Arc of Aurora. Since the program at Children's Hospital Colorado launched in 2009, it has graduated 20 students, 75 percent of whom are now employed. Read more in the Aurora Sentinel.

 

The Colorado Developmental Disabilities Council's Summer newsletter, Between the Lines, is available online.  

 

USDOL Seeks Submissions for Disability Employment App Challenge

The U.S. Department of Labor's Office of Disability Employment Policy today announced the launch of its first disability-related application challenge, which is designed to generate innovative tools that will improve employment opportunities and outcomes for people with disabilities. The goal of the app challenge is to promote recruitment resources for employers, develop job training and skill-building tools for job seekers, facilitate employment-related transportation options and expand information communication technology accessibility. Awards with cash prizes - totaling $10,000 - will be given to the top three submissions. Contestants must register for the contest on the Challenge.gov website and submit their apps by August 23, 2012.

 

Education Department Issues Resource Document Discouraging Restraint and Seclusion

The U.S. Department of Education issued "Restraint and Seclusion: A Resource Document" that outlines principles for educators, parents and other stakeholders to consider when developing or refining policies and procedures to support positive behavioral interventions and avoid the use of restraint and seclusion in schools. The goal of this resource document is to help ensure that schools are safe and healthy environments where all students can learn, develop, and participate in instructional programs that promote high levels of academic achievement. The 15 principles that frame the document highlight how school-wide behavioral interventions can significantly reduce or eliminate the use of restraint or seclusion.

     These guiding principles offer states, districts, and other education leaders a framework for developing appropriate policies related to restraint and seclusion to ensure the safety of adults and children. The document also provides a synopsis of ongoing efforts by federal agencies to address national concerns about using restraint and seclusion in schools, and includes links to state restraint and seclusion policies and procedures.

 

State of the Art Research

In the May 14, 2012, edition of Career Development and Transition for Exceptional Individuals, the Hammill Institute on Disabilities published an article entitled "Quality Learning Experiences, Self-Determination, and Academic Success: A Path Analytic Study Among Youth with Disabilities."  The article features findings from the Individualized Learning Plan (ILP) research and demonstration project conducted by NCWD/Youth and the U.S. Department of Labor's Office of Disability Employment Policy. The article's co-author, Boston University's V. Scott Solberg, is the lead researcher on the ILP project.

 

Division of Wildlife Offering Free Fishing License

The Colorado Division of Wildlife (COW), in an effort to expand access to Colorado's wide assortment of outdoor recreational activities, has created a free lifetime fishing license program for individuals who have a lifelong disability. To obtain more information about the Free Lifetime Fishing License and/or to obtain an application, please contact License Services at 303-291-7235 or visit their website.  COW also offers accommodation permits, disability licenses, and accessible facilities in addition to the fishing license program.

 

Free National Parks Access Pass for People with Disabilities

The National Park Service is offering a free pass to federal recreation sites for people with disabilities who present some documentation of disability status and ask for the free Access Pass. Documentation can include a physician's statement, or a document issued by a State or Federal agency such as the Veteran's Administration, Social Security Disability Income, Supplemental Security Income, or a vocational rehabilitation agency. This life-long pass gives that person plus three other adults free admission to federal recreation sites around the country. For more details, or to find a recreation site, visit the National Park Service's website for pass information and to find a park near you.

 

The Genetic Alliance is conducting a very brief survey to assess public knowledge and beliefs about a new technology- Noninvasive Prenatal Diagnosis. Whether you have heard about it or not, the Genetic Alliance would really appreciate if you can take 5 minutes to answer a few quick questions.  No background info needed.  Please pass this along; the more consumer voices, the better the data. This is a critical time when policies are being set about this new technology and the Alliance wants to make sure consumer voices are present from the beginning. 

  

from a press release emailed to The Arc of Aurora office in late May- Developmental Pathways, Inc., a Colorado non-profit organization whose mission is to lead in the development of partnerships that result in the integration and participation of people with developmental disabilities in the community, announces that its Chief Executive Officer, John Meeker, has separated from his employment.

 

The NADD 29th Annual Conference and Exhibit Show is being held October 17-19, 2012 in Denver, Colorado. The theme is "Mental Wellness in Persons with ID and ASD: Innovation, Collaboration & Quality of Life (IDD/MH)." 

