NAMI Butler County Logo             Summer 2012 Newsletter

NAMI Butler County Board of Directors

Chairperson
Gerald Summers 
Vice-Chairperson
Charlie Borton
Secretary 
   
Suzan Stracke
Treasurer 

Rebecca McDonough
 
Lindsay Buchanan
Judge Joyce A. Campbell 
Nancy Holtkamp 
NAMI 
Butler County 

Executive Director
Rhonda Benson, MSW 

Associate Director

Kathleen Stevens 
 
5963 Boymel Drive
Fairfield OH 45014
 
(513) 860-8386 
(513) 860-8387
Fax: 
(513) 860-9241
 
NAMI National

President
Stephen Feinstein, Ph.D.
 
Executive Director
Mike Fitzpatrick

3803 N. Fairfax Dr.
Ste. 100
Arlington, VA 22203
(703) 524-7600
NAMI Ohio

Executive Director
Terry Russell

1225 Dublin RD
STE 125 
Columbus, OH 43215 
(614) 224-2700
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Check our website & facebook page for updates on:  Meetings, speakers, mental health news, latest blog entries, &  volunteer news 

Attention all Kroger Shoppers!  We Need You! 

 

In case you haven't heard, you can now earn dollars for NAMI simply by signing up online using your existing Kroger Plus Card! Click here for more info!  If you have difficulty signing up, just give us a call and we'll talk you through it. 

Membership

Update

  

Welcome and thanks to new members!

Sheri Gordon, 

Theresa Lindley,  

Kimberly Scudder  

 

 

Thanks to our renewing members:

Nancy Ellington, Mary Ellen Elliott, Duane Gehring, Kathryn Hoskins, Pat Irwin, John & Mary Kerr, Paul Komarek, Jackie Kruger, Lew Kruger, Sandra Parker, Richard & Suzan Stracke, Lisa Wilson 

 

What is a NAMI Ambassador?

-Promotes NAMI & its services to the community
-Represents NAMI at special events 
-Recruits volunteers 
 
Join Us! Meetings are the third Thursday of each month at 6:00 PM at the NAMI Office located at 5963 Boymel Drive in Fairfield. 
Need help creating a Wellness Contract with a loved one?

Templates can be found online at Printable Contracts.com
Click for a Boilerplate Contract template or a  Simple Contract template
  
Need more information about medications?

Contact the National Council on Patient Information and Education (NCPIE) at (301) 340-3940 or visit talkaboutrx.org.
  
Need help creating a Special Needs Trust?

Visit the Special Needs Alliance, a national non-profit organization made up of attorneys dedicated to disability and public benefits law.  Call 1-877-572-8472 or visit their website .
  
  
Letter from the Executive Director  
 

I have been very fortunate this year to attend two NAMI conferences, the NAMI National Convention in Seattle, Washington, "Wellness, Resiliency and Recovery" and the NAMI Ohio Conference, "The Great Mental Health Debate: Acknowledging the Elephants in the Room". Both helped to renew my sense of purpose to continue doing what NAMI does best: Advocate, Educate and Support.

 

At both conferences there was a focus on brain research. We have come a long way from beliefs of possession, character flaws and "parent bashing" to understanding that mental illness has a biological origin. This shift in understanding has opened a world of opportunity to finally get effective research and treatment, and to stop stigmatizing those suffering from brain disorders. Patrick Kennedy, the keynote speaker at the Ohio conference stated, "The brain is the last medical frontier".

 

Kennedy, who suffers from bipolar disorder and addiction, was very outspoken on the need to advocate for better research practices and stigma reduction. He stated "We are discriminated against because we have an illness in our brain." Fighting stigma "is a personal job, an inside job. One person can make a difference and everyone should try. It takes each of us coming together." Kennedy also strongly advocates for a coordinated approach to brain research. "Silence is killing us. We need to advocate for the FDA to develop a sense of urgency "for coordinated neuroresearch". (See 1mind4research.org) As we increase our understanding of the brain, we increase treatment options and decrease stigma.

