masthead
Issue # 17 May/2009
In This Issue
2009 Viral Hepatitis Conference
Drop To Stop
Doctors & Science
Living With Hepatitis C, A Survivors Guide
Find A Cure Panel
Personal Stories
Thank You
Quick Links
Join Our List
Join Our Mailing List
 

Colorado  

Hepatitis C Support Groups
 
For individuals infected with hepatitis C and family members affected by hepatitis C.  Free and confidential.  New members always welcome.

 


 
Metro-Denver

 

Aurora - 900 Potomac, 1st Floor Staff Cafeteria ~ 1st Tues. ~ 6:30-8 p.m. ~  Consuelo (303) 367-2813

 

Englewood - 1000 Englewood Parkway ~ 4th Tues. ~ 7-8:30 p.m.  Deidrea (303) 504-1853  

 

Lakewood - 11500 W. 20th ~ 2nd Tues. ~ 6:30-8 p.m.  

Betsy (303) 237-1150

 

HIV/HCV Co-Infection - 1660 S.  Albion ~ 4th Tues.  5:30-7:00 p.m.  Kim (303) 862-0407

 

VA (VA Patients Only) - 1055 Clermont, Room 2E-104 ~ 2nd Wed.  12:00-1:00 p.m. 

Deidrea (303) 504-1853 

  

 

Statewide

 

Boulder - People's Clinic 2nd floor 3303 N. Broadway  2nd Wed 6:00 - 7:30p.m.    Carrie (303) 875-2568

 

CO Springs - 825 E. Pikes Peak, 5th Floor Dining Room ~ 3rd Thurs. ~ 7-8:30 p.m. ~ David  (719) 440-0025

 

 

Fort Collins - 2809 E. Harmony, 3rd Floor ~ Last Wed. ~ 6:30-8 p.m. ~ Jerry (970) 214-2912

 

Grand Junction - 515 28 3/4 Road Bldg A,  ~ 1st Wed. ~ 5:15-6:45 p.m. Rainy (970) 208-4507

 

Pueblo - Last Mon. 5:00 - 6:30 p.m. Rhonda lovetorideinpueblo@yah
o.com

 
 

 

 
Greetings!                               

 
Welcome to the May 2009 edition of Connections!  
                                                                                               
Hep C Connection invites you, your loved ones, and our Colorado residents, in recognizing May as Hepatitis C Awareness Month. 
 
May has been declared "Hepatitis C Awareness Month" by the Mayor, Denver City Council and Colorado General Assembly. They have officially recognized the work that Hep C Connection does to develop awareness, provide education, resources and services to those who are "at-risk", infected, or to the many affected by the hepatitis C virus.
 
May 19th is World Hepatitis Day   
 
In support of Hepatitis Awareness Month, please join us at our Annual Viral Hepatitis Conference Wednesday, May 13th. Don't know what to do with your used hypodermic needles? Learn about our Drop To Stop community collaborative event the week of May 11th through May 15th. Hep C Connection staff and volunteers continue to participate in the many community health fairs offering education, testing, and resource and support services.  
  
We want to hear from you! To comment or contribute interesting news and information about hepatitis, please send us a note at info@hepc-connection.org. The deadline for news postings is May 18th.  
 
Please share our newsletter with others by simply forwarding it to others, or by using the forwarding option at the bottom. Thank you! 
2009 Colorado Viral Hepatitis Conference - May 13th
May is Hepatitis Awareness Month, and to help commemorate the month (and back by popular demand) is Hep C Connection's annual Colorado Viral Hepatitis Conference!  This year's conference will be on Wednesday, May 13, 2009, at the Anschutz Medical Campus at the University of Colorado Denver. 
 
