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ABC's & 123's... Take a look at what we've been doing, if you please...
With Ryan recently beginning pre-school, we are feeling both proud and anxious about this milestone in his life. He loves his new school, his new friends, & of course his independence. He truly has a love for learning and of course "socializing & schmoozing"! As a teacher, I am amazed that he already knows his letters & sounds and that he is actually able to tell us all about his day at school... And as parents, we are so proud to watch him grow and learn each day but also scared of the obstacles he may face while away from us.
With each day that passes, we are getting closer than ever to a treatment for Duchenne muscular dystrophy. As muscles get weaker, our fight gets stronger. Our goal at this point is to preserve every ounce of muscle that we can for Ryan, while simultaneously pushing forward to bring these therapies out of the lab and into the lives of all boys battling DMD.
Please take a moment learn about what we've been doing at Ryan's Quest and for a few ideas on how you can help. |
| A Annoucements |
 We are announcing an addition to our scientific advisory board....
Dr. Brian Tseng!
As an assistant professor, Dr. Tseng joined the faculty at Harvard Medical School/ MGH in the Department of Neurology, Division of Child Neurology. With an MD/PhD background, he is a physician-scientist working to find better treatments and better care for Duchenne muscular dystrophy (DMD). Dr. Tseng is also a board-certified pediatric neurologist with neuromuscular interest. |
| B Big Business....Big Help |
Since acquiring our 501 (c)(3) tax exempt public charity status, we have been very fortunate to be placed on several matching gift and charitable giving program lists. These opportunities have impacted this organization greatly.
If you or someone you know works for a company that offers these programs please inquire about adding Ryan's Quest to the list of eligible charities. Just think...5 minutes of your time could mean 5 more tomorrows for boys living with Duchenne.
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| C Contributions |
Thanks to all those who supported Ryan's Dad, David Schultz, in his climb of Mt. Rainier. A special thank you to Tom Clugsten & Killarney's Publick House for holding "The Climb Party" and helping us to reach & exceed our goal of $14, 410! Your help enabled us to make our latest research contribution.
PROJECT: STEM CELL THERAPY $15,000
This contribution was made through a non-profit organization, Cure Duchenne, of Corona Del Mar, CA. Cure Duchenne is currently funding Dr. Giulio Cossu, the director of this project, at the University of Milan.
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| 1 1 Shirt + 1 Cause = 1 Cool Idea ! |
 Help us to raise awareness of Ryan's Quest and DMD by sporting a Ryan's Quest signature t-shirt.
1. We will be creating a new page on our website "Where did your RQ shirt go?"
2. Send us pictures of yourself wearing an RQ shirt at a famous place, participating in an event, or with a large group of RQ shirts and we will periodically update the page.
3. Send your pics to info@ryansquest.org with the Subject Line "RQ Shirt". |
| 2 2 Events that you Won't want to miss! |
Jerry Blavat Dance Party
Saturday,OCTOBER 17, 2009
Colonial Fire House, Hamilton NJ
Tickets $35 per person
For more info., click here (PDF)
Valentine Ball
Saturday, FEBRUARY, 13, 2010
Mercer Oaks Ballroom,
West Windsor NJ
Cocktail Hour,Open Bar, Live Band, Full Course Served Meal, Silent Auction
Tickets on sale soon!
Attention Supporters: Ryan's Quest is currently seeking items for our Silent Auction at the Valentine Ball. If you or anyone you know is able to obtain electronics, event tickets, property rentals, autographed memorabilia, or donated services please email Jennifer Chiorello at jen@ryansquest.org*We are also in need of event sponsors* |
| 3 Three easy ways that you can help... |
1.Change your Search Engine to Goodsearch.com and indicate Ryan's Quest as your charity of choice!!!
Goodsearch will donate 1 cent for every search you make...AND if you purchase items through this site (from everyday stores) a percentage will be donated back to Ryan's Quest as well.
2. A Favor for a Favor...
Purchase personalized party, baby & wedding favors through ALL THE RAVE EVENTS and 50% will be donated back to Ryan's Quest.
These personalized pops are a huge hit and have become well known as "Pops for a Purpose". Create your own gourmet "Lollipop" to fit any theme or occasion. From chocolate pops, to marshmallows, and smores...the possibilities are endless! Personalized tags will include the event that is being celebrated and also the fact that a donation has been made. Maybe even a great idea for holiday parties!
For more information, please contact Heather @ AllTheRaveEvents.com or call 609.954.6893 and indicate Ryan's Quest "Pops for a Purpose" when you call.
A special thank you to the Steinert High School Girls Soccer Team and coach, Aimee Turnball for volunteering to sell our signature "Pops for a Purpose" at a local grocery store for a weekend. Great idea girls!
3. Meet Ryan in a recently published Chapter Book!
To purchase an autographed copy of Nicky Fifth's Passport to the Garden State and have $1.00 from that sale benefit Ryan's Quest, visit www.franklinmasonpress.com . When ordering you will see a charity drop down menu. Just click on RYQ 123 and $1.00 will automatically be donated to Ryan's Quest. The softcover chapter book is perfect for children in grades 2/3 and up and anyone who has ever lived in the Garden State. The story uses real NJ locations as the setting and children can follow the main characters adventures and have their passport stamped at 36 Stamp Stops along the state. 200 pages, $6.95. | |
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Help Ryan's Quest continue to grow... Please forward this newsletter, our website or perhaps even our story onto your friends and family members.
Raising awareness about this disease is very important to us. We need your help to let others know about our cause. Awareness could be the final key that opens two doors...one for a cure and the other for a future!
Thank you,
Maria & David Schultz
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