 

Exploring New Paradigms for the Developmental Disabilities Assistance and Bill of Rights Act

A new report from the National Council on Disability, "Exploring New Paradigms for the Developmental Disabilities Assistance and Bill of Rights Act," updates their 2011 report, "Rising Expectations: The Developmental Disabilities Act Revisited."  The report calls for unified federal policies to deliver on the full potential of the DD Act and to provide individuals with ID/DD with information, skills, opportunities, and support.  

 

Educational Acronyms

A Guide to Educational Acronyms: What's in the Alphabet Soup? (2012)   By J. Krentz

You need only spend a few minutes listening to an education policymaker describing legislation to be aware of the "alphabet soup" of educational acronyms. The Institute's National Center on Educational Outcomes (NCEO) developed this "acronym handbook" as a resource to define, clarify, or remind one of definitions of acronyms routinely found in legislative and policy discussions. Whatever your role, be it as a state legislator, teacher, parent, or other, this pocket guide will be a useful tool. Published by NCEO. Cost: Free. 

 

Still looking for a summer program for your child?

Beyond Classroom Walls works to offer group therapy programs that focus on social skills, language, cognition and motor skills through functional real-life themes. They have 5 different groups for school age students. Services available for students in both the Cherry Creek and Aurora School Districts. They are offering intensive programs in July. Information at www.BeyondClassroomWalls.com or 303-330-3309.

 

Inclusive Faith Communities

Participation in the faith community of one's choosing is an essential part of life for many people. However, for people with disabilities there can often be barriers to such participation and inclusion. To help raise awareness about the barriers, and equip faith communities to grow in their ability to include people with disabilities, a group of University Centers for Excellence in Developmental Disabilities (UCEDDs) came together in 2011 to found the National Collaborative on Disability, Religion, and Inclusive Spiritual Supports. The collaborative is led by Rev. Dr. Bill Gaventa from the Elizabeth M. Boggs Center on Developmental Disabilities (NJ UCEDD) and Dr. Erik Carter from Vanderbilt Kennedy Center (TN UCEDD), and among the founding partners is the Institute on Community Integration (ICI). To learn more, see the May issue of the Institute's staff newsletter.    

 

Study Finds Medical Procedures Violating the Civil Rights of People with Disabilities

Washington, DC - In a first of its kind study, the National Disability Rights Network (NDRN) determined that performing certain medical procedures or withholding life sustaining treatment in non-terminal situations without judicial review violates the civil rights of people with disabilities.

     The initial catalyst for the report is the so-called Ashley Treatment which received worldwide attention 5 years ago. Ashley was a six-year-old child with developmental and physical disabilities whose growth was stopped through estrogen treatments and whose uterus and breast buds were removed. The intent of this treatment was to keep her permanently small and child-like. NDRN believes this practice is spreading worldwide. "The thought of doctors and guardians, together, deciding to remove the body parts and stunt the growth of a child based on assumptions about their awareness and quality of life is shocking and disgusting," said NDRN's executive director, Curt Decker.

     Further investigations by the nation's federally mandated Protection and Advocacy agencies, which NDRN represents in Washington, DC, have uncovered other cases in which medical treatment and even basic food and water are being denied to individuals with disabilities during minor illnesses with the intent of letting the illness progress until death. "In one case, the parents of a 13-year-old boy with a developmental disability refused to allow him access to antibiotics so that the cold he had would progress to pneumonia. They got their wish and the boy died," said Decker. "Every person is born with civil and human rights and an inherent dignity," continued Decker. "The reality that this is happening in the United States is anathema to the core values that we as Americans say we hold. That it is happening to those unable to use their own voice is even worse. This report is meant to start the conversation about how society can and should make medical decisions that uphold the constitutional rights of all people with disabilities."

     The report, Devaluing People with Disabilities: Medical Procedures that Violate Civil Rights, puts individuals with disabilities at the center of discourse. It reviews the facts of Ashley X, as a case study and presents a continuum of similar experiences and treatment of individuals with disabilities within a context of medical decision making that devalues them as people and discriminates against them based on their disability. The report explores the conflict of interest that medical decision making may present between a parent and their child. It describes the vital role that the legal and judicial systems have in ensuring that the civil and human rights of individuals with disabilities are protected regardless of their severity and in contrast to opinions regularly expressed in the medical and ethics community. Finally, the report presents a series of recommendations for how the legal and medical systems at a local, state and national level, including protection and advocacy agencies, ethics committees, institutional review boards, and the courts can perform critical "watch-dog" functions to ensure that the human and civil rights of persons with disabilities are protected.