 

It is traditional in this country to support those causes we believe in, both with our membership, our presence and our dollars. We give to our place of worship, to animal shelters, to our public television stations, and to research for all types of cures. We join and support those organizations we believe will make a difference in the things we care about; not for what we can get back, but because we believe in what they do.  NAMI has always been on the front lines fighting stigma and advocating for better research and treatment practices. That is a huge part of what we do. If you care about those struggling with brain disorders and their families, if you want to make a difference, support the organization that is dedicated to doing that: NAMI. Let your name count by joining NAMI, donate what you can to keep NAMI a vital presence in your community, and please, support us October 13th at the Butler County NAMIWalks for the Mind of America event. NAMI gives you the opportunity to come together, make this personal, and let people know that Mental Health matters to you.
When you support NAMI, you support mental health.

 

Sincerely,

Rhonda 

     

namiwalks  

Walk Kick-off Luncheon
August 15, 2012  11:30 AM
 

 

There will be a free Walk Kick-Off Luncheon on Wednesday, August 15, 2012 at 11:30 AM at the Courtyard by Mariott Hamilton, 1 Riverfront Plaza, Hamilton OH 45011 for those interrsted in being Team Captains and Walk Sponsors for our 7th Annual Walks for the Mind of America event!

 

Information & materials will be distributed to help you organize and motivate a Walk team, learn about NAMI's online services, and explore sponsorship opportunities.  Please RSVP by Friday, August 10, 2012 to 860-8386 or info@nami-bc.org  

Put On Your Walking Shoes!  

 

walkersMark your calendars! This year's walk is October 13th at 10:00 AM. Our NAMI Walk is the biggest community awareness event in Butler County. Not only does your support help us provide free educational programs to the community but your participation tells others in our community that mental health matters. Please make a commitment to ask everyone you know to either walk or sponsor a walker this October. Let's work together to make a statement that we believe mental illness deserves the same attention, compassion and respect as other forms of illness. Help us fight stigma with your participation and dollars.  

 

Family to Family logo

New Family to Family Classes Begin in September

 

If you missed signing up for our current Spring Family to Family classes, sign up now for classes beginning September 17th at The Vineyard Church in Springdale and September 18th at our Boymel Drive office. Registration, classes and materials are free. Family to Family is geared toward people who have loved ones ages 16 and over with a mental illness and runs one evening a week for 12 weeks. We are also creating a list of those who are interested in NAMI Basics (for family members of children ages 16 and under) which meets for one evening a week for just six weeks.

 

Call 860-8386 to for more info or to register for classes.

Upcoming Education Meeting Speakers:

 

NAMI Art QuiltJuly 19th:  Maxine Apke, art teacher and facilitator & Sarah Martin, nursing student at Miami University, will discuss the role of art in alleviating depression in one's daily life. She will also discuss the workshop she will be co-facilitating and will display her recent project of creating a paper quilt (the squares of which were created by family members to express their experiences of loving someone who is living with a mental illness) and her plans for displaying them.   

 

August 16th: Bill Nordyke, RN, is the RN Coordinator of Fort Hamilton Hospital's Outpatient Mental Health Program. Bill will detail the services provided by this program and assist family members in deciding if their loved ones may benefit. He will also discuss alleviating depression and anxiety in our own lives as well as how to best help our loved ones with mental illness.

 

September 20:   Speaker to be announced soon. 

 

October 18:   Robert Kramer, author of Taming the Black Dog of Depression: A guide for those who are suffering and their families (2012). Kramer will discuss how he tamed what Winston Churchill called his "Black Dog" of depression and his efforts to chip away at the stigma of mental illness.  