The one-day conference will feature large-group meetings in the morning and early afternoon and three tracks in the afternoon focusing on specific categories:  policy, corrections, and case management.  Confirmed topics and speakers include:  an overview of viral hepatitis and co-infection from Dr. Steve Johnson; disability and employee rights with Barry Glass, LCSW from The Legal Center for People with Disabilities and Older People; hepatitis C testing and prevalence in the Department of Corrections with Dr. Paula Frantz; the next steps to take after hepatitis C diagnosis and interpreting test results with Ed Marino, PA-C. 
 
The cost for the conference is $45, which includes breakfast, lunch, and parking.  Please register by Friday, May 8, 2009.  For more information, please contact Laura Ginnett at (720) 917-3960 or lginnett@hepc-connection.org.
Drop To Stop
 
Don't know what to do with your used hypodermic needles? Safely dispose of them May 11th through May 15th.  
 
Hep C Connection and other local agencies have made disposal of used hypodermic needles safe and convenient by partnering to create the Drop to Stop project. Drop to Stop is a week-long community outreach project that encourages Colorado residents to dispose of their used needles safely, preventing the transmission of blood-borne infections such as hepatitis C and HIV. Individuals can drop off their used needles Monday, May 11th through Friday, May 15th from 9:00 a.m. to 4:00 p.m. at the following drop-off locations:
 
The Drop-In Center, 775 Lipan Street, Denver
 
Empowerment, 600 York Street, Denver
 
Northern Colorado AIDS Project, 400 Remington #100, Ft. Collins
 
Project Safe, 1741 Vine Street, Denver
 
Tri-County Health Department:
Alton Colfax location, Wells Fargo Bank Bldg., 9000 East Colfax #105, Aurora
Pecos location, Samuel Bldg., 7290 Samuel Drive #130, Denver
 
Urban Peak Outreach, 2100 Stout Street, Denver
 
Western Colorado AIDS Project, 805 Main Street, Grand Junction
 
Nancy Steinfurth, Executive Director for Hep C Connection, said, "Many people use syringes to manage medical conditions and do not know what to do with their needles after they have been used, creating a potential public health concern. The Drop to Stop project is designed to teach and encourage safe disposal of needles for those who use syringes." 
 
To learn more about the Drop to Stop project, contact Stewart Thomas, Medical and Marketing Liaison with Hep C Connection, at (720) 917-3970.
Doctors & Science
Overview of the Current Standard of Care for Treatment of Chronic Hepatitis C

The current standard of care for the treatment of chronic hepatitis C virus (HCV) infection is combination therapy with pegylated interferon alfa-2a (Pegasys) or pegylated interferon alfa-2b (PegIntron), both in combination with ribavirin.

At the 13th International Symposium on Viral Hepatitis and Liver Disease (ISVHLD) last week in Washington, DC, experts in the field of viral hepatitis were invited to present their views on various issues. Dr. Peter Ferenci of the Department of Internal Medicine, Gastroenterology and Hepatology at the Medical University of Vienna, Austria, offered an overview of the use of the 2 pegylated interferons plus ribavirin for chronic hepatitis C. Following is an edited summary of his remarks. To read the full article, please click here.

To read other related newsworthy pieces please visit www.hivandhepatitis.com.
Living With Hepatitis C, A Survivors Guide - On Sale Now
 
LIVING WITH HEPATITIS C, A SURVIVORS GUIDE, Fourth Edition, written by Gregory T. Everson, M.D., F.A.C.P., Director of Hepatology at the University of Colorado Health Science Center, and Hedy Weinberg on sale now for $10.
(Includes postage & handling)
 
To order your copy, please e-mail Amy Burkholder, Administrative Assistant, at aburkholder@hepc-connection.org.  
 
LIVING WITH HEPATITIS C, A SURVIVORS GUIDE is the first book written for the millions of Americans who suffer from this deadly disease offering guidance and answers for those infected or affected. Read about the nature of the disease and how it affects your body, pegylated and consensus interferons, the emerging standard-of-care, understanding confusing blood test, coping with emotions and grief, medical costs, and much more!
 