     Read the full report.

     Download the executive summary and recommendations.

     View the report webpage.

 

Looking for work?  Check out www.aurorajobnetwork.com

Members' Corner

Member Picnic

You are invited to a member potluck picnic in conjunction with Aurora banks' summer concert series on Thursday, July 26 at Utah Park.  Join other The Arc of Aurora members for dinner in the park and hear Daddio and the 17th Avenue All Stars (50s rock and roll).  The Arc of Aurora will provide main dish and beverages; please bring a side dish or dessert to share.  Too, bring lawn chairs or a blanket to sit on -- no other seating is available.  RSVPs required to Jean, jsarcaurora@aol.com or 720.213.1420, by July 24.  When you RSVP, Jean will let you know where to meet in the Park.  Get your goovin' dancin' shoes on and be ready for a fun evening!

 

Sibling Scholarship Winning Essays 

One of the benefits of The Arc of Aurora membership is the annual opportunity to apply for Glen Talladay and Sibling Scholarships.  The Sibling Scholarship is limited to members in good standing who are siblings of a person with developmental disabilities. Funds use may be associated with post high school education and/or assistance with summer camps or programs. This scholarship may be used by either children or adults who are siblings.  Two entries were selected as winners this year.  Click on these links to read either winner1 and/or winner2 entries.  Congratulations to this year's Sibling Scholarship winners!

 

Summerfest

Pitchers Restaurant and Sports Bar will again host its Summerfest 2012 to benefit The Arc of Aurora.  The Arc of Aurora members are encouraged to join other Pitchers' friends participating in the stunning silent auction, festive chili cook-off, delicious dessert-off, and talent show.  Calendar Saturday, August 25, between 2 and 6PM to be a part of the FUN!  Details coming next month.

 

The Arc US National Convention

Your membership with The Arc of Aurora also provides you membership with The Arc of the US. From October 25-28, The Arc of the US is holding its National Convention and International Forum, "Achieving Inclusion Across the Globe," at the Grand Hyatt in Washington, D.C.  Check out The Arc of the US's website for details.

Spotlight On ...   SungateKids 

 

SungateKids provides comprehensive investigation and support services to victims of child abuse and to victims with intellectual and developmental disabilities. SungateKids is a Colorado based nonprofit children's advocacy agency serving Colorado's 18th Judicial District in the Denver area which includes Arapahoe, Douglas, Elbert and Lincoln Counties. SungateKids offers a new way of providing child advocacy services for abused children and people with developmental disabilities through a comprehensive approach for victims and their families. Programs are designed by professionals and volunteers responding to the needs of the communities SungateKids serves. SungateKids' goal is to ensure that victims are not revictimized by the very system designed to protect them.

 

SungateKids is a founding member of the Collaborative to Address Crime Victimization of People with Developmental Disabilities whose work The Arc of Aurora coordinates. In honor of its past and continued work with victims with developmental disabilities, our hats are off to SungateKids!

arc thrift logo

Did you know that the majority of The Arc of Aurora's annual operating budget comes from a portion of the proceeds from the sale of items donated to the arc Thrift StoresToo, much of the food in our non-perishable food bank comes via the arc Thrift Stores. 

 

Call 303.238.5263 to schedule a pickup of your gently used items and also help The Arc of Aurora!

In This Issue
Policy Profile: States' Levels of Services Ranked
Hot Topic: Membership Renewal Time!
The Rest of the Story
Members' Corner
Spotlight On... SungateKids




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Mission

The Arc of Aurora is a membership association that provides individual and systems change advocacy through information and referral; community education; and individual, family and class support for and with people with developmental disabilities and their families.

 

 

 

 

 

 

 

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Honor Your Dad with a Donation to The Arc of Aurora

If you are struggling coming up with a gift to honor your dad this Father's Day, consider honoring his legacy to you with a donation to The Arc of Aurora in his name.  We provide a written acknowledgement of your gift, and your donation is tax deductible to the extent allowed by law.  What a great idea:  honoring Dad's legacy to you with a donation in support of The Arc of Aurora's legacy to people with intellectual and developmental disabilities! 

 

Make your check payable to "The Arc of Aurora" and send it to The Arc of Aurora, Honor My Dad, 1342 S. Chambers Road, Aurora, CO   80017