Seattle Skyline

IT'S ALL GOOD
Seattle Conference Celebrates Recovery

by Kathleen Stevens, Associate Director

  

Summer usually grants us at least a week or two to catch our collective breath and reflect on our loved ones and their recovery journeys to date. The theme of this year's conference in Seattle, in fact, was recovery. A popular speaker at this year's conference was Jill Bolte Taylor, PhD, author of My Stroke of Insight (2008). Taylor's book chronicles her eight-year journey of recovery following a stroke at the age of 37.  

   Taylor, who has a brother with schizophrenia, said the key lessons she'd like to share with loved ones of those recovering from psychosis are: Honor the healing power of sleep, treat me like I will recover completely, challenge my brain systems, love me for who I am, help me define my priorities for energy use, give my brain years to recover, and recognize that I am not stupid - I am wounded. Finally, come close: do not be afraid of me.

   Many researchers in Seattle, including Taylor, talked about studies and treatments that are now more recovery driven.  Currently, we are working toward moving our loved ones beyond what we previously thought possible. This is in sharp contrast to the not too distant past in which it was believed that once diagnosed with mental illness, including age-related dementia, we can never get back what we've lost in the process. Instead of the "It's all downhill from here" scenario of the past, we're now wrapping our collective hands around a glass that's not only half full but begging to be filled to the rim. We're learning that the brain can not only recover, it can continue to improve; we just need to believe, research our options, advocate and persevere. Read on for some more recovery highlights from the Seattle conference.

Conference Sign

Post-Psychotic Adjustment to Recovery 

A presentation on post-psychotic adjustment to recovery talked about recent research which discovered a four-phase process (including 50 milestones) of measurable cognitive, emotional, interpersonal and physical milestones occurring over a two-year period which has become known as MAPP or the Milestones of Adjustment Post-psychosis Recovery Model. The presenters stressed the need to give people the time to heal, stating that we have not done a good job in helping people cope with the psychological and emotional consequences of psychosis. One presenter, a young man recently diagnosed with schizophrenia, feels that at least one family member should go through NAMI's Family to Family program and that those in recovery should be encouraged to join support groups such as NAMI Connections. He says that those in recover need life coaches, peers experienced with coping with mental illness, someone to help with paperwork and obtaining medications, a purpose in life, and a program to assist them in self-support. His message to friends and family is to stick with your loved ones (many friends abandoned him after his diagnosis), and recognize that the first two years after diagnosis are the most difficult.

Inside the Human Matrix:  Finding Solutions and Resilience in Difficult Times
Seattle Conference Presentation by Dr. Shawn Christopher Shae, MD, author of Happiness is...Unexpected Answers to Practical Questions in Curious Times 

      

happinessCan we be happy even when we are suffering? In his book, Dr. Shea seeks a tougher happiness that is present and revitalizing even during times of pain. He proposes that opposites co-create each other. Happiness only has power by the movement between well-being and woe. We can't know happiness if there is no opposite to compare it. We cannot know courage if there is no fear, resilience if there are no challenges. If we can accept that bad has to occur by the very order of nature, we can learn to see the good in it. We learn new coping skills, compassion for others, resilience. We learn to find strength in our relationships, in ourselves and in our God. We learn to recognize and value the good moments and embrace the bad moments for the learning experience they are.

 

Dr. Shea believes that happiness is as much an attitude as a feeling and that it is lived in the moment and is fluid in nature. It exists in those moments when we trust that we can reasonably cope with our world. It happens when we can look not at the past or the future, but at the moment, and embrace the difference this moment will make in our lives and the lives of others.

 

Dr. Shea presents a matrix of human nature, made up of our spirituality, our environment, our relationships, our psychology and our biology. This matrix is interwoven; change one and they all change. The more we learn to strengthen and trust the components of this matrix, the more we will live in those moments of happiness.