Living With Hepatitis C: The Complete Health Guide to the Causes and Treatment of Hepatitis C, Fifth Edition, written by Gregory T. Everson, M.D., F.A.C.P. and Hedy Weinberg will be available July 2009.
Find A Cure Panel - REPEAT  
Hep C Connection is excited to announce an affiliation with Find A Cure Panel where people with hep C can participate in quantitative online research designed specifically for them.  For every survey completed by those who register, Find A Cure Panel will donate a minimum of $25 to Hep C Connection.
 
You can complete the two minute profile, by clicking the logo below:  
 

FACP button

   
Please note that the registration profile is only used to send the specific surveys to you.  FACP doesn't ask for your street address and has no offline contact with you.  If you don't want to give your full name then you can use initials. For example, if you are Robert John Smith, you can sign up as "RJ Smith".

The data provided in actual surveys is completely anonymous.  All the clients will see is a 16 digit number like this: 40010-1234567890.  They will not know who that respondent is. This is a great way for you to impact the development of future treatment for hep C while supporting Hep C Connection. Check it out!
A Personal Story
"I found out I had Hepatitis C in 1992, by letter from the American Red Cross after a routine blood donation.  It has been determined that I probably acquired the virus in 1970 when I was 19 years old and underwent major back surgery, during which I received 5 pints of donated blood.

What was it like for you when you found out?  I was scared to death; I didn't know what Hepatitis C meant, so I took the letter to my family doctor who indicated we would track the virus via yearly blood tests to check liver enzymes.  My only symptom for years (even after my first round of treatment) has been extreme tiredness.

Describe the process you went through in getting medical care, whether to seek treatment, and the results.  I originally was started on the current two-drug protocol in 2000, but due to the severity of the side effects, quit after 8 weeks.  I was a walking zombie - no sleep, very, very irritable, couldn't think, etc.  I changed family doctors, and in 2006, my new doctor strongly recommended undergoing treatment again, to which I agreed.  The year 2007 was spent on Interferon and Ribavirin, and a host of side effects plagued me from hair loss to loss of appetite/nausea, disturbed sleep, moodiness, etc.  On the positive side, about 6 months into treatment, the virus was "undetectable." 

To read the full article, please click here.
A Special Thank You
Hep C Connection is fortunate to have support from many people and corporations.  We would like to say THANK YOU to the following for their contributions between January 1 and April 30, 2009:
 
Abernathy, Deanna                    Neese, Robert & Penny          
Barton, Pamela                         Overgaard, Jerry & Carolyn
Baxter, Norma                           Pikes Peak United Way
Benson, Carl                             Roche
Boles, James                            Rounds, Stephen & Nicolette
Bullard, Clint                             Ruderman, Tillie & Maxine Levy
Cissna, Scott                            Schering Plough
Colorado Health Foundation        Seymour, Sue 
Corbin, DL                                 Shillam, Pam
Delaney, Judith & John               Sisson, Sarah 
Dotter, William                           State of Colorado
Douglas, Mr & Mrs John             Steinfurth, Nancy 
Duncan Trust, John G                 Stewart, Ronald
Elkins-Gunovick, Peggy              Taveira, Steven & Joanne 
Feinland, Robert                         Thomas, Gail 
Fuss, Aryeh & Edis                    Tridex Systems  
Gass, Jerome & Debra                United Way
Gavan, Patricia                           Vertex
Glenn, Rusty                              Warner, Amy
Goldberg, Julie                            Warren, Charles 
Gonzalez, Stacie                        Warren-Vansickle, Anne
Goodman, Lori                            Yannekis, Liona
Grube, Mike                               Young, Matthew
Hays, Keith                                Young, Thomas & Marsha
Hodgman, Robert & Susan
Hunt, Wayne
Johnson, Mary E
Kathy's Tax Service
Kellog, Jean
Klein, Roxanna
Kohn, Joan
Kuran, William & Deborah Livornese
Lorenzini, David
Mauro, Joseph
McAndrew, Linda
Medtronic Foundation
Meyer, Christopher
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