The Hearing Voices Approach   

A new therapeutic approach to individuals who hear voices, known as The Hearing Voices Approach was presented by Ron Coleman, RMN, Dip Research Methodology, Port of Ness, UK. Coleman, who has schizophrenia, says he hears seven distinct voices. Coleman says that in the past it was believed that we shouldn't ask about the voices our loved ones hear; that loved ones were told that talking about it could make symptoms worse. The new recommendations include asking our loved ones about their voices (How long have you been hearing them? How many do you hear? Who or what are they? What do they talk about?). By normalizing them, even using humor at times, you encourage your loved one to express their feelings and feel more comfortable about seeking help. Coleman has also started support groups for individuals who hear voices. For more about Coleman and The Hearing Voices approach and workshops visit www.roncolemanvoices.co.uk or www.hearingvoicesusa.org.

CET (Cognitive Enhancement Therapy) 

CET continues to gain momentum for helping people with schizophrenia and related mental illnesses improve processing speed, attention, memory, problem solving, the ability to interact with others, finding employment and even the self-management of their mental and physical health. For more information, see the Center for Cognition and Recovery at (216) 504-6428 or online at www.cetcleveland.org.

International Bipolar Foundation 

 

IBFInternational Bipolar Foundation offers a free monthly e-newsletter for those affected with bipolar disorder and also has referrals for doctors, therapists, schools, advocates and lawyers. For more information see InternationalBipolarFoundation.org. The National Education Alliance for Borderline Personality disorder (borderlinepersonalitydisorder.com) is now offering free call-in sessions on Sunday nights plus archives of some of their recent presentations. To streamline a five part video series on bipolar disorder (for a fee) see BPDvideo.com.ญญญ

Active Military and Veterans 

Active Military and Veterans had great presence at this year's conference. The number of suicides among our soldiers has risen by 80 percent since the start of the Iraq War. Depression and other forms of mental illness have paralleled this rise. For help, call the Veterans Crisis Line 1-800-273-8255 and press 1. For referrals see militarymentalhealth.org/resources/military_referrals.aspx. For general resources see mentalhealth.va.gov, militaryoonesource.mil, samhsa.gov/militaryfamilies or nami.org/ptsd.

Resiliency on Campus 

The Resiliency on Campus seminar discussed efforts to help students, parents, professors and school administrators to learn more about coping skills and stress management on campus. NAMI is joining such efforts with their NAMI on Campus program. NAMI Butler County is currently working on efforts to start a NAMI on Campus at Miami University. James Mitre, MN, RN of the Seattle Pacific University talked about his own son's battle with depression while at school and emphasized that it's important that students take advantage of campus counseling services to work through concerns. Recommended readings included Letting Go: A Parent's Guide to Today's College Experience by Karen Levin Coburn (2007) and 100 Things College Freshman ought to Know by William Disbro (2009)

Conference Recommended Readings

 

Some of the top offerings from the Seattle conference (in the conference book store and recommended by speakers):

 

SCHIZOPHRENIA

Living with Voices by Marius Romme (2009)

When Quietness Came: A Neuroscientist's Personal Journey with Schizophrenia by Erin Lynne Hawkes (2012)

Reis's Pieces: Love, Loss, and Schizophrenia by Karen Winters Schwartz (2012)

My Schizophrenic Life: The Road to Recovery from Mental Illness by Sandra Yuen MacKay (2010)

 

BIPOLAR DISORDER

The Bipolar Disorder Survival Guide: What You and Your Family Need to Know by David Jay Miklowitz (2010)

Loving Someone with Bipolar Disorder: Understanding and Helping Your Partner

by Julie A. Fast (2012)

Doing Dialectical Behavior Therapy by Kelly Koerner, PhD (2012)

 

OCD

Triggered: A Memoir of Obsessive-Compulsive Disorder by Fletcher Wortmann (2012)

 

GENERALhandtohand

You Need Help! A Step-by-Step Plan to Convince a Loved One to Get Counseling by Mark Komrad, MD (Coming out August 2012)

Happiness Is: Unexpected Answers to Practical Questions in Curious Times by Shawn Shea (2004).

Better Than Normal: What makes you Different can make you Exceptional by Dale Archer, PhD, (2004).

Linking Nutrition to Mental Health by Ruth Leyse-Wallace PhD, RD (2008).

The Power of Validation by Karyn Hall, PhD (2012)

 

BIPOLAR DISORDER/ANXIETY MAGAZINES

BP magazine (877 ) 575-4673 or bphope.com and Esperanza magazine (Anxiety and Depression) at (877) 575-4673 or hopetocope.com. Both are great selections for learning about the latest in research and treatment.

Book Club Spring Readings Announcedopen book

 

Here are our summer titles.  For more information about our book club, visit our website at nami-bc.org.

 

Book selections for coming months:

 

July: The Art of Comforting:  What to Say and Do for People in Distress by Val Walker (2010). We have all found ourselves in those situations where we are not quite sure what to say. This book provides a guide for establishing a human connection amidst the most challenging and chaotic of situations. 

 

August: The Buddha and the Borderline:  A Memoir by Kiera Van Gelder (2010). This book details one young woman's recovery from borderline personality disorder through dialectical behavior therapy, the practice of Buddhism and online dating.      

 

September: Life Inside the "Thin" Cage:  A Personal Look into the Hidden World of the Chronic Dieter by Constance Rhodes (2003).  A look at sub-clinical eating disorders and how to achieve balance when it comes to healthy eating, body image and lifestyle management.

 

If you read the books, please take a moment to share your thoughts, comments and questions (at kstevens@nami-bc.org). We will post them (along with answers to any questions) on our web site.  

Advocacy Spotlight - Send Your Brain to Harvard  

 

brainIt's been touted as a surefire way to get to Harvard! The Harvard Brain Tissue Resource Center was at the Seattle conference looking for brains. If that concerns you, rest assured that they are happy to wait until you're done with it. One reason that surrounding mental illness is on the decline is the absence of brain tissue. Researchers are looking for brain tissue from sufferers of mental illness as well as "normal" brains so they may do studies which compare tissues. The removal of the brain does not interfere with having a public viewing for family and friends, your donation remains anonymous and your family will receive a pathology report. To register as a donor, or for more information, call 1-800-272-4622 or go to brainbank.mclean.org.

Calendar of Events
Summer - Fall 2012 
 

July 19   Harbor House Open House Art Show- 12:00 - 1:30 PM
               at 140 Buckeye Street, Hamilton 

              Ambassadors Meeting - Cancelled

              Education Meeting - Speakers Maxine Apke & Sarah Martin will        
              demonstrate a new art workshop "Art as a Healing Tool"- 7:00 PM

Aug 2    Family-to-Family Support Group - 6:30 PM.

Aug 15  NAMIWalks Kick-off Luncheon at Courtyard by Marriott Hamilton
              -11:30 AM  

Aug 16   Ambassadors Meeting - 6:00 PM

              Education Meeting with Speaker Bill Nordyke, RN- 7:00 PM

Sept 6    Family-to-Family Support Group - 6:30 PM.

Sept 17  Family-to-Family Class Begins at Vineyard Church in Springdale
                - 6:30 PM.

Sept 18   Family-to-Family Class Begins at the NAMI Office in Fairfield
                - 6:30 PM.

Sept 20   Ambassadors Meeting - 6:00 PM

                Education Meeting - Speaker TBA - 7:00 PM 

Oct 4       Family-to-Family Support Group - 6:30 PM

Oct 13     NAMI Walks for the Mind of America - Fitton Center in Hamilton
                Registration begins at 8:30 AM, Walk begins at 10:00 AM 

Oct 18     Ambassadors Meeting - 6:00 PM

                Education Meeting - Speaker Robert Kramer, author of Taming the
                Black Dog of Depression:  A guide for those who are suffering and
                their families (2012)
- 7:00 PM